posted
Everyday you just struggle to survive another day and everyone around you seems to believe that your disease is just a minor one.
My uncle has asthma, and the other day he said well would you rather have asthma? I said any day of the week. He then looked at me like I was downplaying his disease! Asthma, I laugh at Asthma after this, and Asthma is no joke.
Some days, I just wish a truck would hit me and get it over with.
Posts: 743 | From New York | Registered: Apr 2009
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posted
I hear you. It really IS a struggle everyday. Stay strong. I'm trying to day in and day out. (minute by minute really right now).
Posts: 341 | From NY/FL | Registered: Apr 2010
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Moving to general.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
I have a nephew who almost died more than once from an asthma attack. I dont want either one. I just want my life back! I want to live this life instead of just exist in it.
Posts: 624 | From Oklahoma | Registered: Jun 2010
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posted
Yeah, asthma is serious, but at least you can think and it is not constant.
Lyme is every system of your body being ground down every day of your life. It is unrelenting.
I still laugh at asthma after this.
Posts: 743 | From New York | Registered: Apr 2009
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
I agree. Asthma is serious, yes. My daughter has it and it is serious.
But asthma is not multi-faceted like lyme and can be controlled.
And it's not painful. The pain is the hardest part of lyme IMHO.
Hang in there John; you will be in our prayers.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
The worst part of Lyme for me is the mental fog. Pain sucks, but when your brain goes, the core that is really you diminishes.
Posts: 743 | From New York | Registered: Apr 2009
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Yes, losing brain function is awful too. But you can get that back through tx.
Try not to get too discouraged; I know how hard it is, but you can come through this.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
You'll make it through it John. Don't let go, don't give up hope.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
yep..it is an uphill climb each day and difficult to find things that you can do and know when to do them.
Yesterday, I thought about writing a note as to why I threw in the towel because at times I feel like it is just too much.
Then, later that day I was able to get in the car and drive down a dirt road in a beautiful canyon a mile and a half from me.
it was amazing. While I was in the canyon, I was aware of how the lyme made me feel but also aware that I was able to be there and take my mind off of it for a short bit.
So thankful for my service dog which forces me to get out of the house and take care of myself and for the car that was donated to me and the camera.
Good to find some things that you can do now and then.
And look forward to those days when you are able to do things.
In the meantime John..sending my imaginary limo and limo driver over to take you away. Where would you like to go?
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
I really get what you mean that the core of you diminishes...the sense of your self.
Instead this other experience.
I will add my encouragements to take heart John. Been there so bad I wanted to die. Not suicide...just felt no way through to a different reality.
But I am now experiencing the improvement by dips and starts...that gives the glimmer that this will pass...the better moments increase.
The bad ones are still a bear to get through but at least I am accumulating experience that they do pass.
And it is so irregular a journey. tonight within the space of three hours I was greatly heartened and forward looking.
and also reduced to tears that I had no inkling if I would ever be a better recovered self...that I was holding people back etcetc. Heights to pits and back ...and back again.
Times were I did not know how to grab onto that those thoughts and feelings would change...my brain would interfere mentally and emotionally.
But it is still true. I am glad you shared the pit of despair you feel. That is courage of itself. And those with courage can make it through.
You have hope and a future.
-------------------- Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein Posts: 208 | From Northeast | Registered: Aug 2010
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I wish they could just put me into a coma until i was better.
Most people just don't get it, so I bombard them with articles that I find on this forum. Some of them are starting to get finally understand what I am going through.
Hang in there. PM me if you need to chat some more.
-------------------- I am not a doctor. I have no clue. Posts: 606 | From somewhere out there | Registered: Sep 2009
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onbam
Unregistered
posted
I go on because I know that if I don't, Steere gets what he wants. Choosing to live another day becomes an act of rebellion.
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posted
Hey John, I only found out three weeks ago after being so ill for 3 years......I so feel your pain, all the different kinds, but it will be a better day tomorrow,......don't let it win, and I won't either. I am trying to find something to make me feel good(emotionally) every day.....however small, and a candy bar sometimes works for me......be a warrior John......we can do this and come out the other side
-------------------- RWM Posts: 18 | From New Hampshire | Registered: Oct 2010
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My daughter has had severe asthma since she was a baby and we were in the ER more than I care to remember. Each time was very, very scary.
Watching your child struggling to breathe is torture. The first time she had trouble breathing we had no idea what was going on. If we hadn't gotten her help, well I can't even imagine.
Fast forward and here we are in Lymeworld.
The asthma my daughter endured pales in comparison to what she has been through the past several years with Lyme/cos. If torture had a definition, it is Lyme Disease. And, like you said, asthma is no joke.
Honey, we all have days when we wish a truck would hit us and just get us out of this hell. But don't let yourself stay there.
We are here to lift each other out of these bad times.
I'm extending my big mama bear paw out to you. Grab onto it and come back here. You will fight and at the end of the day you will win.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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posted
I try not to let myself take the long view with this disease because it is too scary, too discouraging, and too confusing. If today is good enough that I can do some things I like to do, if I'm not in bed writhing in pain or gasping for breath because I can't breathe, then that's a good day for me.
I don't know if it will help you, but that is what helps me. Just focus on the moment. If it's a bad one, know it will pass. If it's a good one, hang onto the glory of a moment of sunshine.
To me, even harder than the pain and the other disturbing symptoms, is the unfathomable controversy associated with this disease that leaves many of us feeling misunderstood and alienated. Thank goodness for LymeNet and a network of online friends who understand.
Posts: 212 | From San Francisco Bay Area, California | Registered: Aug 2010
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