posted
Taping is next week and they're asking for questions, stories, and requests for a full show dedicated to Lyme.
" On The Marc Media Update:
Documentary: UNDER OUR SKIN will investigates the untold truth of Lyme disease and will be featured on The Doctors, a nationally syndicated show, taped in LA.
"They are asking for people to submit questions about Lyme disease for their panel of doctors to talk about on the show. They also want to hear your stories. Please ask them to do an entire show, not just a segment on UNDER OUR SKIN and the seriousness of Lyme disease. If you have not seen the show - check your local listings. It's syndicated so it is on different times and different channels depending on where you live. Please spread the word and ask people to write in."
The taping is next week so there is not much time. Thanks again for your support.
Here is the link: http://tinyurl.com/arhjpg Contact: Sandi Lanford, Founder/President for any & all questions The Lanford Foundation - Lifelyme, Inc. Tallahassee, FL web-site: www.lifelyme.org
Disclaimer: The mission of "THE LANFORD FOUNDATION - LIFELYME, INC., is to provide educational information for anyone interested in tick-borne diseases, chronic infectious, systemic diseases and related disorders. Information presented is intended only for educational exchange. This information is not offered by LIFELYME as medical advice for anyone.
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I just emailed my story to them and a request for a whole show on lyme.
Thanks for posting this!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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posted
Do we trust that group on making logical and informative statements or are they going to muck it all up with the normal medical consensus about chronic lyme?
It's great they are taping a show about it but I don't see this going in the direction we would like it to.
Do they invite guest doctors? Someone like Dr. B on the show would help tremendously. Otherwise, I see them following a script based on CDC guidelines.
Posts: 194 | From Colorado | Registered: Nov 2008
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posted
I agree with ott...especially considering the way they spoke about lyme disease the last time they segmented it on their show. These docs are all surface. (imo)
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I agree that they simplify everything and follow the CDC, but it couldn't hurt to send them our stories.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
If we do nothing but question them, they won't stand a chance at telling the truth because they will not have heard it.
They need to hear the truth (from us) and then whether or not they do the right thing with it is out of our hands.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
...that's what I thought too.
You should have seen the way they pushed the H1N1 vaccine.
They are trendy not intelligent. On very basic things they state the obvious or some non-traditional safe treatment. In either case they offer FYI which makes them appear helpful.
But, for the most part, they are very limited and misleading...not a good mix with lyme. Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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posted
Please, if nothing else, email them with the facts about coinfections!!!!
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
IF this thread grows and the opinions are all the same about the doctors not being able to fully understand and report accurate info as we know it..
THen I suggest one of us Cut and Past the Thread and send it to them to read through...!! Maybe they will get the message there is a whole REAL world outside the CDC!!!!!!!
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Spring, I included some of that info in my story. How the test are inaccurate and how doctors and the CDC say we don't have LD in our state, yet I know so many ppl just in my county with LD; and so on.
I still have a strong feeling they will go along with the IDSA views and it will be very misleading to the general public.
But we still have to keep fighting to get the true message out there. Hopefully more lymies will come along and post their stories.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Sent story...again
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
I contacted my wonderful llmd, then contacted the leader of the Mi. chapter who put out an alert to get the message out far and wide. Keep your fingers crossed, now I will write and send my story. Good Luck to us.
Posts: 161 | From midwest | Registered: Jul 2007
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
done.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
PS Do they ever have guests on their show? I've only watched a couple of episodes. Wouldn't it be awesome if one of our LLMDs would be/could be a guest?
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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posted
Does anyone know when this is going to be on? I sent my story.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Dawn,
Good idea to suggest LLMD's while writing in.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
My story has been sent,....and surprise, my non supporting husband is getting tested. I almost choked. So right their is something positive.
Posts: 161 | From midwest | Registered: Jul 2007
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
I wrote them a little of my story.
MADDOG
Posts: 3996 | From Ohio | Registered: Oct 2000
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