sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
I think about Charlie very often, and miss him enough it still hurts.
Does anyone else here feel the same way?
Posts: 2507 | From lost in the maze | Registered: Aug 2006
| IP: Logged |
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Yes, it still hurts. Though I think you knew him better than me, so it probably hurts more for you.
I think of him frequently, and miss him, and wish he were here still. I feel honored to have known him, and been here to get his advice, that ended up changing the course of my treatment. And I miss his wit.
Such a great loss for our community. I keep thinking how much he meant, and just that it's a shame. But then I think how great it must be to mean that much to people, that they miss you this much.
((((((dilly)))))))
Posts: 4590 | From Midwest | Registered: Jun 2008
| IP: Logged |
just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
I havent been the same since.
Not even feeling remotely the same.
Lost all my humor and drive!!!
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
| IP: Logged |
posted
The thing that bothers me, apart from missing this fine man, is that he was treating himself with bactrim longterm, and I am afraid that is what did in his liver. If you look into the side effects of bactrim, it is there. So, really the IDSA crowd is responsible for his death, in my opinion, because they have made it so hard for people to get treatment and have been complicit in failing to do good research that would help us. The NIH and the CDC are part of the IDSA cabal.
Texas was one of the worst places for finding lyme doctoring. And that state has just shut down a lyme doctor.
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
posted
Yes, I do think of him quite often. I'm so sorry for those of you who were best friends...like don.
I agree with you lou... that is so criminal!
Texas just lost their LAST LLMD. There is little left there at all. So more will die because of it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
yep and leslie and others
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
CRAP!! Charlie was my friend.
He could tell by reading my Emails when i was becoming lyme brain crazy again and needed to go back on ABX.
He was so funny we shared puns!!!
We floated rivers together,caved together,and had cookouts in campgrounds.
Don and Charlie,had Dodge Cummins trucks,so i got one to.
Sometimes I can't grasp the reality that Charlie is gone!!
Melanie and TC was there on the buffalo river with us.
Don was there for two of the rivers and two of the caves.
Jenny, floated,caved and was there with Charlie allways.
It is not to often that someone not related to us, passes through life with us and leaves a lasting hole in our lives when they move on to the other side.
MADDOG
Posts: 4083 | From Ohio | Registered: Oct 2000
| IP: Logged |
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Maddog- you said it just the way it feels to me-- that there is a lasting hole no one else fills since Charlie left.
He was a one of a kind person and friend, and Don, i know what you mean about not laughing in the same way since, either.
Lou & toots, i agree that his death was criminal and could have been avoided had he received adequate care for his Lyme.
Its not anger I feel when I think of him, though, just a deep missing of him and sadness.
Hugs to everyone else who hurts for Charlie.
Posts: 2507 | From lost in the maze | Registered: Aug 2006
| IP: Logged |
Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
I've not been the same either... Charlie was a love and his final suffering and passing hit way too close to home.
I'm sure his family felt a great loss this Father's Day.
Posts: 7052 | From Colorado | Registered: Mar 2003
| IP: Logged |
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I'm so glad to see this, because sometimes I wonder if I am the only one still thinking about him and missing him every day.
It's an aching, sad feeling. I miss him terribly. Blake and I often talk about him. I loved him very, very much. I'm so sad I'll never have the chance to meet him....we talked on the phone many times, but I never got a chance to meet he and Jenny.
It is comforting to read this and know so many of us are still remembering our beloved Charlie. I often think of Jenny and wonder how she is. I am so sad I never sent her a card. I was just so sick and am only just barely starting to crawl out of the hole. I still plan to write to her.
Does anyone know how she is?
I'll always miss Charlie. Thanks for sharing all your memories. It warms my heart.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Wow, I just saw this on Charlie's page on LymeFriends. I was posting a couple of pictures of my new pool, and it reminded me of when I was building it last year, how some people got on my case for using my back SSDI money for a pool. Charlie then posted pictures of HIS new pool to shut them up! I remembered that as I posted a couple pictures of my pool, and went to his page to look at them and to reminisce as I thought of him and how he did that for me. Then I saw this note I wanted to share:
At 2:41pm on May 31, 2010, charlie said
Blake and All, thank you so much for all your wonderful comments about Charlie.
I am doing OK, but know I'll NEVER find another Charlie. I was blessed to share 37 wonderful years with him. You might enjoy his comment about our marriage. He called it "a whirlwind of ecstasy".
I loved him very much even after spending 24/7 with him for years. His son calls me every night and that has brought us closer together. He is a blessing to me.
I haven't been able to go to any of his web sites until now. Guess I needed to get away from anything that had to do with Lyme for a while.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[group hug]](graemlins/grouphug.gif)
Printer-friendly view of this topic