posted
The more I read on Chronic Lyme Disease and its controversy, the more unsafe I feel. Each doctor have their own opinion that can contradict each other.
It bothers me to not know which path to take. I understand that LLMD's get death threats and many people do not believe in this disease. I do not know if I can interact in a world that does more than scorn the path a Lymer must take.
I know I can trust an LLMD.
Sorry, I had a boo-boo posting this. To continue... I just don't know if I want to go through the hell just to be treated. I have severe depression and I can't handle all that chaos.
All LLMD's are out of town and there's a fair bit of traveling involved. I don't drive and my hubby would have to take off work to take me. I just don't know if I can cope with all that hassle.
-------------------- 38 year old deaf woman not yet diagnosed - had a mysterious brain lesion 4 years ago and tested negative on the ELISA. Posts: 9 | From Pennsylvania | Registered: Feb 2010
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posted
Hi - that's why it's important to get educated here, about how Lyme is best treated. The Burrascano 2008 guidelines are a good place to start. The more you know, the more you can participate in discussing care and stand up for your right to have the best care.
Posts: 13171 | From San Francisco | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Knowledge is power. A path of learning does not have to be chaotic. Stand up for your right to learn and do the best you can to have the life you deserve. Don't get into all the politics. Just focus on what you need to do each day for your own survival and growth.
You might start with some adrenal and liver support while you figure this out. So often, depression is from adrenal exhaustion.
Treating lyme is vital, course, but tomorrow you can start doing something to support your adrenals while you learn more about your choices for treating lyme.
Cordyceps is one supplement that helps adrenal function. That is suggested by a few good LLMDs as a support supplement.
=========
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
It can very soon turn from 'not wanting to treat' to watching your life turn to complete shambles so give it serious thought. When you can no longer walk to your car, go shopping on your own and wind up in ER rooms out of utter fear, appeasing the naysayers seems less important quickly. I wish you the best.
If three years ago I knew I'd wind up where I'm at now and a doc told me not to take Abx, I'd go tell them to #### (you fill in the blanks).
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Thanks. I just need to not second-guess myself. I do something I think is best and then regret it. I hate that feeling.
-------------------- 38 year old deaf woman not yet diagnosed - had a mysterious brain lesion 4 years ago and tested negative on the ELISA. Posts: 9 | From Pennsylvania | Registered: Feb 2010
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posted
We're all different in how we respond to any remedy. That's why you need to check a small amount of anything you try to make sure you can handle it.
It's all about trial and error and success here!
Posts: 13171 | From San Francisco | Registered: May 2006
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massman
Unregistered
posted
For the depression go to www.mercola.com + search for EFT. EFT is a way to work on yourself for emotional imbalances.
No cost except some of your time. Try it for a week + see if you feel differently.
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posted
Depression can be part of this illness, so getting treatment from an LLMD may help you with it.
-------------------- Don't forget to laugh! And when you're going through hell, keep going!
Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009. Posts: 756 | From Inside the tunnel | Registered: Jan 2010
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I also have to travel and hubby takes a day off work every time to go with me. Yours can do the thing, its just a day off here and there. Don't consider that as a hassle.
If it was your hubby that was ill, wouldn't you take a day off here and there to take him to a doctor? Many times people with cancer go out of state for treatment. Its the same same!
If you have to travel, most docs will let you come every few months. I started out going every 2 months, and now I'm going every 4.
Once you find a good LLMD, you will feel much better after your appointments. You will know you are doing the right thing. Just do it!
You can't worry about who believes in this illness and who doesn't. Educate yourself about it, and go with that. Its YOUR health, and YOUR life. Do whats best for you. Others opinions do not matter!
Its very normal to feel depressed and overwhelmed when you have a chronic illness; and lyme itself can add to these feelings. But I find that taking steps to better my health, also helps with the depression.
Just do what you have to do. Don't put it off until you are a complete invalid!
Good luck! Hope you find your way and find a good LLMD soon!
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
Severe depression? Geez, I was suicidal during early Lyme (the first infection) You need to utilize all the tools available to you in order to fight this disease!
Psychiatrist psychiatric meds/antidepressants etc therapist llmd support group (if there isn't one, create one, I did!) educate yourself about Lyme and its treatment
go to an llmd. Is there a local MD that you are on good terms with? Maybe the llmd could work with the local MD in treating you.
The first step is to go to an LLMD. Your husband, like mine, will devote one day to you. He married you didn't he? He knew then you weren't perfect, didn't he? You deserve to be treated like a queen. Just go to the LLMD. Don't worry about the next step.
When I first had Lyme, my husband couldn't take off work. It was a two hour drive each way to my doctor. I had friends, neighbors drive me. Are you involved in a church? Lean on them because being of service is an essential part of every religion. I'm a member of AA and being of service is required. LET PEOPLE HELP YOU!
-------------------- Lyme is like the flu. You can get it and recover, but you can always get it again. Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Remember, though, that many lyme patients are very sensitive to even low doses of some drugs used for mood. A LLMD is the best to guide you here as most other doctors have no clue and it's really vital to find a doctor that understands how lyme changes everything about how our bodies work. Everything.
Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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