Does anyone here have children with Lyme Disease who have also been treated for Kawasaki disease? I'm new here. My husband has chronic Lyme-has been on abx since May. Finally feeling a little better. Now we're wondering how many in our family have Lyme.
We live in western Loudoun County, VA which is a hotbed for Lyme disease. My son, now 9, developed a bullseye rash in June of 2007 and was treated for a few weeks with Amoxicillin. He was a kid who never got sick, but he had flu-like symptoms around that time too-looked and felt blah.
About a month after his lyme treatment he was treated for Kawasaki disease-it was a classic case with bloodshot eyes, swollen lymph nodes, HIGH fever (103.5+) for 5+ days, strawberry tongue, bright red palms and soles of feet. He was treated at Children's in DC for 2 weeks w/ 2 doses of IVIG + a dose of Remicade because of his continued fevers. He ended up with Giant Coronary artery Aneurysms and is now on Coumadin.
Since his diagnosis, he has complained of joint pain, stomach aches and general tiredness. We're wondering if the Lyme disease may not have been treated completely and may have triggered the Kawasaki disease. He has also had several tick bites this summer, so we're going to take him to my husband's LLMD next week. Just curious if there were others who had dealt with Kawasaki disease...
Then maybe I'll get tested too, as I've been dx'd with MS...
Thanks, and I look forward to talking with you all and learning lots!
Posts: 3 | From Loudoun County, VA | Registered: Dec 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
sydli,
Hi and welcome!
I am sorry that your son has gone through this.
I can't help you with the Kawasaki disease, but I think it is very possible that your son does have chronic lyme.
You are smart to follow up on this "mother's intuition", and to follow up on the possibility that you also could be infected.
If your husband's LLMD treats children, you are fortunate, since there are not alot of pediatric LLMD's.
Many people are undertreated for lyme, because the Dr's who treat them follow IDSA guidelines instead of ILADS guidelines.
This allows the lyme bacteria to disseminate and become chronic....and then those Dr's deny that the patient's symptoms are lyme related "because they were treated".
If your husband's LLMD can't treat your son, you can post on the "Seeking a Doctor" board for pediatric LLMD's.
Please also visit our other boards...the Medical Questions board is very helpful and informative...because of all the good people.
Here is some info you should read, if you haven't already.....someone will be along to provide more info...
Good luck. I wish you, your husband and your dear son all the best.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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You may also want to post your question about Kawasaki disease on the Medical Questions board where more people will see it.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Kawasaki Syndrome (disease) has no definitive cause. It was named in Japan and is found only in kids. An autoimmune reaction with an unknown trigger that if not recognized early can cause cardiac complications.
It was first thought to be caused by a mite released from newly cleaned carpets but many dispute that now although the cause remains unknown.
Posts: 130 | From Central NY | Registered: Jul 2009
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