phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Is this part of lyme or what is going on in my head. I feel dizzy off and on, off balance and a horrible feeling like I am going completely insane.
I awake with a doom, gloom, scard feeling and I try to make it go away with deep breating,etc. I just feel like I can't take any more. Then I cry and it seems to be a vicious cycle. Even the xanax hasn't helped today.
Sorry for all the negative post but the head feeling is driving me insane.
Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
I feel like this all the time.
I just told my sister that my head feels like a shaken snow globe. I am constantly woozy, dizzy, loopy, and waking up in the mornings is soooooooo depressing.
I feel like I should comment about the Xanax. I know it can be very helpful for some people if used occassionally.
But there are several websites out there with people who are severely messed up by benzos, especially if used regularly.
Eventually they can cause all the problems they are meant to help. They can worsen the things you originally took them for.
They are nervous system depressants and can cause depression in certain people.
I had a hell of a time with benzos, and I took LESS than what was prescribed. After 3 weeks, they made me a million times worse than I was.
I know this doesn't happen to everybody, but in some people, benzos can really screw with your brain when you reach tolerance. Tolerance can cause some of the things you are describing, but so can Lyme.
( Never stop taking them abruptly, though. They have to be very slowly tapered. )
I know I'm the minority, but I am not a benzo fan. I experienced firsthand just how devastating they can be. For some they are a llifesaver, for me, they nearly killed me. The only time I ever had suicidal thoughts was when I was taking them. Never again.
I feel for you. I really do.
Posts: 1142 | From South | Registered: Dec 2010
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
It sounds like your symptoms could all be from several infections...lyme, bartonella and babesia.
Read through the symptoms of each on page 26 of Dr B's paper...
The picture looks complicated when several infections are involved, which is common.
Keep treating and looking ahead. Someday you will post about how you are starting to feel better.
I thought that I would be the one who never felt better, but I did.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
I agree with Hambone on this one. My daughter took Xanax for a good while and one day she said to me that she hated taking it and thought it was actually making her worse...this is after she had been on it for a few months or so.
At first it seemed to be helpful...but as time went by she realized (thank goodness) that maybe it wasn't the right thing to do and went off of it very slowly.
She is much better for that decision. She had been on a lot of different medications like that and looking backing now, she feels they were a detriment all along.
She changed things around...does more natural things now and is doing much better.
She suffered horribly in her mind like you describe...did the Xanax serve a purpose?...maybe...but it is worth thinking about.
So sorry, It is difficult to be in the trenches.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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It could well be the Xanax, also the Lyme & Co. My LLND reminds me when I feel all doom and gloom that part of it is biotoxins in the brain.
It is helpful for me to remember this and to up my detox to help my body dump the toxins.
Here are a few of my doc's suggestions:
1. 10 drops Burbur (Nutramedix) 10 times a day.
2. Coffee enema or go get a colonic (she would say this should be number one!)
3. Baths with either 2 cups Epsom salts or 4 cups organic apple cider vinegar
4. Up whatever you are taking for binding (chlorella, cholestyramine, activated charcoal, etc)
5. Get to a sauna, if you can.
Of course, always, lots of water - add lemon.
I hope it passes soon.
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
I feel like that alot
4Seasons gave excellent advice
Exercise (if you can) does wonders
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I live this way. On the outside I look like myself, on the inside, don't know who I am, pretending to be me and wish I could end the insanity. pains in head, feel like brain is swollen, loved ones are strangers, home isn't home, nothing is important... I can go on. The day stems from my sleep. Wake up shaking and confused, the rest of the day is in hell and ocd/anxiety. Take klonapin to ease it. Its a benzo, but don't abuse it and it makes the day go fast. I too am tired of this and want to live again, this disease has a mind of its own.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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I know these symptoms well. A large part of my chronic Lyme is brain related issues and emotional issues.
I've had everything from panic attacks to such anxiety I could not stay in one place without feeling like I was going to jump out of my skin.
At times the anxiety would turn to rage, and at times tore apart furniture, ripped things off of walls, and said things I totally felt terrible for to people.
Then there are depressive thoughts, suicidal thoughts, feelings that no one "out there" understands the private hell inside....
And yet, inside, I knew none of that was "me".
My LLMD explained that these are probably symptoms of the brain issues with Lyme and co-infections.
I was given Xanax by my primary dr, and although it helped with the anxiety and insomnia, it made my depressive thoughts worse.
My LLMD suggested herbals, such as SAM-E; he does not like giving patients like me benzos or similar meds unless absolutely necessary.
In my case, SAM-E does help alot.
I also try to have a daily routine of exercise, getting outside into fresh air and sunlight, and generally telling myself "this is not me, this is the Lyme" so I don't feel so crazy.
I do this even when I don't feel like it, because that is when I need it most.
Hang in there.
-------------------- The Bite: July 1995 Next 13 years: Treated for things I didn't have Symptom total: 45 1 faint Lyme IgM May 2000 5 More negative tests IGeneX says YES! 3/16/09 Finally feel human: 2012 Posts: 120 | From Plainsboro NJ | Registered: Feb 2007
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