posted
My husband has ALS lyme and is a patient of Dr. C in MO. He has ordered a pic line for my husband, but we are having trouble finding someone in this area to order the pic line and monitor him. He has Cox insurance and it would really be helpful if we could find a Cox doctor to help him, because the insurance has already told him they will cooperate with an in-network doc. I know there has to be some people with lyme that have had pic lines inserted in the SW Missouri area. Please respond so that we will know where to go next. Was wondering also if the Mayo clinic would help him. Thanks for any and all info
posted
Do NOT go to the Mayo clinic. They don't believe there is Lyme disease in Missouri and won't help. You can waste a lot of money going there. Contact a local hospital or infusion company to find out what doctors might be willing to cooperate with IV treatment. You may get some suggestions by contacting the support group contact person mentioned for the Springfield, MO support group in the support group listings on this website.
Posts: 18 | From Kansas | Registered: Jun 2005
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posted
Thanks Ruthanne for the info. We will focus away from the Mayo clinic.
Posts: 10 | From southwest missouri | Registered: Sep 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Ditto to Ruthanne: Do NOT go to Mayo. They don't believe in lyme and are totally ignorant about it's complexity.
I do hope you both find what you need. Have you contacted all the area support groups, working outward in radius from your home? ------
posted
Do NOT go to Mayo... and please edit out the dr's name... Dr C.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
Sorry to hear about your situation. I live in NW Arkansas. 9 years ago my Dr also ordered me to get a picline. I gave up trying to find a Dr to do it. The most used reason was. Lyme is not in this area. Which I try and trump them saying, I was bitten here therefor it is in the area. For the 30 Dr. I have gone to for other ailments such as I lost my hearing in my L ear. The Dr actually wrote this in my chart..."Pt. claims she has Lyme Disease" So IF I go back to him, I going to say he left out the fact that I claim to have seen 3 UFO's in the parking lot when I got there. Now this is not going to happen. I mean I'm not going to tell him that. It will just **** him off. Cuz for him to say I claim to have Lyme. Means that he is not treating me for anything that has to do with Lyme. Ok thats enuf from me.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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posted
My kids are patients of Dr. C and they were prescribed IV antibiotics (not recently). I went through the yellow pages and called everyone in the "infusion" section. After several calls, I did find one that worked for us. You could also do a search on Google.
Good luck!
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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posted
I am still here - just incredibly busy trying to work, take care of my husband and my elderly mother. :-) Keeps me hopping. We are still trying to get the picc line. I contacted the lyme person in our area that is listed under the support groups and she gave us alot of names to try and we have an appointment with one doctor, but not until July. My sister-in law is with home health and she is helping us to find a doctor who will help us also. She told us that there is a doctor in our area that has helped someone else with a picc line and als/lyme. So wish I knew who it was so we could visit with them and learn from them. We are hanging in there and putting our lives in the Lord's hands. Thanks to all of you all on here that give us information and support that we need. There is just not much other support in our area. What is it going to take to get doctors to realize that we have a lyme problem all over the country !?!?!?
Posts: 10 | From southwest missouri | Registered: Sep 2009
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
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