posted
Got back from Docs. I have Borrelia, IgM. But she and I believe I've had it for some time. I broke down in the office. She's really nice! Thank God!
I feel I may have a law suit. 2003 I tested equivocal and was never followed up on blood tests. I was very very ill that l l/2 yrs. I worked in that medical office with patients.
I asked Dr. today why I wasn't given anything. She said some Dr. don't do anything! I said, don't you think I should of had follow up blood work, she agreed!
I was never granted FMLA, I was denied! Now this is a huge issue. If I let it go I feel that only opens a dr. for other docs to be neglectful also.
This is wrong and I suffered. I remember in 2003 getting retested for Lupus and MS because of all the symptoms. I knew something was wrong!
Now I know, Lyme!
I am going to be persistant. I will make it my job if I have too. I'm self employed with singing/entertainment and set my own hours. I have the time, I am pursuing it.
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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You probably won't get far with a lawsuit. They don't recognize Chronic Lyme Disease as real, so if what you have isn't real, you can't be sick. But, I wish you luck, you may open doors for others to get diagnosed if you are successful.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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I hope you can nail someone with this.. but it's pretty hard to do since we have the IDSA guidelines to deal with.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
When I tested positive I was leaping for joy. My husband was shocked, asking why I was so happy to be sick. I said I felt vindicated. I am not crazy. This is real.
You probably won't get far with a lawsuit. Otherwise we would all join you! The CDC says lyme is cured in 3 weeks of abx and anything else is unrelated.
So after your three weeks of abx, your remaining symtoms will be diagnosed as something else - try not to get too aggravated.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
All too many of us have fallen through the cracks while trying to get a proper diagnosis.
Rest assured that at the very least you have a lab diagnosis, something that has eluded many of us.
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
Ummm...I talked to lawyers too, and the situation is this...YOU have to prove that the Dr./Dr.s intended to do you harm. If it isn't intentional by the doctor/s you will have no case. If you do have proof that it was intentional you will probably have no case either because the court will require professionals (ie. other doctors) to back up your claim in court and doctors stick together because it could be their butt on the line one day.
The burden of proof is on you.
Sorry to tell you this, but I just wanted you to know what you are getting yourself into.
Many of us on here have been grievously wronged by the medical profession...I have not heard of anyone having a successful lawsuit.
Sue
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
I might agree on all above comments, but neglect is my issue. I tested positive and NO repeat testing was suggested. Now there is a real problem there.
Had the Dr. did his job, I could have been immed. treated and been better. Now the damage to my body is there.
Thx. though. I'm a fighter and a writer! If I have to, I'll take it to the news, it won't be the first time! I'll cause the trouble and blessings for all Lyme sufferers!!!
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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posted
Oh, forgot to say. After eight years I still have the pos paperwork. You see, I worked with this Dr. and he also was my dr. I have the proof.
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Horse Helper, I love your fighting spirit! Wow! You're super...before long you'll be a little acivist just like the rest of us. Hehehe. Go for it, I say. Be careful not to let it consume you. My LLPA told me this himself......
Join me for coffee in the Activist lounge any day! I love to rant about the Lyme lie. I don't blame a one bit for wanting to pursue this. You have a right to your feelings.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Thats the purpose of the goofy side of this. IDSA says this is standard of care,,,all else is wrong.
Guess which side they clamour to. For defense of such claims, they make this hard for all.
HOPE your pockets are deep and your mental wares deeper. They just wear you down.
You have to PROVE they didnt follow standard of care,,,darn near impossible with this no matter how you feel. Frustrating I know,,,me too!!!
We have all been there,,,acceptance is a grieving stage. We all grieve to be our former selfs.
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
I think you can only pursue for a lawsuit, seven years back and then your window of opportunity closes. It could differ from state to state, don't know, but that is how it is here I am pretty sure.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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I don't want trouble, I want REVENGE!!!! Kidding just a little!
The stress probably isn't even worth it.
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi Horsehelper,
I noticed on the God Thought thread you said your Dr plans doxy for 10 days and if ineffective, an IV port....
Doxy requires much more than 10 days to be effective for chronic lyme. It is usually used in combination with another med(s)too.
Treatment is usually measured in months and years, so be patient.
The biggest mistake I made was expecting too much too soon, when I had been infected for many years.
Do you have a Lyme literate MD who follow ILADS guidelines?
I'm going to include some links you can read when you get a chance, in case you haven't seen these yet...I already gave you the link for "Advanced Topics in Lyme Disease", but I am repeating it here...it's the first one...
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Thx. Dek, I already know not to expect a fast cure.
I've read so much lately, my head is congested with information.
What is ILADS mean? This i've seen in forum but I keep reading over it.
thx.
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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posted
Dek, Pharmacist and I agreed, why only 10 days? He said 28 days trtment. I'm too sick and frustrated and everything to look all around the freakin state of Ohio for a Dr.
I've crid so much yesterday and today, my friend died and this stress is horrible!
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
ILADS = International Lyme And Associated Diseases Society http://www.ilads.org
These are the good guys!
So you only have 10 days of doxy?
Have you posted in seeking a doctor? Sounds like you will need a better one.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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posted
You are readin my mind. Just posted the seek Dr. forum. This place has got some smart, knowledeable folks. I'm getting there real soon!
Pharmacist agrees too, 28 days, not 10.
Going to ask Dr. Mon if she follows the ILAD guidelines.
Does everyone detox. Read all the info and there seems to be alot to do and alot of purchases to be made.
Gosh, can't wait for disability. Looks pretty good for me getting it. I filed 18 months ago.
Thx. momlyme. Love your PC name!!! Cute!
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Your Dr probably follows IDSA (Infectious Disease Society of America)guidelines.
They believe in only 3-4 weeks of antibiotics and then you are "cured" even when all your symptoms remain.
Can't speak for everyone...whether they detox or not, but many do, in some way.
There's so much to learn, it's easy to feel overwhelmed.
Just take a deep breath and keep reading when you can!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Great! I'll breath now! Well, I'll call Dr. Monday to ask why ten days only.
So in other words, following IDSA is not really benefical to US, right? Lyme Dr. is the best.
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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posted
One other remark, My concern: when she retests and it's neg. I already know from what I've read, this could be "poppy ****"! Ha!
Your thoughts................
-------------------- I'm glad to know I'm not alone Some peace of mind I somehow find Through folks like you with Lyme! Posts: 240 | From An infected state | Registered: Jan 2011
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