posted
Wow. I get twitching on my face sometimes and it's really annoying. This looks pretty annoying too. Has it gotten any better with treatment?
Posts: 581 | From CT | Registered: May 2008
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posted
Thanks for sharing that. They look like hiccups. I've had that in my bladder in the past. Does that happen if you are moving around, or only when you are relaxed. Question - it may be shadows, but on the video it looks like you have the same discoloration, blue veins, and "bruising" from knee to ankle along the shin as I do - do you? Do you know what it is?
Posts: 212 | From San Francisco Bay Area, California | Registered: Aug 2010
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posted
yep, I get them also mine are probably not as frequent as the person on the video I get them when resting and its an involuntary twitch or more like an all- over bodily jolt lasting a few seconds..bizzare stuff
Posts: 46 | From waterford, Ireland | Registered: May 2007
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I had a lot of symptoms like this. My doctor told me "You're making it twitch so you can get attention."
Really? Seriously? That's all I could think.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Be sure to tell your LLMD. As frightening as this is, it is really very common with lyme. Still, your LLMD should know and you both should reassess your support supplements and nutritional intake.
I also had lots of similar twitches (and much more pronounced ones that would even throw me off the bed).
If this is happening when you are sitting, be sure to assess your ergonomics. Feldenkrais is good for that.
Massage and Magnesium were the very best help. My guess is that your magnesium level is very low. Calcium and other minerals & electrolytes, too.
Yoga stretches can be helpful but most helpful would be full body cranial-sacral therapy with someone trained in the UPLEDGER method (Google for those near you trained in this style).
Restorative Yoga - also very important
When these twitches start, it is important to reposition your body. Go to the source - where the muscles that is twitches "starts" and gently massage and stretch that. The contraction should subside.
What is your current dose - and how often -- for magnesium? This appears classic magnesium deficiency which is very common with lyme.
JOHN F. BARNES, P.T. is one of the top experts on myofascial release. After a surgery, this can help reduce - or soften - adhesions that typically occur.
Licensed Massage Therapists (LMT) also are very helpful. You can search for their licensing organization in your state and contact your local lyme support groups for those LMTs who are good with lyme patients.
* Magnesium: The Underappreciated Mineral of Life Part II - -----------
All this on magnesium is partly because it has helped me so much. However, be sure to ask your doctor. Most lyme patients are very low in magnesium as the infections seem to do that.
Some are concerned that the magnesium can "feed" infection, however, if the body is severely depleted the body must be replenished as magnesium is a necessary mineral for survival.
Taking magnesium with B-6 helps it get into our cells better. And B-6 is a calming vitamin, too. -
[ 09-02-2010, 01:18 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Epson salts (warm, not hot) bath can help but it will not come close to supplying all the magnesium you need throughout the day. Not even close. I needed much more, 3 or 4 times a day.
Source Naturals has a good magnesium blend. NaturalCalm is nice, too. I take 1,000 - 2,000 mg a day to keep the myoclonus down.
WHICH MaxGXL are you getting? There are several types. This could be promising.
IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
I clearly saw the twitches in the red boxes once I enlarged the picture to full screen. It must be really annoying!
I'm fortunate to have had only mild twitching a couple of times in my lower lip. Then once my left elbow/arm (the one that hurts all the time) gave ma little twitching number. Nothing since then, though.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
Hello everyone, I have a new handle but I am not new to these boards although I have not been on them in almost 3 years. Since it's been so long I could not remember my old name so I created a new one.. I wanted to comment on this post.. I too have horrible twitches and spasms all over my body.. To the point at night when trying to sleep they would lift me off the mattress and one night we thought I snapped my neck.
Since I have not had an LLMD in 8 yrs my MD put me on Ativan 1 mg three times a day and it's pretty much stopped the spasms although I still can not fall asleep on my side.. When I try too I still twitch but only when laying on my side.. Still not sure why this is..
Posts: 5 | From South East USA | Registered: Sep 2010
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