posted
I just took my very first ketek. I have taken so many drug that you would think I would get less scared. Each time I worry about the herx (I always herx), the side effects, how long it will last, if it will be a good or bad drug for me. I have been able to tolerate everything so far except for the levaquin.
I know all the problems that can come from Ketek. I just needed to share that I am scared AGAIN. I am very tired of my life being a revolving door of ups and downs from new drugs, side effects, etc. I never know how these things are going to effect me and I herx severely.
Thanks for listening.
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Sending you big hugs , Venus. Hope it all goes well.
I always feel like this when we have to change our daughters meds.
Best of luck, Jane
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Good luck, maybe this one will help much.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
If it's not off the market wherever you're living it sould do some good for the heart fluttering you've experienced....
If you can put up with the tightness around your heart while taking it....
don't get to whacked out by it...it can be somewhat dibilitating in itself....
especially if it's killing the cysts causesing your mitral valve regurge(or whatever your doctor is calling it).
After my fourth month or so(interrupted)and after abut two weeks from stopping Ketek
I began to notice the flutters were less and less and almost non-existant at the present time.
However, I cannot get any more Ketek....
It's supposed to be tough on the liver so make sure you detox well and drink plenty of water to flush....
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
Thanks for the kind words. Herxed (no surprise), but I dealt (am dealing) with it. I am upping it today to twice!
Will stay on top of getting my liver checked. Kathy
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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