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» LymeNet Flash » Questions and Discussion » General Support » First Dr appt, told me bartonella is not tickborne

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Author Topic: First Dr appt, told me bartonella is not tickborne
LuluBellesMama
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1. Today, I went to my PCP. I have extremely high triglicerides. Like over 900.

2. Went to the RA. (How did I get to him? 1. knee was swollen 2. went to pcp who 2. sent me to orthopedic 3. who sent me to RA) who, today:
told me bartonella is NOT tickborne
did not want to test me for co infections
told me if i still have symptoms after my mo of doxy then i probably have fibromyalgia
said that i would be way more sick if i had any co infections
unsuccessfully drained my knee causing me mucho pain and i am beyond ****ed

so you can see, since this doc does not believe bartonella is tick borne and dd not test me for coinfections, i will just see him till i get into my llmd

--------------------
------------
9.16.09 IGG+ 23 41
9.25.09 dx w/Lyme
10.22.09 first LLMD Appt

http://www.mylymelife.com

Posts: 69 | From CT | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
liesandmorelies
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Where the heck are these doctors getting their degrees today???

I am so sick of the ignorance.

Please copy him article after article about how Bartonella can be a Tick Borne disease. We have to educate these closed minded doctors.

At the least, we need to let them know we are on to them and should be educating them.

I believe many doctors do indeed understand Lyme, but pretend they don't so that they don't have to treat us. Whatever happened to DO NO HARM??????

Good luck Lulu and keep us posted.

--------------------
aka: Lyme Warrior

In order to do "real" science, you have to have a "real" conversation with nature.

Well Behaved Women Rarely Make History!

"Just Demand your Rights"

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massman
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Degrees are from Ignoramus Med School.
They are in the same fraternity.

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dmc
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probably from UCONN med. school or Yale.
Posts: 2675 | From ct, usa | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
Keebler
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-
You said you " . . .will just see him till i get into my llmd."

Why see him at all any more? Why pay a plumber to look at your electrical system?

There is so much more we can do on our own to take good care of ourselves (and even ease some symptoms) in between doctors - especially doctors who don't have even an adequate knowledge base.
-

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Buster
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It is tick born, but does not 'have to' be tick born, it comes from other sources as well.
Posts: 458 | From Miss | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
liesandmorelies
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Keebler, LOL LOL LOL =)

--------------------
aka: Lyme Warrior

In order to do "real" science, you have to have a "real" conversation with nature.

Well Behaved Women Rarely Make History!

"Just Demand your Rights"

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Lymetoo
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quote:
Originally posted by dmc:
probably from UCONN med. school or Yale. [/QB]

[lol] NO, probably Johns Hopkins!!

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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quote:
Originally posted by Keebler:
[QB] -
You said you " . . .will just see him till i get into my llmd."

Why see him at all any more? Why pay a plumber to look at your electrical system?

Agreed. I was wondering that myself.

--------------------
--Lymetutu--
Opinions, not medical advice!

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peacemama
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My son was hospitalized at the University of Minnesota and they suspected Bartonella. Because we didn't have a cat, and hadn't been around a cat, they treated him with IV abx until he responded.

Never even did a test, even though a reliable test has been around for 5 years (this was three years ago).

He got better. We didn't pursue until our Family Doc (and LLMD) suggested I test for Lyme.

Recently we went to see a well-respect ENT who doesn't get worked up about much. He got REALLY worked up that the hospital put our son in isolation, suspected bartonella AND never ran the damn test.

Idiots. Most are idiots.

My friend is a vet. She said that very few ticks tested have bartonella anymore. The folks at Igenex told me the same thing. Makes me think that in some ways, that idiot doc of yours was possibly right. It is rarely tickborne in 2009. But how many of us are recent bites? I believe that my Bartonella is congenital. That would make my kids second generation congenital.

Of course, this is all just my conjecture. A little hearsay and a whole lot of conjecture on my part. For what it is worth.

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Robin123
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Just tell him right - you heard you can catch it at a bar.
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bettyg
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mama, so sorry for what you went thru today. [toilet] [Mad]

i'm with keebler; don't go anymore there. [group hug] [kiss]

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lou
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How do they know few ticks are testing positive for bartonella? Does this even make any sense when animals with bart have ticks? That NC doc who is setting up a commercial bart test says it is hard to find in humans, even when present. So, who is testing ticks for bart and is it easy to find there?

I would not believe a statement like this, even though it is possible to get bart in other ways than from ticks.

Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
   

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