Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
I could just cry. It's nothing in specific, just everything.....
I'm reading these posts..... aware of all the earnest searching and sifting thru the madness of our illness. The sincere responses. Propping each other up when we need it, coaching, sharing and praying for each other. Now I am crying....
This is so hard. I feel as bad for you as I do for myself.
We talk about what to do, what not to do, how to do it, how not to do it. All so complicated. We are all searching and hoping to find our own conclusions to get us out of this web. Hoping to find 'the thing' that we have been missing that will pull it all together for ourselves.
Well, I'd like to say, while I am stuck in this web, I find it an honor to be associated with such a fine, compassionate group.
Thank you so much.
With love in my heart, Tammy
Posts: 2238 | From East Coast | Registered: Jul 2010
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
I'm so thankful for this site too Tammy. The people here are truly just trying to help one another along on this journey.
That was for EVERYONE who helps others on a daily basis.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
Thats such a nice post. Im overwhelmed at times at the sheer GIVING that goes on here. Those that have spent literally YEARS offering support in so many ways. Even if its just to wish someone a happy birthday. Its sites like this that make me believe theres more good in the world than bad.
Posts: 624 | From Oklahoma | Registered: Jun 2010
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
The shadow proves the sunshine. It's really that simple.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
I believe this site saved my daughter's life and perhaps, even mine.
I haven't said much on here over the years, but I sure have read a lot...and when I did ask a question...well, good answers were forthcoming.
Lymenet and the people who work tirelessly to help others has been a huge blessing in my life.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
I have to say that this site is my lighthouse.
The bright light that guides me through the dark, choppy waters.
Many thanks for all the help and support for my daughter.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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posted
Honestly I can't imagine going through something like this without the internet. I'm mostly a lurker here but I truly consider the people here as the experts. We're the ones down in the trenches ya know.
Posts: 707 | From Colorado | Registered: Jul 2010
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i've been here a couple of years and seen people come and go, and i couldn't agree more.
i've often had a very tough road with absolutely no friends where i live and no support at home.
knowing i can come here and not be criticized and belittled, means a lot to me.
every time i think i'm the only one and feeling sorry for myself, i come here and read the posts and realize i'm not alone.
this disease isolates you, making you feel such desperation.
this board has literally been a godsend for me and i cannot tell you how much it means to me. i've lost my father, my mother, and i went through pure crap after that, plus so many other things.
then when i found a great doctor, wham!! he goes out of practice. that really threw me.
it seems sometimes when i take a step forward i get knocked back three. but there are others here in the same boat and just knowing that you are here is comforting.
you all have saved me from the depths of utter despair and i love you for it.
each and every one of you.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
I would be living in terror and despair hoping I would die soon were it not for the courageous and supportive voices of the Lyme community. A few years back when my husband and I got a dog, we marveled at what wonderful, warm people "dog people" were. And I still think so. But for me, the relevance of Lyme people in my life supercedes even my abundant appreciation of dog people. Fellow Lyme people help me keep going when I am down, lend purpose to my life when I am able to help them, share wisdom when I lose my way, and in one case, literally saved my life. I'm so grateful.
Posts: 212 | From San Francisco Bay Area, California | Registered: Aug 2010
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posted
What a wonderful post. I totally agree with you.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
This is a great post. I love all my lymenet friends more than they'll ever know. Thank you all for being here for me whenever I need you.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
I would probably would have believed I had MS or something similiar.
The internet has been a great tool. It is frustrating though to learn that all the answers aren't there and some things aren't credible, which only makes sense for a disease that the government chose to ignore.
Posts: 743 | From New York | Registered: Apr 2009
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posted
Today I was in Safeway and forgot where I was. I just kept walking, hoping I would figure out what type of place had flour, salt, ingredients...nothing. Eventually, I figured it out. now tell me what other group of people would understand this 100%? You guys are a lifeline, a light, and a hope.
Posts: 30 | From Maryland | Registered: Aug 2010
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
That's it.... We get it when no one else does! The comfort of that is beyond words for me. Thank God we have each other.
Missyindc - your story doens't sound strange to us. (Or maybe it's strange that it almost sounds normal to us!! LOL)
I'm to the point that I can't talk about it much with anyone except this group. Even when they are polite, I feel that they look at me as if I'm odd. Being 'invisibly sick" doesn't help, as I look normal when I am out in public. So the sick words don't match up with the healthy looking image.
Here, I have nothing to prove. I am just accepted. Such great people here.
Posts: 2238 | From East Coast | Registered: Jul 2010
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posted
Your post has been going through my mind..and it occurred to me that we're some of the strongest people there are!
We've had tremendous adversity in dealing with Lyme, and so many have had the added pain of not having family support.
And still they continue the fight to get well, and to help others.
Just a lot of really, really strong people here, with great attitudes to match! Positive outlooks. Supportive words. VERY strong people.
Posts: 624 | From Oklahoma | Registered: Jun 2010
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Amen, and even when we have issues outside of Lyme disease itself, we can bring it to this board and know we will be supported.
You have all helped me so much as I struggle with my son's issues. Bless you all.
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Thank you for the post. Yes, I agree with all the above and probably wouldn't survive without my friends on LymeNet. No one else could understand like you do.
Though my lyme is in remission, it has wrecked my health on many levels, so I still come here for non-judgemental support and always find it.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
What a nice post, to say thank you. There are so many tireless advocates here - one of them is Keebler, for example, who will get links for anyone - info, support, activism, it's all here.
Posts: 13171 | From San Francisco | Registered: May 2006
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