posted
I'm so sorry! Do you want to share more about what is going on so we can support you?
Posts: 376 | From New York | Registered: Jan 2011
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posted
Are you treating parasites? It's the full moon and parasites are more active, so if you're flaring up during a full moon, I would consider taking something for parasites.
Hang in there, and keep treating!
(moving to general support)
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
So sorry Saved. I have had the same for days now and probably feeling the same way. I keep telling myself that it will get better and just taking one moment at a time.
I was not bedridden before the treatment and I am now. A bit disconcerning but I know that it will bring me to the health and life I want back. So I will embrace the soft pillows for now because I know I will complain about the job and crowded buses once again when I am well.
Think of only beautiful things, take a deep breathe and watch a few episode of I love Lucy!
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Great advice, ann! I tried to think of it as childbirth. I had to go thru the pain to get to the happy.
That is said not to minimize your pain in any way, saved. It's just that we know the pain and understand what you're going thru.
I'm sorry you are having such a rough time. Hope you get a break soon.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
Does your LLMD allow you to cut back on abx if the herxing gets too bad?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
I CANT TAKE ANYMORE!!! My exact words yesterday. Honestly I knew I was dying and cried all day. Just began doxy only been two days and my lyme symptoms are so much worse plus the no sleep and nausea..Can't eat so weak. Is it the meds or herx? I think its to early to herx.
I have no advice but I sure know what you mean..
hugs, phyl
Posts: 1058 | From VA | Registered: Oct 2010
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posted
SAVED, " I can't take it anymore!" I seem to be saying that at least 5 days per week also. I've been on Doxy for almost two months with no results. Muscles getting weaker each day, the brain even hurts. The waiting for an LLMD seems forever. Neck can't hold up head for very long. Only way to sleep is with a cocktail of sleeping aids each nite. I know this is all no help to you, but just so you know you are not alone!
Posts: 348 | From MA | Registered: Dec 2010
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Camp Other
Unregistered
posted
saved10,
Sorry you are having such a tough time.
How long have you been on treatment or this particular treatment?
Do you have an LLMD and have you been able to talk to them about how you are feeling? Usually they will give you something to help with the herxes, if that is what you are experiencing - or tell you to change or back off on your meds for a while.
Know that whatever the situation is, people are there to help you and offer advice.
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