posted
Not sure whether to post this here, but it is a medical subject. Guess it can be moved if this isn't the right place for it.
Just thought I would let those of you that care, BettyG's husband is in the hospital in pretty bad shape. He also had a heart attack along with some other complications. I think she has the same email that she always had in case any of you wanted to send some positive thoughts their way.
Hugs,
-------------------- ICEY Posts: 468 | From Las Vegas NV | Registered: Jun 2005
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Keebler
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posted
- Icey,
Thanks for letting us know. I'm sure that even if there is any good news regarding prognosis, this is still very challenging. Please keep us posted. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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joalo
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posted
I don't have her email address. Could someone please PM it to me?
Thanks!!
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
I'm so sorry to hear that!! That's a really tough thing for both.
Hope to hear he is improving very soon!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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daisyrlb
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posted
ICEY, thanks for sharing. So sorry to hear about BettyG's husband. They are in my prayers.
Posts: 2188 | From Oklahoma | Registered: May 2008
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seekhelp
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Sorry to hear the bad news.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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aklnwlf
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Oh no! I hope he's going to be alright.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6138 | From Columbus, GA | Registered: Jul 2004
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sammy
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posted
I'll be praying for them too.
BettyG was a kind and generous person. I do miss her.
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METALLlC BLUE
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I really hope everything turns out well for both of them. They've both been thru enough pain, it's not fair.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Dekrator48
Frequent Contributor (5K+ posts)
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posted
Thanks for telling us about this.
I will pray for them.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Keebler
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posted
- A "thinking of you" email has been sent to Betty to see this thread. She replied, thanking everyone. note below. -
[ 06-08-2010, 12:14 PM: Message edited by: Keebler ]
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treepatrol
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posted
Oh Betty praying for your husband.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
2roads
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posted
Sending love and support to you Betty..............
One day at a time.
You and your husband are in our thoughts and prayers for a better tomorrow.
Greta
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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Silverwolf
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<<<<< Betty's Husband and Betty >>>>>,
Prayers going up for smooth quick recovery and freedom from pain as quickly as possible.
May peace and freedom from pain and worries descend on both and stay !!!
May His Angels minister healing with Love and Light!!!
Jus' Silverwolfi...thinking and praying
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Keebler
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posted
- BettyG thanks everyone for their kind thoughts. Her husband is stable and they are figuring it all out from here.
Here are some of the details:
- "Mild Heart Attack" was an early diagnosis. "Possible heart muscle damage" (apparently, he'd been lying on the floor for hours though the wee hours of the morning until daylight).
- EMTs had a difficult time and Betty had a harder time talking him into going to the hospitial.
- Later, Echo cardiac test showed "normal"
- "so to have the chemical IV STRESS TEST in future when he's up to it within the next 30 days."
- "we'll get home health care coming in and physical, occupational therapy as needed; i'll now how a whole new life with him! he was SELF SUFFICIENT prior to june 2nd; no more!"
- he's unable to walk and (usual) tremors are worse.
- UTI dx - one month levaquin Rx
- hospital stay has had difficulties, to say the least
- many unanswered questions and more diagnostics to consider
- Betty says: "thank you dear lyme friends for all your good wishes" -
[ 06-08-2010, 03:56 PM: Message edited by: Keebler ]
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2roads
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Well, at least they caught it early despite the crappy testing and hours on the floor.
The Urinary track infection was diagnosed as well but unrelated, right....that's what UTI stands for? If so, I'm sure that was painful and a relief to get care for that.
If I remember right, Betty's hubby was like my Dad as a patient. Only saying so cause' that means she needs even more of our support.
Big hugs BettyG. Knowledge is power and in this case, longevity.
Tell your hubby your the boss and do as the doc says (if you agree with it). Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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kam
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Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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-------------------- pingpong Posts: 361 | From At the Pingpong Tournament | Registered: Oct 2007
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Keebler
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posted
- update/synopsis/excerpts
Quotes are from Betty. The rest is my interpretation of events from a compilation of emails.
06/10/2010
"dear friends, family, and online buddies "
"HE'S HOME!! TOTALLY SHOCKED BOTH OF US!"
"WITHOUT WALKER walking carefully to bathroom 10-12' away next room. he made it back fine."
A friend brought by some food and ``hubby ate more than all week in hospital''
While Betty was out mowing lawn, ``HE'D FALLEN AGAIN!''
EMTs called. They asked: ``how did i feel about him being home and obviously so weak. i told them i was upset them dismissing him so early when they tlaked about friday being dismissed unless he went to rehab. if we needed them again, to call.''
``he used the walker willingly after the 1st emts stressed to use that.''
Seems like the EMTs had to come back again, too. (my eyes jump around and I missed some stuff but that is what I gathered).
Things not going well, though. EMTs said if they had to come again, they'd have to take him to the ER and that they really should consider the rehab facility. But - there's been a LOT of red tape around that.
Betty closes with: "so tonight we're home; tomorrow/night .. i expect him somewhere in hospital whether rehab or just back in a room, who knows!!"
Again, Betty thanks everyone for their very kind thoughts and wishes. -
[ 06-10-2010, 01:02 PM: Message edited by: Keebler ]
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TF
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Thanks, Keebler, for this info. Will keep them both in prayer.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
That's so difficult!! My mother went thru the same thing with my dad. He had Parkinson's too. Either my brother would have to go over and help him up or Mom would have to call the EMT's if my brother was out of town or at work.
Heartbreaking when it keeps happening.
Prayers for betty and hubby!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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glm1111
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posted
Sent Betty an e-mail in response to all of this, but here's an extra
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Keebler
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HUBBY BROKE HIS ANKLE!! . . . ANKLE FRACTURE AT TIPIA - orthopedic surgeon will see him today. he'll decide if surgery is needed or just put a cast on him in next wk. or so!
[Parkinson's tremor, sweating getting worse.]
paraphrased: [Wants to have him tested for lyme but roadblocks to that. Lots of unnecessary roadblocks to just about every request or decision. Even the ankle fracture dx was different from different doctors ]
[after settled back into hospital] we both napped off/on; his ankle hurt him so bad; he got tylenol & pain med. couldn't get his neck/head comfy.
LOTS OF REHAB NEEDED NOW FROM NURSING HOME! and he may end up THERE for good now!
at this time they are thinking MON. OR TUES. GOING TO NURSING HOME FOR REHAB! now, perhaps the rest of his life, which won't be long IF he has to stay; it will hasten his end of life with QUALITY OF LIFE as he knows it.
he asked me NOT to pursue the addition to our home of extra bathroom/walk in shower, 3rd bedroom, office/pc/stereo music, vinyl records, & upstairs laundry room.
he said to wait ONE year; see what's going on with me if i can still live here or a nursing home. so i agreed i'd not pursue.
gotta go; really say the prayers for hubby/me NOW; this is a huge blow to us both.
thank you dear friends for everything; all the moral support online! hugs/kisses . . . Betty
================
email from Betty late Saturday night:
[all as expected, considering the situation: challenging, scary, searching for solutions]
"THEY'LL NOT DO SURGERY; WILL PUT A CAST ON IN 2 WEEKS after all the huge swelling is down."
===================
This is the thread of Betty's over at MDJunction where she updates - sometimes - just look for the latest entry:
[ 06-13-2010, 01:40 AM: Message edited by: Keebler ]
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Keebler
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posted
- Update from Betty regarding her husband.
He settled into a room in a nursing home yesterday - estimated to be about a year before he could come home.
I find is shocking that each patient has to pay for their separate cable TV hookup and that their is no discount rate.
More below, in Betty's own words - yet excerpts: ---------
the good news: . . . drs. told him after going thru his iv chemical stress test .. NO HEART ATTACK as was 1st mentioned to us 2 wks. ago when he 1st went to the hospital
so it's now to deal with his BROKEN ANKLE
he said also the ortho surgeon will put a CAST on his broken ankle next week; to be on 6-8 wks., then a boot after that
he won't have a phone or cable tv in his room.
i thought the nursing home would be hooked up to cable tv, but no, EACH ROOM has to buy their own service so he can't even get our local 6-7 tv stations for the news, etc.
it was hubby's decision to stay in our city; so that left 2 choices; both are NOT the greatest nursing homes! this one is better than the other. [and just a five minute drive from home]
[She thanks all, again, for their kind wishes. Has dozens of emails to sort through so, for those who sent an email, it may take a while to reply.] -
[ 06-19-2010, 02:51 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thanks Icey and Keebler for the updates......Poor Betty!!! Will send her an email.....
Gail
-------------------- Strength does not come from physical capacity. It comes from an indomitable will ~ Gandhi Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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Dekrator48
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posted
Thanks so much for the updates!!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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littlebit27
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posted
Geez-I really hope and pray things start to look up for them. Makes my problems seem small!
Tracy9
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posted
Does he at least have a TV and DVD player in the room? I wonder if we could collect DVDs and mail them to BettyG? You can also rent them at the local library.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Keebler
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posted
- Betty hauled the TV back home (sounded like an heavy TV) but will suggest this. Good idea. While portable DVD players are not cheap, maybe they know someone who can loan them one.
She said she had a mountain of emails to go through so I hope she checks back here to see that good suggestion. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
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posted
And free shipping too. It could be shipped right to the nursing home; no lugging necessary.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Hi Betty and hubby - would be nice if he can see responses here too -
Posts: 13116 | From San Francisco | Registered: May 2006
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daisyrlb
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posted
Keebler, thanks for keeping us up to date. Prayers going up tonight for Betty and her husband.
Posts: 2188 | From Oklahoma | Registered: May 2008
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Her husband will be in the nursing home for 2-4 weeks max, if all things go well - NOT for a year...
Tracy - thx for the DVD suggestions - will take some over tomorrow.
Tracy - could you use a tinyurl on that long link? The link went superwide, too hard to read. Thx -
Thanks all for your hugs, prayers, thoughts and blessings for my hubby/me!
BettyG, Lyme activist extraordinaire (ok, that's my term for her - Robin)
Posts: 13116 | From San Francisco | Registered: May 2006
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Keebler
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posted
- Robin,
Thanks. It so good to hear of the new - and much shorter - time estimate. When they were first told a year, it seemed like forever. -
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kam
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posted
thanks for the update
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Tracy9
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posted
Robin, I hate to admit I don't know how to do a tiny url.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Keebler
Honored Contributor (25K+ posts)
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posted
- Tracy,
Here you go. A long URL can be copied and pasted here: ---------------
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
Sorry to hear the bad news.
![[group hug]](graemlins/grouphug.gif)
![[shake]](graemlins/shake.gif)
![[spinning smile]](graemlins/spinsmile.gif)
Only saying so cause' that means she needs even more of our support.![[kiss]](graemlins/kissing.gif)
![[Smile]](smile.gif)
"![[cussing]](graemlins/cussing.gif)
...those bone heads.
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