posted
I was just wondering if anyone else here is surrounded by people who dont really take their health or yours serious...
I had to move back home cause of the way I feel and no one really understands or is even really willing to care.
My dad has what they call recurrent inner ear infections because he is dizzy all the time and they cant find/look for anything else and I feel he could really care less.
My mom has been sick for as long as I can remember with a multitude of symptoms and extremly high blood pressure and hasnt been to the doctor in probably over three years.
I tried to explain about lyme and the test to my dad and he basically said it was just like the flu and would go away... It pretty much infuriated me but what am I going to do when I have had 4 non reactive test and no one knows whats going on.
Trying to explain why youre on an anti-candida/yeast diet to my girl friend is like talking to a wall and you just get told you dont have yeast problems everyone has that.
Along with all this people telling you that you may just have to live sick doctors cant help everyone is so annoying.... Its like people just constantly telling you not to worry about your health.
I will say besides the things mentioned above about my dad he is the only person around that is supportive in me trying to find out what is wrong...
I guess my point is is anyone else surrounded by people who dont understand?
Posts: 286 | From St. Louis | Registered: Dec 2009
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posted
I am! I have been suffering from many symptoms since I was 17 or 18. I was diagnosed with Fibromyalgia at that time, because all of my tests were negative for everything else. I have been diagnosed with anxiety/depression, TMJ syndrome, chronic bladder infections, IBS, and migraines, muscle/joint pain, all of which my dr. said is just from FM. However, last July I had a tick bite and had a bullseye rash on my leg, swollen glands, and low fever. My Lyme test came back negative. Since last summer, I have had increasing joint pain in knees, back, muscles soreness, headaches, abdominal pains, even dental problems. I went to my dr. and she had me get x-rays only to find out that I have arthritis developing in my back and knees. At age 28! My dr. still thinks it's just an FM flare-up, and my Lyme worries are just irrational. My family and friends think I'm just crazy...even my husband. I'm with you buddy, there is something causing us to suffer!
Posts: 71 | From Missouri | Registered: Jun 2010
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posted
I definitely know the feeling of people who don't understand. All I can say is, you have to just look out for #1. Screw the rest of them! I try to avoid the negative people the most. If I'm telling someone about it, and I see that they are disinterested or don't believe it, I just politely end the conversation and move on.
-------------------- Lyme IgM: +18, +31, +34, +39, ++41, +58 and 83-93 is Indeterminate.
Currently pulsing IV Flagyl and Rocephin. As well as daily Mepron and Azithromycin. Posts: 34 | From New York, NY | Registered: Mar 2010
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
me too....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
I am. Like I said in my other post. I read in an email someone sent me- They don't "get" it until they GET it.
This is not something that can be explained to someone who doesn't have it or has never had it.
posted
I'm with Lymetoo. I really don't believe ANYONE has FM. It's outrageous, but they just feel like they have to call it something.
That's why it's a SYNDROME, just a bunch of symptoms with no known origin.
It's so very hard for all of us, but one day, maybe not in our lifetime, it will all come out. This epidemic can't be ignored forever. I just try to take a minute or two everyday to pray for all of us suffering and all those fighting to save us.
Posts: 246 | From south florida | Registered: Mar 2010
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posted
i feel you! very few people care that i'm sick... and some don't even believe me.
even my teachers were mean to me in highschool for having to stay home sick all the time.
sometimes people make me feel like a nutjob for not feeling better on anti-biotics. they say things like "well everyone i know with lyme got better when they started anti-biotics" ... well that's nice, but...
number 1: i went over 7 years without a diagnosis!
number 2: i've only been on anti-biotics for 2 months!
number 3: the only anti-biotic i can afford to be on is doxycycline!
it's so frustrating... i prefer keeping my health problems a secret, but i feel like i have to tell people because otherwise they don't understand why i'm not working and judge me for it.
Posts: 220 | From Kansas | Registered: Mar 2010
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Kellephant..
Don't know if there is a Giant grocery store or Wal-Mart near you... but Giant has free antibiotics (a selection of them- not all) and Wal-Mart has a prescription for $4.00 for many of their antibiotics.
posted
thank you for the suggestion! i have checked it out... unfortunately zithromax wasn't on it... i do have a prescription for ceftin though, and it is on the $4 list... i haven't tried yet! maybe i will give it a go
i just can't imagine anything making me feel as good as the zithromax made me feel. i feel like a drug addict, because i'm just sitting here thinking about it and crying. maybe i can take out a loan or something. how do drug addicts get by anyway? it seems like they always manage to get what they want. "where there's a will, there's a way." well, i definitely have a will, so where the heck is my way?! lol!
i just really thought i was going to be able to get some soon, but then the ER told me today that if i don't start paying them $100 a month they are turning me over to a collecting agency. blah!
Posts: 220 | From Kansas | Registered: Mar 2010
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