posted
On the front page of the Health section of today's LA Times in a condensed version of the horrible article that ran in the Chicago Tribune earlier this month:
Please take a moment to read the story, rate it and add your comments.
We have to fight back!!!
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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lymeladyinNY
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posted
I wrote a comment. This is so upsetting.
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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RDaywillcome
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METALLlC BLUE
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posted
I left a comment here as well:
"The evidence for persistence of borrelia burgdorferi inspite- of seemingly adequate antibiotics has enough evidence supporting persistence to at least inform physicians that they "may" encounter patients who require extended treatment of an unconventional duration with ongoing assessment and monitoring of the patient's quality of life.
Anyone who takes even just 30 seconds to view this document ought to be skeptical, cautious but aware that contradictory evidence continues to support the advocates point of view and thus they can not merely dismiss them as though the evidence is mere fiction. Only psychopaths & those with self-interest driven agendas can deny evidence of this magnitude and look you straight in the eye as they do so.
So read my document. Consider it's significance. Decide for yourself whether the evidence is significant, insignificant, or merely fiction created by Hypochondriatic and Quack physicians.
The sane and honest will see truth.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
Hm - saw 17 comments originally and when I tried to add one, it was closed off. Perhaps we're getting pretty good at slamming the article and referring everyone to more informationally accurate sites!
Posts: 13171 | From San Francisco | Registered: May 2006
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You could try calling or faxing the editor-in-chief, Russ Stanton to complain: Phone: (213) 237-5000, Fax (213) 237-7679
Any other ideas???
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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posted
The comment section is up and running again.
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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METALLlC BLUE
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posted
Someone posted an interesting response.
"Metallic Blue-[Mike Parent]-How can we expect respect and credibility when you are posting your OWN "paper" that I cannot find in any peer reviewed respected journal?
Too many have taken the opportunity here and on the other articles/ blogs that cloned from the Tribune article, to market and post links that promote their business endeavors;so, where is our credibility??Perhaps if 'we' embraced the obligation and responsibility for not accepting or turning a blind eye to the predatory and unethical behaviors within and among our group ( patients, Drs and marketers) then we can regain some measure of credibility thru accountability! Instead we shoot the messengers--why??
Arkiehinny--these "negative" stories unfortunately write themselves and "we" have become our own worst enemies when we turn a blind eye to the unethical activities among us.
There may be 'reasons', but there is no excuse IMO for the too many "cashing in" while others of us are DYING of this insidious disease! and again that includes labs, Drs, patients, so called "authors",salesmen of "cures", "crafters" etc.
In my over 20 years of being a trained patient advocate I have seen things go from bad to much worse and no longer want to even admit that I too have this Disease. "Oh, youre one of THEM" is what I hear too often and frankly I can no longer blame them!!"
What do you people think?
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Hoosiers51
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Member # 15759
posted
Metallic,
I saw that response too. Right when I read it on the LA Times site, it was obvious to me that it is by "Fin24" aka "Finnette"....I can tell by the style of writing, just by seeing the style she used to use on Lyme Friends.
I agree that Lyme patients need to only cite things that are credible, because the other side doesn't care about anything else.
I don't think the unethical snakeoil salesmen are the biggest problem here, so I think a lot of what she said is irrelevant. I think the biggest problem is proving the cause without a doubt and finding a cure that works every time or almost every time. We have evidence, but it is still not enough, IMO.
I believe what Stanford is doing is a step in the right direction? Though not sure.
Posts: 4590 | From Midwest | Registered: Jun 2008
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northstar
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posted
I have not posted in eons, but this recent flood of unoriginal reprints of the same article have peaked my curiosity.
These are all printed in big name papers, all with big business ties. I am surprised that Forbes has not yet printed a commentary, referencing all these "prestigious" newspapers.
These newspapers have referent power, a reputation ,and what the papers print give readers the false illusion of veracity.
Does anyone hear an echo in these articles?
Follow the money.
I see the constant drilling of the same words, to saturate the public mind. These are advertising tactics, a type of social manipulation.
Repeat it often enough, and it becomes truth in the eye of the naive trusting reader.
So, I asked myself what the reason would be for this sudden national campaign.
Well, I think it is a pre-emptive strike against the PBS Spring showing of Under Our Skin.
I think it is an attempt to counter the future effect the movie will have with its national exposure.
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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METALLlC BLUE
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posted
I see people challenging me and asking me the same questions over and over -- yet the answers are given and they don't seem to want to read it.
Moron: None of those studies support your position.
Me: Here is one out of the 100 I have. "Blah blah blah" infectious spirchocetes found after 3 months of IV Ceftriaxone in the joints of a patient who complains of joint pain.
Moron: That proves nothing... Prove it.
Me: Psychopath? You are....
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Instead of saying psychopath, have you tried asking what kind of proof they are looking for? What would be acceptable proof to them? Or ask them why they think none of those studies support your position?
I have yet to look at the LA Times carbon copy of the Chicago Tribune... Still so irritated by the original. Perhaps I should go there and see what comments are there, too. I had trouble posting to the CT article weeks ago over several days - the registration system crashed on me and threw 500 server errors. Must have been hit pretty hard by us!
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METALLlC BLUE
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quote:Originally posted by Camp Other: Metallic Blue,
Instead of saying psychopath, have you tried asking what kind of proof they are looking for? What would be acceptable proof to them? Or ask them why they think none of those studies support your position?
I have yet to look at the LA Times carbon copy of the Chicago Tribune... Still so irritated by the original. Perhaps I should go there and see what comments are there, too. I had trouble posting to the CT article weeks ago over several days - the registration system crashed on me and threw 500 server errors. Must have been hit pretty hard by us!
That wasn't a literal conversation. The conversations are basically cynics posing as skeptics.
Many of these people don't want the answer to their questions, otherwise they'd read the studies themselves which have been presented plenty of times via the ILADS website and by myself.
I keep repeating this and it'll remain true. Skepticism is the heart of science, but cynicism is the death of reason.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
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