LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » Reclaiming my Life Today... I've had enough of this crap

 - UBBFriend: Email this page to someone!    
Author Topic: Reclaiming my Life Today... I've had enough of this crap
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590

Icon 14 posted      Profile for lymetwister     Send New Private Message       Edit/Delete Post   Reply With Quote 
See for yourself: http://www.youtube.com/watch?v=kmiNstiFieM

As many of you know, I have been doing so terrible lately.

Babesia has been hitting me hard with air hunger attacks lasting hours lately.

Bart has been kicking my butt with gut wrenching, all day anxiety as well.

I have been aching all over for some time now and can't get warm. My head hurts from the inside out and I can't concentrate or think straight most of the time.

My brain tremors in my sleep only to awaken me while I'm sleeping. Non-stop Vertigo has haunted me for the last 5 months now.

Many more symptoms..........

I started back on Rife and Salt/C and the Herxes were causing emotional baggage that I couldn't handle. I was begging for god to take me and even thinking of how to do it myself.

Then my 7 y.o. princess daughter awoke with 103.3 fever and was aching all over. The fevers have come and gone all day with Tylenol, but something hit me as she rested and I was sitting here all alone in the house. Not sure how or why it happened, but I said enough of this crap. I am going to start living.

I can't sit around anymore and look at the walls. I grabbed my Ipod, which has sat with a full charge for the last 3 months, and I put it on and then I put on my shoes and got on my treadmill for the first time in over a year. At first I thought of just walking, but I said, forget it. If I can make it through all of the above symptoms, then I can sure as hell run a little bit.

I don't even care if I overdid it, but I almost ran 2 miles. I walked only 1 of the laps. My Heart Rate got up to 178 and I was sweating all over the place. My body was saying I should slow down, but I kept telling myself this is nothing compared to the symptoms we all go through each and every day. Perhaps some die off came out of my skin. My daughter told me I stink like pee, so it's something :-).

Bottom line: I've been sick, but I've also been having a pity party for myself way too much.

Don't get me wrong, as I still need your guys support :-), but I'm gonna start trying to do everything that I can to start living a little.

This doesn't mean that I'm going back to work tomorrow or even for a 2 hour drive, but I am going to start doing things to keep my busy and active, obviously not during an air hunger attack or while the coffee enema hose is attached, but when I get some down time and not struggling so bad as was the case today, I will start getting off my butt and doing whatever, anything that doesn't have to do with Lyme.

I have let this disease consume me. I have become the disease. I will still post here, but I will not spend my days in front of the computer anymore.

I'm all sweaty as I sit here and type as I'm exhausted to take a shower, but I will find the energy and get myself in there in a few minutes.

The electric razor is going under the sink and I'm bringing out the lather and my straight edge. I will change my underwear every day now and gel my hair. No more hats.

We all have different cases, but my family needs their Dad back, and I'm determined to give them just that !


LT

Posts: 1227 | From District of Columbia | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Glad to see you feeling better. You might want to check out some great suggestions here for getting over those mountains:

----------

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Treatment Guidelines (2008) - 37 pages

Joseph J. Burrascano, Jr., M.D.


* Page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

* Pages 31 - 32 for LYME DISEASE REHABILITATION and specifics in coordinating a safe rest / work-out schedule and Physical Therapy.
-

[ 10-18-2009, 01:52 PM: Message edited by: Keebler ]

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
RDaywillcome
Frequent Contributor (1K+ posts)
Member # 21454

Icon 1 posted      Profile for RDaywillcome     Send New Private Message       Edit/Delete Post   Reply With Quote 
Good for you Dad! You may have lyme, but don't let it have you!

It will get better with time. Stay strong and you'll see what I mean.

There were days that I never thought I'd see the light at the end of that tunnel...but I've seen it and I'm living it. My thoughts and prayers are with you.

Posts: 1738 | From over the rainbow | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
twister,

good for you taking back your life.

it's like the saying that it's HOW YOU PERCEIVE THINGS that will change things 90% !! good luck my friend [Smile] [group hug] [kiss]

IP: Logged | Report this post to a Moderator
PB4
Member
Member # 20799

Icon 1 posted      Profile for PB4     Send New Private Message       Edit/Delete Post   Reply With Quote 
Twister,
Because of what you wrote, I went in the


bathroom and colored my hair for the first time


since I have been sick. The grey roots made me


look like an old hag. I tossed my frumpy clothes


into the laundry and put on something nicer. It


was time, my friend, for me to pick myself up


and dust myself off and live better. Maybe I can


only do so much about the Lyme, but I can do


everything about my attitude. I feel better


today.


Blessings,
PB

Posts: 78 | From Maryland | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
s0ngbird1962
LymeNet Contributor
Member # 16395

Icon 1 posted      Profile for s0ngbird1962     Send New Private Message       Edit/Delete Post   Reply With Quote 
LOVE your attitude!!

--------------------
Mom to a 5 year old lymie....
Taking it one day at a time.

Posts: 182 | From Ipswich, MA | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
ping
Frequent Contributor (1K+ posts)
Member # 6974

Icon 14 posted      Profile for ping     Send New Private Message       Edit/Delete Post   Reply With Quote 
LT - I commend your spirited response! [woohoo] Usually getting started is the hardest part. [group hug]

ping
"We are more than containers for Lyme"

--------------------
ping
"We are more than containers for Lyme"

Posts: 1302 | From Back in TX again | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
daisyrlb
Frequent Contributor (1K+ posts)
Member # 15686

Icon 1 posted      Profile for daisyrlb     Send New Private Message       Edit/Delete Post   Reply With Quote 
So sorry about your little princess. Pray she is feeling totally well soon.

As for you, Whooo hooo--you ARE a Lyme Survivor Dad!

I encourage you to go to the Flash Discussion and read people's "Success Stories" (mine is towards the bottom of page 2)...any way you'll be inspired.

A little attitude, which you definitely have, makes a big difference---umm rather, makes THE difference.

Another Lyme Survivor

Posts: 2188 | From Oklahoma | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.