MDW005
Frequent Contributor (1K+ posts)
Member # 22706
posted
I was visiting a neighbor friend today. She's a
65 yr. old lady who gets lonely since she lives by herself,
My family goes down and help her out around the yard. Anyway, we were having a chat about Lyme and she informed me that her sister battled lyme for 10 years, on meds. all those years with little success.
It was very discouraging to listen to her tell me this story, and then the outcome was a heart attack that led to her death caused by lyme.
I so wish for a wonder pill. I want this disease to just go away! I thought I was always a good person, I never maliciously hurt anyone, I'm a recovering catholic, I go out of my way to help other people and ask for nothing in return but a smile on there face. I would give my last penny to someone if I knew it would help them.
I keep thinking to myself, WHAT DID I DO WRONG!! I'm not evil, why do I have to go through this???? Thanks for listening to me
Diane
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
I've often wondered the same thing! I don't understand why bad thing happen to good people. Life just isn't fair...
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
Well, some people believe in reincarnation. Some others believe that suffering by good people makes up for some of the bad done by unrepentent sinners who would never be able to see the light unless helped.
-------------------- Dying is easy. Living is harder. Posts: 257 | From owensboro kentucky | Registered: Mar 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
me too. some days i just sit andwonder "why me, how can i do this, how much longer have i got, why can't they find a cure?"
the questions just keep coming.
unfortunately no one answers.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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MDW005
Frequent Contributor (1K+ posts)
Member # 22706
posted
it seems like just when you think you can't take the pain anymore, because the saying goes: God doesn't give more than you can handle, I will get a day or two of less pain and believe me those two days makes me see beyond the disease and want to live again and fight the fight. Then the pain comes back, HO-HUM want to throw in the towel. I don't, I just keep waiting for the next break from the pain.
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
The range of emotions and thoughts that go with this is mind boggling.
Fortunately, I have heard more good stories about people recovering from this and than not.
All said it took a long time but they made it.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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MDW005
Frequent Contributor (1K+ posts)
Member # 22706
posted
I am going to be one of those that recover, but now and then I think a good I feel sorry for me is ok as long as I pull my staps up and move forward again.
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
I think an occasional pity party is good because it lets us see we are not alone. We're right here with you.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
You did nothing wrong... forget about that kind of thinking.
There is a book titled "When Bad Things Happen to Good People"... maybe you'd like it!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I never asked "why me?"
Instead I thought of how I've been blessed by this.
Yes, blessed.
After diagnosis (for which I will always be grateful for)
I helped my neighbor get tested and diagnosed.
Then I recognized the symptoms in my husband and then two young children.
Lyme and company have taught me the value of "good health" and "good" days.
It has brought me closer to God and myself.
It has strengthened my resolve and ability to deal with adversity.
I choose to feel blessed by this disease.
Who knows? It may one day be the culprit that brings me from this world to the next.
However, it has taught me how to truly live and love and share.
The bad days are always really bad.
I still have them every once in a while.
However, I choose to look at the bad days as a measure against the good.
I've met the most incredible people here.
People who have shared their love, laughter and undying support with me.
How many times in life are you offered unconditional love?
Even at my worst, my friends here have been a light in the dark.
I should add that my Lyme came on after I lost my home to Hurricane Katrina.
Not one life changing event, but two.
Yet I choose to believe that all the hardships I have endured,
And yet to endure are trials that each can teach me something new and wonderful.
Trust me when I say that when awful things happen,
I wasn't the first one in the row with my hand up screaming "pick me!".
Yet, I've been chosen to take this as well as other hardships,
And find the blessings or opportunities in each one.
I hope you all find some peace within yourself.
Never give up on Hope.
Never give up.
Things can and do get better.
Prayers of hope and healing to all of you.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
I'm w/ Geneal. How can I complain...my dental hygienist's 12 yr old son has an aggressive bone cancer, they found it when it already metastesised in his lungs.
That and others suffering (yes, here too) keep me from getting caught up with the why me?
If God allowed His Son to suffer why not me?
Posts: 2675 | From ct, usa | Registered: Jan 2004
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I would like to make a "bat signal" out of your last post and read it in the sky every night.
I must concur that there have been some positives coming out of the great suffering and loss from this disease.
Has this good outweighed the bad? From my perspective, no. But I know that there are other perspectives at work here, not just my own.
Others have been diagnosed with LD b/c of my diagnosis -- a few friends and my own children. Many others now know not to accept a couple of weeks of abx after a tick bite.
I guess what I really want to say is that it is so easy for us to fall into victim mode- - "why me". And it's so hard to fight it when all our energy is being used for things like sitting up, or standing.
But there is something beyond our immediate pain and suffering. There is a bigger picture.
-------------------- When we are no longer able to change a situation---we are challenged to change ourselves. (Viktor Frankl- Holocaust survivor) Posts: 460 | From Maine | Registered: Apr 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I don't sit around and say "why me"! But I do get down at times, yet I never give up. There is something in me that just keeps wanting to survive.
This is a very awful, bizarre illness and sometimes I wonder why I don't die, because I feel that bad sometimes.
But anyway, I just keep telling myself that "suffering is not meaningless".
Posts: 4035 | From Mississippi | Registered: Jul 2008
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MDW005
Frequent Contributor (1K+ posts)
Member # 22706
posted
ok, ok, I don't like feeling sorry for myself.
I don't like feeling like Eeyore any more! I want to be Tigger. Do you think there were any ticks in the 100 acre woods?
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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julielynne4
Unregistered
posted
Yes, I bet the 100-acre wood was so full of tick-infested deer, that is why Eeyore was so depressed, he had bartonella.
Yes, Tigger might be a "glass-is-half-full" kind of guy, but his lyme-induced ADHD was enough to make your head spin.
And Rabbit's irritablility and Piglet's anxiety were likely from lyme and bart.
That owl probably had ticks dropping off him as he flew over the woods, spreading the disease throughout, all the way to poor Christopher Robin's house...
MDW005
Frequent Contributor (1K+ posts)
Member # 22706
posted
too funny, LOL
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Gumby and Pokey came to mind during one phase of this condition.
AT one time, I wanted to get some cartoon characters and put out which one I was feeling like that day.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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MDW005
Frequent Contributor (1K+ posts)
Member # 22706
posted
I think Poo had brain fog.
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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TOO funny guys ... I want to type more---maybe later my minds not into it now and son is waiting for computer to do his homework--yeah but I just had to add......
I must be Pooh
Karen
and as far as lyme goes......oh bother
Posts: 423 | From Virginia | Registered: Nov 2009
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
I remember my mom telling me about a nurse friend of hers who had breast cancer, 3 times, that she never asked herself, "why me?"
Instead she asked, "why not me?"
It's not wrong or bad or disgraceful to ask, "why me?" sometimes. But it sure is a lot more hopeful and productive to be thankful for our daily blessings (we can all find at least one!) and look for ways to help the next guy going thru this.
"I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world." John 16:33
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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