I just want to share it with others & know I'm not alone.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Thank you, as I am feeling very weepy at the moment. The red bump on my arm is growing darker and a lot more sore. It's not a bullseye. It's absolutely essential that I have the new test thru Igenex & if I have to take antibiotic it will interfere with the test. The way my arm looks now, I'll be going to a doc this week. The LLMD can't see me til July 6th. I must stay clear of antibiotics so it won't interfere with the accuracy of the test. I'll deal with this somehow.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
I mean this in every good way - I think we have found our Joan of Arc of Lyme and TBDs!!!
Yes, you are a quick study and I will pray for you because you are in for a journey with the medical community. Most of us have already been to many specialists with incorrect diagnosis and wrong medications. Meanwhile, the lyme continues to take over our bodies. The docs will even give you prednisone which is probably the worst thing for lyme patients to take since it lowers your immune system...the the lyme can attack even more. Great!!
It is a horrible problem because the only doctors who will treat you are the llmd's and they are afraid of the medical boards and lawsuits...so they usually don't take any medical insurance and have very expensive charges.
You are right - it is a political battle and right now I'd say lyme patients are losing because no one in the conservative medical community will help us nor the state and federal government. We are being pushed down like we don't exist and one has to be careful because you don't want your insurance company to flag you and then they may not pay for labs, office visits, nor medication. It's pretty scary.
Even getting long term care insurance or life insurance may get harder for us as if you look at the forms some disqualify you immediately if you have any strange diseases. (I'm guessing that lyme will be added to these lists in the future.
Anyway, I'm glad that you are on our "side" (not that you have lyme), we all need to get involved and get the large organizations to do more research and find a cure.
Fight on!!!
-------------------- I am not a doctor and am only expressing my opinions...please do not take this as medical advice. Posts: 44 | From US | Registered: Jun 2009
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Are you still doing hot compresses?
I really think that LED light therapy would help that to heal.
posted
Arkie... You could always do the Lyme test at a later date. You could take the test kit and get a local dr to sign off on it (??) .. or just get the test done the next time you see the LLMD.
If you've got MRSA or staph... then you'll have to take care of that.
PS.. I did mean that the video was great. That is what I was really commenting on last night!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Thank you for all the support! First, thanks to DJ comparing me to the Joan of Arc of Lyme & TBD's. Yall are great. I'm about ready to see a dermatologist about the bump on my arm. It's turning darker. It doesn't look like any picture I've seen of staph or MRSA anyhere. It is getting sore....'Thanks yall!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Really good article. Thanks for writing it. There is so much ignorance everywhere about this disease, and that is the main thing responsible for so much of our suffering.
I do want to point out one thing that you may have already learned by now--at the end of the article, you express the hope that your Lyme test will turn out negative.
You should know that the tests turn up negative so often for people who actually have Lyme that they are worthless for ruling it out. False positives are very rare, so a positive test along with symptoms does show that a person has it.
Non Lyme literate doctors who I have encountered or heard of all claim that a negative test means you don't have Lyme, even if you got bit by a tick and have Lyme symptoms.
That is one of the big misconceptions that leads people to believe they don't have Lyme, but rather some mysterious unidentified disease with no cause and no treatment, and to therefore fail to receive appropriate and useful treatment for their Lyme as they get sicker and sicker.
I mention this because it is the very kind of misunderstanding that I think you are trying to clear up, and you seem to have grasped the whole situation very well in a short time.
Good for you for fighting back, personally and on behalf of other Lyme sufferers. Your writing is very good, too.
-------------------- Don't forget to laugh! And when you're going through hell, keep going!
Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009. Posts: 756 | From Inside the tunnel | Registered: Jan 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
17hens: Thank you! Encouragement here we come! Whoa...not only are we advocates for Lyme sufferers, whe have a greater Comforter who stands in on our behalf! We will get the victory!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
LightAtTheEnd: Wow, thank you for the great post. You have it exactly right about what I'm tring to do. I'm not going to keep my mouth shut about this. I knew I'd have to get pro-active in my quest for healing withough relying on the "good-old-boys-club" of non-literate docs. After reading so many testimonies, I HAD to speak out, I WILL speak out, I will CONTINUE to speak out. And by the way...I don't care what medical person I offend..however, I know enough to be firm but use tact. So there you go. I gotta grasp on what's happening cause it's plain enough my 4 yr old grandson can understand. My 32 yr old son is already researching & finding out the shocking truth about this disease. He's very concerned and ready to get out the cannon.
Anyhow, thank you very much. Lets keep up the good fight. "Ticks suck, beat LYme, keep fighting"
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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