posted
I just got a note from someone saying it was, but it was my understanding that Lyme Cryme displayed an accurate account of what's going on. Your thoughts??
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Most of the medical/scientific papers posted are actual science which can be found by doing a Pub-Med or extended search... or digging up old Lyme related files from the old days.
What I have a problem with is ...
1. The way it is presented (harsh tones, demanding, etc) and the accusations of fraud, intent... examples- he knew this and that, etc...
2. And the way it makes us, as a Lyme Community, look when most of all we NEED to be credible to get ourselves and others help.
3. Some of those connected to it or shall I say promoting it have been booted off other boards for a variety of reasons ... some that can be seen in the forceful tone of the postings there.
In my opinion, to say those things at the site and be expected to be taken by others as knowing what you are talking about and sincere.... you would need much more evidence, less harsh opinion scattered throughout and a better way to present it all.
And even then, what does it accomplish? My guess is it would be a hard sell to anyone in authority (presented like that) and there seems to be no set goal they have in mind or something they want to happen because of that information, other than it to be an outlet to kick and scream...
Which is a good release of anger and frustration, for sure... and something I do on occasion too.
As far as inaccuracies... I don't know of any specifically, but also don't have time to check all their work right now.
posted
Thank you Tincup. Thank you so much for taking the time to walk me through this a bit.
I'm still learning and want to make sure that any site I promote in a Lyme info video is widely accepted, so as to inform without alienating.
By the same token, I would like to see some form of criticism for the IDSA guidelines and deliberately faulty science, and outright hostility openly heaved at patients who dare to demand treatment, or our doctors out to save us.
If not LymeCryme, is there something even close?
Tincup, can you please advise me a bit as to a list of sites I should promote? I'm planning on tweaking the video a bit, to take a little longer on certain frames (on the advice of BettyG), and add in some frames to promote several of the sites I have found honorable and useful.
So far, I'm considering CALDA, ILADS, CANLYME, but which others?
I have to say, On the LymeCryme site, I was fond of the suggestion of a RICO lawsuit, and gravely dissapointed that there did not seem to be any criminal penalty for dictating a deprivation of medical treatment, either ruining or costing the very lives of millions. What gives?
Again, I'm grateful for your insights and efforts. I trust your opinion from what I've learned of you in here. You seem very level-headed, and you really know your stuff.
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
That website seems to be much like another one authored by K.D. Am I right Tincup? Harsh tone and accusations, real or no, have not helped the situation.
Mary
Posts: 1032 | From North Carolina | Registered: Aug 2003
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
Well I looked at it,it blew my lyme brain away.
Not enuf spaces, to hard to read!!
OUCH! my brain hurts!!!
MADDOG P.S. someone does need to point the finger at the gov. rats. it seems to be trying to do that.
Posts: 3995 | From Ohio | Registered: Oct 2000
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
yes, if you look at actionlyme.org you will find similar material.
The thing about actionlyme is that, although it does blow your mind away, if you dig, you will find a plethora of primary sources....enough to convict the IDSA ducks and put them away for life.
I tried to get the author of that website to create something more simple that the lay person could grab a hold of. But the site author's mind is just so far above what my mind can comprehend....
This lady has done hoards of work to expose the fraud, and has been banging on doors to get it exposed, but simple folk like myself can't weed through the site to find the essential smoking guns......
If you sit for quite some time in front of actionlyme, you will find the goods....and there is quite a bit of it.....that expose the crimes.....It is all there in black and white.
Quite unbelievable that it sits there on the world wide web, and these IDSA folks are getting away with all of it.
One day it will be the stuff movies are made of. IN the meantime, we must try to sift through those sites to find the primary sources and use them appropriately.
I had hopes the attorney general of connecticut would take it that far.....
Mary
Posts: 1032 | From North Carolina | Registered: Aug 2003
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Cheryl
Frequent Contributor (1K+ posts)
Member # 75
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