Topic: Good Moments and Not so Good Moments Jan 11 to 17, 2009
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Since coming down with lyme and company life is like climbing a steep mountain with low oxygen and a heavy backpack.
As when I use to backpack, it was the view at times that made it all worth while.
Now, it is things that I would have never considered while well and active.
So, thought i would start a thread to help us focus on good thoughts and things along our journey each week.
So far today my good thought moment was when I found myself behind a school bus. Watched twice as the bus picked up kids for school.
Go figure. Don't have a clue as to why that gave me a moment of joy down deep in my soul...but it did.
Also thankful for the car that a friend donated to me to help me get out and about when able.
It has brought me lots of good feelings while out and about.
The scared, on edge thoughts still out weight the feeling "normal" thoughts but hoping this thread will help us focus on those good moments or thoughts that happen as our "normal" is redefined.
[ 01-12-2010, 10:38 AM: Message edited by: kam ]
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Monday:
Called physical therapy to schedule water therapy sessions and they had all ready penciled me in.
don't know why but that helped so much. All I had to do was write on my calendar the dates.
They had me scheduled for twice a week but last time I tried that I had a big set back so going back to once a week.
They also are only charging me $30 a month after insurance denied more sessions.
That was an easy call. I was expecting it to be one of those moments when I really struggle to schedule and write down the time and dates.
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Hoping more will add their posts.
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Not so good moment:
Thought I was doing OK. Got on tram via power chair to go to grocery store.
Went into grocery store as usual and my brain went blank.
Went out of grocery store, ran into a couple of the clerks outside.
Tram pulled up to drop someone else off..I got on and came home.
Not sure why the brain would not work. Rescheduled tram pick up for later this week.
Not a good moment. Kind of wanted to cry but couldn't.
Also trying to not make it a big deal. I can just try again later.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Good moment:
I was put in contact with a person who has CFS but is going downhill.
I was able to talk with him by phone and then email him lots of ILADS info on lyme and coinfections.
He is finding a LLMD.
Not so good moment:
I've been crying alot as time draws closer for my son to be deployed to Iraq.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Was that to the grocery store Bas___ where we were??
Can you make a list of food you want on your puter while having good days or moments.
print it and take it with you??
And if your having a real bad week,day, whatever, could you email that list to the lady who REALLY likes you there. Older really friendly lady,,think she is manager of organic section but NOT sure?
If you made arrangements in advance I am SURE she would help you out,,bring it to your door.
IF you can get her name and number I can even call and set that up. I KICK myself for NOT getting it while I was there.
She probably wont do it every day or every time,,,but when times are tough,,,ya gotta do what ya gotta do!!
At least that would get you survival food when the cupboards are most bare!!
Here they have a food pantry for the needy also. A food wholesale BIG place here helps them out with dinged and bent/damaged containers with good food inside.
NO selection that way,,but its food.
Also they have a 'commodity' dispersal for people of need also. You have NO choice what you get,,,you get what they want to give EACH person. THAT is a government program.
SOME people give away or trade away the stuff they cant or wont use!!Dont know if that bends rules,,,but its been done.
I think we can solve your grocery getting needs if we try hard enough.
maybe even able to include the feed store for Rosie groceries too!! I never got the chance to go there,wish I would have!!
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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Talked to my very good friend on the phone at length last night and she reassured me that I can beat this disease and be healthy again.
Not so good moment:
Feelings of hopelessness and being sad that I can no longer do the things that I use to be able to do. Feeling alone. Feeling defeated.
-------------------- Never, Never, Never give up! Posts: 395 | From Connecticut | Registered: Nov 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Dek....good news about the person getting help.
How stressful for you re: your son.
Don, I rescheduled the tram pick up for friday.
Jenny:
Your good moments put a smile on my face. So glad you had those good moments.
Your not so good moment had me shaking my head up and down in agreement...I hate those moments and it seems they come too often.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
Yesterday: Good news and bad news is one in the same: My sister in law, who has been feeling very ill for a long, long time, took our advice and went to see our LLMD. She got the results and will be beginning treatment. At least now maybe she'll begin to feel better eventually. This, after her regular doctor told her she needed a psychiatrist because it was "all in her head."
Today: Good; I needed pet food so I stopped at the doggie day care center where I always buy it. The center is a kind of play center where the dog are "free range" most of the day. I LOVE going there and watching the dogs mingle with each other. It always puts a smile on my face.
Not so good: fibromyalgia-like symptoms are really bad today.
Posts: 212 | From Pennsylvania, USA | Registered: Jul 2009
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I like this idea of a doggie day care. We have one here but it is only for small dogs.
Glad you SIL went to lyme doc...that is a big hurdle.
Good moment...After years of not sleeping through the night, I still wake up thankful and surprised when I see the time and see it is morning and not the middle of the night.
Not so good moment... body and brain are not working well enough to get up and get dressed and get out of the house....still waiting for one of those mornings.
Good moment...a fellow lyme friend sent some supplements...hoping my brain will start working better again...hope is good.
Kind of good moment..it looks like I will be able to go to my water therapy session this morning an hour away.(Good moment if I make it and have a succcsful session.
I can feel the warm water on my body now.
Not so good moment...that old speedo...very old speedo that I have to put on....was a size 8 when I got it in the 70's and am now a size 18.
thankful the swim suit keeps stretching but it is just about a goner.
Purchased a swimsuit at Walmart...only place in town with swim suits...but don't wear it...the fabric is lousy when it gets wet and the straps keep coming off.
Not so good moment is not liking my body after years of not even thinking of my body as I was fit...
...but hoping that will come again
Ok time to get up and take a couple of excedrin ...hope it helps with the pressure in the head ...usually does...for some reason helps the brain move the body too
STill waiting for one of those feel good moments.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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I hope you've had some "good moments" since Thursday.
I get speedo's at Model's. They seem to always have them, and they're not a bad price.
I have also found Target to be OK for swimsuits - for me, not for a competitive swimmer. Def. better than Walmart.
My good moment this week: I picked out paint color samples with my kids for their rooms. -
Posts: 797 | From New York | Registered: Feb 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Carly....pinking out paint samples sounds like fun...color is important...
Still waiting for a good moment...
Reading that Mad Dog has some hope was a good moment.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
That was a good moment, Kam.
Posts: 797 | From New York | Registered: Feb 2008
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daisyrlb
Frequent Contributor (1K+ posts)
Member # 15686
posted
kam, This post, what a great idea. I think it is a very timely topic.
Blessed to read all your posts, even chuckled some too.
Dekrator48, Good what you're doing with educating people. Praying for your son, and you. (Tears are actually good for us.) My brother was in Iraq, three tours, now home safely. I have a camouflage bear on my living room side table, I used it as a reminder to pray for my brother. It'll now be my reminder to pray for your son. May God give you peace.
My son just sent me a picture on Facebook of my granddaughters. Made me very happy.
Posts: 2188 | From Oklahoma | Registered: May 2008
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sutherngrl
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Member # 16270
posted
Good moment and bad moment at the same time.....
I finally after almost 4 years of being ill and being in treatment for 20 months, decided to just accept that going into "remission" vs being "cured" is the most likely scenario.
Reason its good is I don't put so much pressure on myself and it made me accept this illness for what it is.
Reason its bad.... now I'm depressed. I had clung to the thought that I would be cured way before now, but kept moving the date up(as if I had any control). Now I just have to find some more good moments to help me get through this period of depression.
I'm gonna try and find them and let you guys know!
Posts: 4035 | From Mississippi | Registered: Jul 2008
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