posted
Okay, maybe most people are up by then, but not me. I need 11-12 hours of sleep a night. Something about the thumping of a basketball really gets to me, it seems to aggravate my already overloaded nervous system, hyper-acute hearing,and affect my heart rhythm. And at 8 am, waking me up,that's just mean. It affects how my whole day goes.
What to do? Do I have a right to ask the parents of this cute little 6 year old kid to please wait until 9 to play basketball. He's only playing on their property.
Another concern is if I explain I have health problems it could affect my ability to rent here. My landlord had joked that some applicants with disability incomes had applied and he told us "I'd never be able to get them out of here"
Our landlord also owns the house next door, and they are good friends with the people with the basketball kid. It would be hard to rent another place as I am on disability, had a foreclosure last year, and have 2 dogs, one being a pit-bull mix.
I know there are worse problems to have, but this one is pushing me over the edge. Thanks for listening.
Diana
Posts: 857 | From northern california | Registered: Dec 2009
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massman
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posted
How about encouraging the young one to do warmup exercises first so that he will play better after that ?
Very mild stretching, bouncing in place, running in place, etc. ? If somehow he could be shown college or pro players doing those he might be more interested.
Or meditate + visualize his shots going in for 5 to 10 minutes ?
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map1131
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Well, considering it's March Madness time you might have to buy you some good ear plugs.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Keebler
Honored Contributor (25K+ posts)
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- 8 a.m. ? Sigh.
Even with my sensitivities I do think he's got the right to play ball at that time. However, if after employing every strategy you can, if it still does not work, you might make a some kind of deal with the kid (well, really his parents) but I'd not expect a 6 year old to understand, really. It is better for him than TV.
I like massman's suggestions for diversion tactics that are also helpful.
Many lyme patients are sound sensitive (hyperacusis). That often gets better with treatment but - still - "basketball bounce" can be a powerful force. When it comes to little kids, or really anyone, I pull all the love I can and try to put that into action, being glad they are alive and healthy enough to enjoy that.
And - ten seconds later - I'm still in tears. Love is good but a real plan is needed for anyone with tender ears.
Below are all the things I've put into my plan because, for me, basketball sounds trigger seizures. Even if not taken to that point, the nausea and vertigo from that can be very rough.
Be sure to avoid acetaminophen (as in Tylenol) as that can be very damaging to ears. Vicodin is even more so.
With the right kind of protection, this may work for you. Also be sure your MAGNESIUM levels are at their best.
Can you move your bedroom - or go sleep elsewhere at the time the champ is playing? Or put on gentle music so you have something else for your ears to track?
What kind of ear plugs have you used for sleep?
Some are way better than others. Ear plugs can't keep out all noise or bone vibration but it can help. Then, for short times the basketball is out - you can add on top of ear plugs the ear muffs used for yard work.
However, if you have young children yourself, ears need to be able to hear them so moving your bed would be the most logical choice.
If you have to explain to anyone what it is like go to YouTube a search for the video "The Musician Who Heard Too Much" Link in next post.
Be aware that once you tell people you are sound sensitive many actually get louder - more often - on purpose. I've seen the phenomenon happen over and over no matter how nice I may be when I explain. It becomes MY problem for being bothered, not theirs for living loudly.
It may be best just to do the best you can and hope the kid does not take up drums in a heavy beat band.
You can find good hearing protection at the Hyperacusis Network site. the best ear plugs are the denser ones - not the ones that look like circus peanuts.
You can find ear muffs in the garden equipment center of any store. Top goes under chin for sleeping (though it's takes some work to figure out how to work the pillow).
FWIW, the older Bose noise cancelation headsets did not work at all for basketball bounce. The newer ones, the QC 15 may. I've not had to use them for that but they sure work better against leaf blowers than any of their previous models.
There is no way to block out all noise and vibration as much travels through the nose, to the sinus bones, etc. All the bones of the body actually conduct sound and vibration. Still, with plugs and muffs, you may have enough to get some sleep.
I hope this works it own way out without you having to say anything. But I'd sure be giving the kid a giant NERF ball before sundown tonight. No explanations, just say you saw it and thought of him.
As you say it affects how your whole day goes, be sure your ADRENAL support is solid. More about that in the Tinnitus thread below.
Good luck. -
[ 03-18-2010, 06:34 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
------------------ All about EARS: ------------------
posted
Diana, Good luck with your problem. I definently feel sorry for you but I agree with you...best to NOT say anything to landlord and/or parents about your illness. According to the comments the landlord has already made it is a sure bet he won't understand and you dont want to give him ANY reason to not want you there.
Hopefully, there is some other way around it.
Hang in there, Karen (:
Posts: 423 | From Virginia | Registered: Nov 2009
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posted
Hi and thanks everyone for your replys. I have earplugs but will look into getting the best ones. I also have a pair of sennheiser noise reducing headphones, but they don't really block the noise.
I guess I need to find a way to deal with it better. When I lose sleep, my brain gets agitated and I get angry, not a great way to start the day. I need to be able to remain calm when this happens.
I also will take the magnesium glycinate I recently got more regularly, to see if that helps. It's the one magnesium I found(from suggestions on this site I think) that is easy on my digestive system.
It helps alot just to be able to "talk" with you all about this.
Thanks so much, diana
Posts: 857 | From northern california | Registered: Dec 2009
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Keebler
Honored Contributor (25K+ posts)
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posted
- Diana,
I know the ear plugs can't block all the noise. Snoring from my downstairs neighbor cuts right through mine. The noise reducing headphones also don't block all kinds of noise.
I know this is no small irritation and all the planning in the world often falls short. This basketball thing may just change. But, if it does not, can you move your bedroom to the other end of the house - or even make a closet into a bedroom with just a bed?
Consider all possibilities - however bizarre they may first seem. In addition to magnesium (and glycinate is good), Regular Cat's claw tincture helps my nervous system better handle the stress from noise.
If other sounds bother you in excess beyond what you think is normal for even lyme, you might check out the SCD links in the Tinnitus thread and get a special CT scan of your inner ear bones. A regular CT scan or a MRI will not do. More here:
[ 03-20-2010, 02:18 AM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- The sad ending of Sue's life is why you have to shore yourself up with the best proactive measures possible.
Be sure that lyme is being adequately addressed as hyperacusis often resolves when lyme (and other tick-borne infections) subside. Best of luck for good vibrations.
All she lost: My sister's battle with Lyme disease
By John Baiata - NBC News producer
Excerpts:
Sue took her own life at age 46 on August 21, 2005
Sometime in the mid 1990s, my sister contracted Lyme disease. . . .
The agony of sound
Despite what Lyme disease had already taken, it was not done with her. A crueler, more insidious phase awaited. She began to develop an aversion to noises that had never bothered her before.
Everyday sounds like the closing of a door or the cry of a child would cause her to cringe. A passing lawn mower or motorcycle would send her running for her room. The disease's attack on her central nervous system had brought on hyperacusis, a severe sensitivity to sound. And it became progressively worse.
It was as if a volume dial, set on high, had broken off, and everything in her aural experience was overmodulated. Softer sounds were tolerable. Sharper sounds were not, and painfully so for her.
Hyperacusis, which can be brought on by trauma to the inner ear, is also thought to be a processing problem with the way the brain perceives sound, which seems much more likely in my sister's case.
. . .
'It's like they're screaming'
. . . She took to wearing ear-plugs, then sound-proof headphones. But it was akin to spitting in the ocean. It made no discernible difference.
``Sometimes,'' she told me, ``when people are talking to me, even if they're whispering ... it's like they're screaming.'' . . .
. . . They moved, and then moved again, finally settling in a 55 and older community that they thought offered the quiet my sister so desperately sought. The first day the landscapers came by with their torturous weed-wackers, it became clear there would be no silent refuge. . . .
Asking to be made deaf
No doctor would.
. . . My sister fought valiantly against a disease that had diminished the quality of that life to a level that was no longer acceptable to her. It never once diminished her spirit. Through it all, all she really wanted was relief to her pain, and for someone to believe her story. -----------
John Baiata is a senior editor with NBC News.
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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- Porphyria can also make hyperacusis worse. Some specific drugs make that even worse. Liver support helps. Attention to heavy metals (if elevated) can also help.
More here: -------------
KPU (Kryptopyrroluria) is just ONE type of porphryia that seems to have importance regarding patients with lyme, autism and those who have issues with heavy metals:
posted
Hi keebler, thanks for all the helpful links. I really haven't started a lyme protocol yet because my chemical sensitivities are about as bad as my hearing sensitivities.
I tried zithromax for babesia but that started the tinnitus(I already had the hyperacusis)
I think maybe my liver is key here, I had a test done several years ago, before the ms, or lyme diagnosis, and the results were very poor detoxification pathway.
Too much partying in my younger years I guess. Not anymore, I can't even tolerate the alcohol in tintures now. But despite clean living, I think i'm still full of toxins.
My llmd had me try the methlyation protocol supplements(almost $200 worth) but i couldn't tolerate those, made me feel like I was on speed. Next he wants me to do a led detox program, which I will try. But am nervous because if my liver isn't detoxifying well then how will dumping more toxins from the cells help?
I'd like to try a liver supplement, but have reacted to other herbals, so am reluctant with that too. Any specific liver support you recommend that wouldn't make my ears worse?
Sorry to ramble, the good news is no basketball this morning, yeah!!I'll take what I can get.
Thanks again, diana
Posts: 857 | From northern california | Registered: Dec 2009
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Keebler
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posted
- Have you used Milk Thistle?
[ 03-20-2010, 02:19 AM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I haven't tried milk thistle yet, any brand that is particularly gentle? Would a tea be more gentle??
Thanks again for all the info. I went a little off topic yesterday. Forgot to mention that there is another room I can go to that has less basketball noise. It's my boyfriend's room, yes we have separate rooms so I can get the sleep I desperately need.
I don't use that room as my room because it's closer to the street and has frequent car engine noise. But can be a refuge when the thumping starts. Especially when there are 2 kids each with their own ball, yikes!
Your kindness and the valuable information you provide is very much appreciated, thank you...
Diana
Posts: 857 | From northern california | Registered: Dec 2009
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posted
In my pre-Lyme days, I used to work nights and try to get eight hours of sleep from Noon - 8pm.
Living in an apartment complex did not help but found a simple solution to drown the outside noise. Running a fan in the bedroom provided a "white noise" that would keeps sounds like kids playing outside from waking me up.
Posts: 16 | From PA | Registered: Jan 2010
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Keebler
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- For some people, a good fan on low speed can nicely mask some sounds (but not all). For other people, the motor sound/vibration can be absolutely devastating, even if it's the "quietest" fan ever made.
Hyperacusis and SCD - if both are together on top of lyme - the combination can make motor vibration nearly impossible to endure. Ear plugs do not block out most motor vibrations, either. Still, each motor is a bit different and, sometimes, placing a fan on top of a solid box where the box would be insulated from the floor - well, that can help a little.
I have tried the fan idea - and many of the most solid models. I've tried all sorts of configurations and it just is not viable for my ears. The funny thing that even the sound machines have motors that are just torture, too. Even if some are manageable to the ears, they can still trigger nausea from the vibrations.
So, if you try these things, just be prepared to make adjustments and if they work, great. But keep the receipts just in case. I can't tell you how many fans I've given to friends over the years just because I can't keep track of receipts.
I have tired five different models of sound machines (was more careful with those receipts which is good. None made it longer than an hour - again, those motors.
When any of the four apts that join mine leave the exhaust fans on in their bathrooms for too long, even that vibration can create nausea and vertigo, and if left on overnight - even with earplugs - their fan will destroy all chances for sleep from the way they are vented out between the walls and shake the floor.
So, moving away from fans and separate sound units . . . "Nature sounds" CDs can be nice but often are just too busy for the brain or try to get too close to nature by adding thunder and irritating water sounds for ambience.
Not trying to be a downer here, but for anyone trying techniques, it can be absolutely disheartening to think this or that machine will be a miracle cure when it may be more complex than that. Often, something can be found to help. It just can take a lot of trial to figure out just what. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Yeah I do have a white noise machine. It used to be very helpful. Since I tried the rife machine(once) I can hear frequencies I didn't used to hear, so the motor noise does bother me now. I still use it sometimes though, it can be the lesser of 2 evils sometimes.
diana
Posts: 857 | From northern california | Registered: Dec 2009
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Keebler
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- dogmom,
When you did rife did you first do the heavy metal treatment - and along with of rife? When lyme dies, heavy metals are released. That can make hyperacusis worse.
Have you been able to read Bryan Rosner's RIFE book? It explains some about that.
posted
Hi, I did not have any heavy metal treatment before the rife treatment. I used a computer based rife at my llmd's office. It gave me a new noise in my ears, kind of like an electric current on a wire sound.
This started months ago, and hasn't let up. I have read Rosner's book, sounded like the perfect solution for someone who can't tolerate meds/supplements. But the ear thing scared me so I didn't continue. I was going to buy a used GB 4000.
I did ask my llmd about amalgam removal but he said he didn't think my body could handle that yet.
trying to stay positive....thanks diana
Posts: 857 | From northern california | Registered: Dec 2009
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Keebler
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- Diana,
I think it was the computer connection. Even my computer, itself, raises the barre with my ears. Most rifes don't make ears worse (other than for a day or two afterward).
LIVER SUPPORT sounds like your best approach now but I also would not be scared of regular rife machines - just start slowly. Glad you have Rosner's book. It's a place to start.
I would go more to a GB 4000 (as it does not have a fan - I think - but do check on that). My EMEM5a has a fan and it's just too loud for me to use. But, I'm the only client of the maker who ever said that. Others have never commented on that. But, my guess is that you might.
As for that GB 4000 - you say it is used. Can you borrow (or rent) it for a few days or a month, first? You can't do lyme frequencies more often than every 12 days (in the beginning) but you can do the rife frequency and then also test a few others over a few days to see how you do, in general.
Forgot if I mentioned this but also be sure your home is as mold free as possible and also as scent and chemical free as possible.
Milk Oat Seed glycerine tincture can help.
Good luck. -
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