posted
I feel mixed up with all the meds/herbs people are sharing that help. I don't know where to start. Confused now. I don't trust the Drs.
Help?
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
I am in the same boat..so of no help but so understand. The doc I was seeing told me this week, nothing you can do for chronic lyme. Abx may give you spells of remission. I have such a time taking them I didn't question.
Oh, what to do?? I hope you get answers .
Posts: 1058 | From VA | Registered: Oct 2010
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Remember to Smile
Unregistered
posted
There ARE several clear protocols to focus on. I'll list what I understand to be the very most successful approaches for bringing & keeping Lyme patients into long-term remission of all symptoms of dis-ease.
Note that it seems our Medical forum has been particularly wild with a blip of extra stress, probably due to a lunar eclipse (seriously) followed by annual holiday season stress, seasonal affective disorder, AND the huge, criminal mis-information campaign of the IDSA, neurologists, insurers and big pharma.
For a functional compass in the storm, remember to check your sources of info. Like you, I'm a patient in treatment for Lyme disease, not a healthcare professional. I have a science background, though, and that's been a huge blessing.
In the Lyme Wars, here's a short list of Lyme Saints whose renown will outlive their descendants:
* Dr Joseph Burrascano, Jr of ILADS. Print this LLMD's Oct 2008 Treatment Guidelines (16th edition). Put 'em in a 1-inch 3-hole binder with 5 dividers, and read a bit each day if you're able. Start on Pg 27. Do what you can. Avoid anything he says to!
* Dr K of WA and world renown. He still sees patients, so we don't spell out his name. His excellent protocol is also available for free download. So, get a second binder for Dr K's extensive protocol. His is a quicker read (layout looks like slide presentation), but more extensively holistic. Just consider doing a couple things from his first few pages for now.
* Stephen H Buhner, author of Healing Lyme. His intro chapters offer an excellent orientation! Don't implement herbal treatments without professional help or a complete understanding of his whole book because herbals are powerful medicinals, too. -- Read this book. Then, re-read it.--
* Pamela Weintraub, author of Cure Unknown. -- Read this book. Then, re-read it. --
* T. Colin Campbell, PhD author of The China Study: The Most Comprehensive Study of Nutrition Ever Conducted and the Startling Implications for Diet, Weight Loss and Long-Term Health. -- Read this book. Then, re-read it. --
Those 3 books are available thru your local library system.
Many other complimentary and alternative therapies have eased the suffering of thousand of patients with CLD. My list above may omit some things, but just trying to distill it down for HorseHelper & phyl.
posted
I have only used antibiotics, a multi vitamin, low sugar, no caffiene, no white flours and a probiotic. I am 80% better after 1 1/2 years. I tried the supplements, restrictive diet and antibiotic route but it was too much for my stomach. Now just my daily meds and a good diet, even though I cheat sometimes.
It does seem to be very individual but I love my doc because he starts with one antibiotic, stays on it for months then see where we are before adding or changing anything else. He always wonders how the other docs know what is working and what is hurting if you start with so many things at one time.
My doc is good. Use to be President of Ilads
Posts: 303 | From green bay, wi | Registered: Mar 2009
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I needed your help!!!!!!!!! momofthree, I'm gonna try this.
REMEMBER TO SMILE, OMG, the info---= thx!!!
PHYL, bless your heart! Hope you have a fine day.
I'm going to Dr. 2:30 and I'm so scared! Last wk. she told me I had a problem w/lyme. Now we'll see what we'll do about it!
Gluten free diets, hum..... that's what these forums are relating.
Trying to cut way back on goodies! Besides, at 52 I don't want to blimp out! I love walking my big ol 103# lab. He just pulls me around the neighborhood. I don't think he realizes I have LYME !!!! HA HA HA HA HA LOL
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- HorseHelper,
You say you don't trust doctors. Well, find one whom you can trust.
Find an ILADS-educated LLMD or LL ND (naturopathic doctor).
This will still require a lot of self-study and self-care regarding nutrition, etc. but it's nearly impossible to figure this all out on your own.
Find a good LL doctor. One who is ILADS-educated, aware &/or member who keeps current with other LL doctors' research and findings. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Thx. I guess I've worked with many Dr. in my life and I know how most work!
My Dr. I have now is compassionate and experienced, I asked her. My spouse was curious about this. Glad I asked.
I believe I'm in good hands.
She mentioned IV port if these meds are not effective. I'm glad she desires to work with me, but she's also aware of the knowledge I have about Lyme.
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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posted
Right now I'm reading "Cure Unknown". I love it! I just picked it up and the reading is awesome! I saw it at Borders and was drawn to purchase it. I'm reading it slowly because I want to soak it in.
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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