Topic: new york says we'll take your organs anyway!!
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
new york city alone has hundreds on transplant lists.
so they have a bill up for approval which says they can take your organs if you do not specifically say so.
so let's see, i die, and i don't have a statement saying i have lyme and don't want to be a donor. they can take all my organs anyway.
since they don't believe in lyme, they will be passing along lyme to others, right?
i think they better reconsider.
and ya'll know that not everybody is going to specifically have paperwork saying they don't want to be a donor.
yes, yes, i know all about foreign countries who have this and it saves lives, yep, get that.
but how in the world do you handle diseases such as lyme when the medical community says it doesn't exist and they want your organs? they're not going to say "oops, she has lyme, can't do this". hell no, they going to say "lyme doesn't exist, take them all out".
interesting debate huh?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- We have to specifically state for the record "no donor" or "not a donor" and we don't have to say why.
While spreading lyme would be bad, indeed, that should be but is not specifically why most lyme patients are prevented from giving blood or donating organs. It's the babesia that officially disqualifies. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
thanks, but i thought it was all lyme? am i wrong?
and who's going to carry around paperwork like that? unless everyone goes and gets a new driver's license or something.
i know here carter blood bank will not let lyme patients donate blood. so i would think, maybe incorrectly, that organs contain lyme, whether it's babs or bart.
umm, huh?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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massman
Unregistered
posted
How about "Donor to politicians and non LL duckied + their families only ?
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Q: "who's going to carry around paperwork like that?"
You would state "NO" on your driver's license the next time it is renewed. Your family would also need to know not to donate other than for research and all that should be spelled out with your will and file for final arrangements.
The last time I had mine renewed, I had the choice and said "NO" - I started to say why as I would normally be a donor -- and the clerk cut me off, saying nicely "we don't need to know why, that's your business. We just need to know what to put here."
The clerk bent over backwards, not pushing or even letting me say. I think they are trained to not invade a person's privacy that way. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Is this true? They can just take your organs? What if your family doesn't agree to it? I live in New York State and up to now you had to check a box on your drivers license to donate. It's contrary to many people's religious practices to take organs so it would surprise me if they could do this, especially if the next of kin objected. Can anyone say more about this?
Posts: 34 | From Saratoga Springs, NY | Registered: Jun 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
well, i got it from the tv. i bet if you goggled this, you'd find out about it.
and another thing about wills -- if you're recently deceased, i mean, this minute, they have to "harvest" the organs immediately.
who's going to say "put them on ice until we get the will"? it could take a ton of time to get out the will and read it.
and here's another point -- they're considering this bill right now. what if you're driver's license like mine, does not expire until 2016? and i don't have a will that says this.
should i have to redo my will just for this?
i mean the average person does not have the money to do this. oh sure getting a new driver's license is going to generate alot of money, but in my opinion, unnecessarily.
and yep, religious beliefs.
somebody told me on another site that in some countries overseas, you ain't got no choice -- they're taking them.
more invasion of our rights..
i want to be cremated so does that mean, they can take them before i'm cremated?
i mean there's tons of legal questions.
plus the emotional stress on families.
i just can't believe they'd come up with something like this.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- No one is going to have organs donated without specific prior permission from the deceased AND from the next of kin. The next of kin is actually given more weight if they object to donation but they cannot reverse one's wish to NOT donate.
If you have seen otherwise, it'd be helpful to see the link to the original source. Something seems to have been lost in translation. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
sorry to disagree. it wasn't lost in translation.
i saw it on tv.
and i don't know how to link.
i just goggled and the subject came up.
apparently some political figure has a daughter needing a transplant. she's on a waiting list. he came up with this idea to get his daughter an organ faster.
it states that if you do not mark your driver's license, they can do it. it's called "assuming".
and the article also implied that they can, yes they can, override the wishes of the family.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Randi.. just tell Mike not to let them take your organs.
If NY does this... they're nuts...
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- " if you do not mark your driver's license"
But who's not going to mark their license (or ID card) one way or the other? Everyone is asked the question at the time of renewal. "Yes" or "No" is pretty simple. We have a choice.
(Maybe this varies by state, but here at each renewal that question is asked and the license is marked accordingly.)
An updated diver's license can also be changed anytime (for a fee) for those who find out they should not be donors. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
My former LLMD, now retired, told me not to give blood or donate organs.
I disagree but I'll abide by his wishes.
My reason for disagreeing is that, without my organs, some will die. Is death better than having Lyme etc? All that would be needed is informed consent. Tell the patient about potential organ problems and infection. That's all.
Posts: 924 | From CT | Registered: Apr 2009
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
yeah, ya'll but here's the point.
i had to pay 25 bucks to get my license renewed. it's good until 2016.
they want to pass a law now. so what if you're license doesn't renew until say a couple of years from now?
does their law overload your license?
or are they saying everyone must go get a new license? oh yeah, tons of bucks for new york there.
anyway just a host of associated problems.
and no, i'm not donating. i don't want to put another person through what i have been through. i think that's cruel.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Question from a post above: Is death better than having Lyme etc?
My answer: Yes, indeed, I think so. And death would likely come soon afterward, anyway, along with much pain.
I would be livid were I to receive an infected organ. I understand intentions are good but a diseased organ or blood is not a gift at all when there is no cure for that disease, treatment is very hard and expensive and rarely available.
Lyme - or other tick-borne infections - can be a miserable complication for someone with a newly transplanted organ, who has to be on anti-rejection drugs for life. Those drugs literally shut down the immune system.
First rule of lyme: no steroids. First rule to prevent organ rejection: steroids.
There have been deaths from babesia contracted from transfusions and transplants. Ehrlichia, too and likely Lyme - but most doctors don't think lyme is such a big deal so it slips by as "unknown" complications.
Tick-borne infections are so very hard to diagnose. If WE have such trouble finding knowledgeable doctors, think it will be easier for a transplant patient?
Years before I knew I had lyme + coinfections, I tried to donate blood and did once, but my veins were so difficult (and low blood volume caused me to pass out). Instead, I trained to teach CPR and First Aid for the Red Cross.
There are many other ways to help save lives.
I may be more passionate in my fight to keep our blood and organ donor supply as free from disease as possible because my mother received HIV-infected blood in the early '80s. It was a death beyond belief regarding the horrific spasms she went though.
Six months before slipping into a coma, she lost the ability to eat, walk, talk, sit still at all (as her body would wildly contort constantly with a chorea). No drugs helped. The only pain meds they gave her were Tylenol #3 (which I now know is very hard on the liver and it never helped her with the pain).
Just one week before her death, they diagnosed AIDS, linking it to a series of blood transfusions 2 years prior.
So, is an infected organ (or infected blood) better than none at all? Absolutely not. It's much, much worse.
We have a responsibility to not do that to another human being. -
[ 05-01-2010, 02:41 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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