posted
Would you invest 15 minutes to help with Lyme?
We need useful data for the study of Lyme and how it affects patients?
We need your help! You CAN help by taking this survey!
This survey is sent by the National Capital Lyme and Tick-borne Disease Association to gather information for a new paper, ``The Human Dimension of Lyme Disease and Other Tick-Borne Diseases: A Patient's Perspective.'' The paper is for the Institute of Medicine's scientific workshop entitled, Lyme Disease and Other Tick-Borne Diseases: The State of the Science. The workshop is charged to represent the broad spectrum of scientific views on Lyme disease. It is expected to provide a forum for public participation and input from individuals with Lyme disease, as requested in congressional appropriations report language in House Committee Report 111-120 and Senate Committee Report 111-66.
Your participation is greatly valued and needed to add validity to the ``Human Dimensions'' paper. Earlier, we requested your personal story; now we are asking you to participate in this survey.
Your contribution to this database will add depth and validity to the descriptions that will be submitted on the patient experience in obtaining a diagnosis, seeking treatment, obtaining insurance coverage, and living with Lyme disease.
The survey is divided into 6 segments and consists of 4 types of questions: a ``matrix'' of opinion scaled questions, multiple choice questions where you select from a drop-down menu, multiple answer questions where you select all that apply, and an open ended question where you can describe your experience. The survey is anonymous.
The survey should take less than 15 minutes to complete. Due to a time limitation, we are asking that all surveys be returned by July 19th, 2010. If you have any problems or questions, please email Diane Wilcox at [email protected]. Your participation will make all the difference.
Click on the link below to take the survey. After you take the survey, please forward this message to other Lyme patients you know. If you are a medical professional, please consider sending this out to your patients.
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Done
Would like to see data collected on how many have received abx treatment and regain their health, how many have not regained health, etc.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
I took the survey & will post on my article.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
This is a great survey...very complete. It is surveys like this that will help our cause.
Posts: 871 | From orange county, ca. | Registered: Jan 2006
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The more people that complete the survey along with sending in their personal stories to [email protected] will all help with the writing of the paper for IOM.
Hugs Linda
Posts: 107 | From Michigan | Registered: Nov 2004
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posted
Is it too late for me to reply? I just got back on my computer and missed a lot. Please PM me if you want my 22 years experience with this mess.
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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