posted
And what do I find? I came here to re-connect with my old friends who have been so helpfull to me. Some are still here but many are gone. Ok, all ya "oldtimers", if you feel you need to leave here could you Please message me so I can find you later on? I've been in a very dark place, went through a divorce, no medical coverage, no income, total relapse of my symptoms. Hehehe....I sure sound like someone you want following ya huh? Anyways, I'm hoping everyone is well.
-------------------- "Absence of evidence is not evidence of absence"--Carl Sagan Posts: 317 | From Kansas and New Jersey | Registered: May 2008
| IP: Logged |
posted
Yea!! Hi tutu, My daughter is still strugling with the health issues and the military. She's hanging in there though. She and her hubby bought a house and the closing date should be feb. 19th. We've been busy packing and trying to get ready for the move. Still haven't had her son tested yet but the drs. seem to think that his issues are related to sleep apnea. Hes had a couple of sleep studies so far. no news on how the latest one went. I just looooove doctors testing and poking and looking around, over and under the lyme issue. It's almost as if "I don't look at it maybe it will not be there". Hopefully she'll be able to save up the money to get him tested, but for now it's just not possible. I got on here really just to touch base with everyone, I not anywhere near "normal" so I might have these lapses in being on here. I do think of you all often though and with out you and everyone else on here I'd probably be totally lost.
-------------------- "Absence of evidence is not evidence of absence"--Carl Sagan Posts: 317 | From Kansas and New Jersey | Registered: May 2008
| IP: Logged |
posted
I am not an old timer, I just joined the net but would love the opportunity to become a friend:)
Posts: 22 | From maine | Registered: Jan 2010
| IP: Logged |
posted
Thank you TuTu I will do that, She'll be pleased to hear that you still remember her.
Hi Nurse lymy, new friends are always welcome and Welcome to the Lymenet family. How are you? I guess I could be nosey and ask, LOL.
I'm kinda fairweathered at this point in my life. I'm on here for awhile then I slide back into my, as I call it, hole. Lots of neuro and nerve damage and now my thyroid. All of that doesn't let me be very reliable.
So if I blip in and out of here forgive me. I see you're in Maine, I'm in New Jersey at the moment living with my daughter and her husband. Gotta love the winter were having eh?
-------------------- "Absence of evidence is not evidence of absence"--Carl Sagan Posts: 317 | From Kansas and New Jersey | Registered: May 2008
| IP: Logged |
posted
Thank you all. It is nice to know I have friends who care. I know what it is like to crawl into a hole proudmom. For Most of the first 1 1/2 yrs I stayed in bed with a pillow covering my head, but now I just try to enjoy every moment of whatever I am able to do that day. Don't get me wrong it takes several days after"seizure" to get back on the horse and try to do anything, but I have to do it because I have already gone clinically insane once because I shut the world out and I refuse to do that to my husband and kids again. Please try to reach outward instead of inward:)
Posts: 22 | From maine | Registered: Jan 2010
| IP: Logged |
posted
<<just don>> pm sent, lol, carefull what you ask for
<<nurse lymy>> usually I dive back into my hole when the neuro symptoms get bad. It's so bad sometimes that I can sit here with my fingers hovering over the key board and have no clue where the letters are. When the strugle to focus gets too bad I give it up for awhile. It can take me an hour or more just to type a post like this sometimes. You can look at some of my past posts and see what i mean. I start out and then quickly forget what i was doing. I'm an activist at heart and after severl futile attempts to do something constructive to help all of us in this battle I gave it up. I'll have great ideas and focus, then "blip" it's gone and I'll have no clue where I was going with it. I think that's my reason for coming and going on here.
<<lymetoo>> Absent but not gone :-) Thank you for being here for all of us, you are a rock....errrr....or was that you rock? LOL. I think you get my meaning.
Hugs, to all
-------------------- "Absence of evidence is not evidence of absence"--Carl Sagan Posts: 317 | From Kansas and New Jersey | Registered: May 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/