posted
So my family doctor mailed me my lyme results that read positive and enclosed was a script for doxy 3week course. THATS IT no info no follow up no care no NOTHING! I called my neurologist because he ordered the test he called me back today and says because the titer is positive doesn't mean it's postive you need a western blot (ummm excuse me why didn't you order that along with the titer in the first place)
Then I told him she gave me a script for doxy and he say "well thats the treatment, if you have more test just have them faxed to me"....HELLO FOR WHAT! so you can say o you should have had blah blah blah done.
And will either of these over paid a**h***s address the reason they ordered lyme on me??? its because I'm in pain, disoriented, confused, my back feels like someone is kicking me in it,my neck feels like someone is sitting on it and kicking me in the face and I feel like I'm going to faint. would they care to address that?
Let me tell you guys something you all should have medical degrees because I have gotten more info from you kind folks in the past 2days, than I have from the 2 PH.D's fumbling around with my care. Neither one of them said hey here's some advice stay away from food with yeast or the potential to retain mold. Or hey here's a script for diflucan since you may get yeast infections out the wazoo bc of the doxy...REALLLL NICE DOC IM ****ED
-------------------- qq Posts: 6 | From philadelphia | Registered: Jun 2010
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posted
so sorry I think most of us have been there...and have seen lots of doctors who thought we were crazy, didn't believe we were sick or refused to believe that lyme could be chronic. Hang in there!
Can you use this board to find a GOOD llmd near you?
dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
and that's why we tell ya to get to a llmd.
it is horrid that docs are clueless at times.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<<<<<<< lymeconfusion >>>>>>>>>.
That's a cyber-hug for you !!!!!It wont change the lack of education and possible intention to learn/or not, about Lyme and co-infections from so many in the medical field.
But I hope it will make you feel a bit better!!!Yes there are many knowledgeable folk here. They've had to educate themselves for the most part and they are a huge huge help!!!
I hope you can find an LL medical advisor of some sort fairly soon!!!
Jus' Silverwolfi wishing you the best and w/ hopes for good progress to getting well!!!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
i'm sorry... i think most of us have had similar experiencing with doctors! you should definitely find an llmd!
Posts: 220 | From Kansas | Registered: Mar 2010
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
believe me, this is typical. i've gone to tons of doctors and most are totally clueless, could care less and don't want to learn.
we're better off getting our information here.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
It's worse then clueless- I told my naturopath maybe I have a lyme or co infections, parasites why don't we do blood tests and what I got was a wishy washy "well ...uh....maybe" I sent her all the white papers from online by the Pro Lyme docs with protocol and all and the lab to use I...... and still she was wishy about it and wasted another 3 weeks of my time- I've been doing this since 2007.
So I searched for lyme doc made an appointment and emailed my naturopath and told her I'm switching docs. I have seen 7 docs not counting the new lyme doc.
Even the natural docs and I have seen them all are ill educated, non thinking and I wonder how they became docs.....I have always had to tell them what to do...Learn Learn Learn that's what we can do. Docs are a dime a dozen so it's NEXT!
Posts: 29 | From arizona | Registered: May 2010
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posted
This points up a really good reason for us to study Lyme and co's - it can help us educate the medical folks. Most receive very little education. Once you understand what's going on, you can explain it to them. My advice - start learning the facts about these infections!
But for your own health needs, you need to see an LLMD.
Posts: 13171 | From San Francisco | Registered: May 2006
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I think most of us have been there...and have seen lots of doctors who thought we were crazy, didn't believe we were sick or refused to believe that lyme could be chronic. Hang in there!![[Big Grin]](biggrin.gif)
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