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I was recently dx with Lyme and have been blessed to have found an amazing dr. I found out that it is likely that I have had Lyme most of my life (which possibly explains a lot). I have started tx (antibiotic, gluten free diet, vitamins, and natural medicines) I have been very careful to start just one new thing a week. I have kept a journal every day (trying to account for as many variables as possible) - so I can see what is helping and what may not be. The last couple of months have been very challenging. I have really struggled with brain fog. Through out my life I have struggled and been treated for depression. Recently I have had a really difficult time shaking the depression and saddness. Sometimes I just feel crazy. I wonder sometimes, if I am exaggerating ... maybe I am fine it is just my thoughts that create it? I am in a helping profession. I have had to take a lot of time off work in the past couple of months (due to pain, fatigue, doctor apts, and emotions). I feel like I am really failing at my job - I don't feel like I am helping at all. And with the brain fog, I have started to wonder if maybe I should not be working with people right now. I am very passionate about my profession and am not sure what I would do financially if I left my job. I have amazing friends and family! I know they care about me - it just seems sometimes that they don't understand. Sometimes, even with all the wonderful people around me, I feel so incrediably lonely. I know that it is difficult for the people around me who care very much - they too feel helpless. Sometimes I think that I am a burden and am stressing them out by talking about (I try not to complain or share too much) what I am struggling with. I need the support but I don't want to burden them or push them away either. I know it may not sound like it but I try very hard to recognize my strengths and the positive things in my life. I have posted reminders around my house of all of the wonderful things in my life that I am grateful for - I try to read a number of them every day. Any words of wisdom?
Posts: 2 | From Minnesota | Registered: Sep 2010
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No real words of wisdom..but i will say that WE get it. Most of us have wrestled (or are wrestling) with the very thoughts and emotions youre dealing with. I dont like telling everyone all the emotions im dealing with. But the loving caring people here "get it". I recently dealt with an extremely stressful incident and the people here helped me pull through. I know what that loneliness feels like. And now with treatment youre bound to get better! It may take time...and well hold you up and walk this journey with you. Sending you huge hugs!
Posts: 624 | From Oklahoma | Registered: Jun 2010
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Im sorry..it was easier to post again than edit my post. My lyme addled brain made me forget to welcome you to the boards! So...welcome!
Posts: 624 | From Oklahoma | Registered: Jun 2010
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*Hugs* Have been through that for the last 3+ years. I had to double check and make sure that wasn't my own post I was reading. These boards will help you greatly.
Inform them as much as you can...have them come a long to one of your appts. It's hard though, because communicating for me is one of my biggest issues. It causes such brain fatigue for me and I get lost in what and how to share details of this crazy disease.
Most of the time you'll feel you're just trying to convince people to take you seriously.
You're good to keep a journal. You'll be able to remember your day-to-day progress and you'll feel you're doing something good for yourself. Hang in there!
Posts: 42 | From St. Louis, MO | Registered: Aug 2010
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