-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Yes Just Don. I agree.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Trying to understand why Keebler was asked to not post so many links. Was there a rash of newbies complaining about this on a continuing basis?
We have been blessed to have a Teacher, Professor, Journalist and most helpful educator on board here. It took me yrs to surf the internet to find this kind of invaluable information.
I would rather have many links to sort through and decide what will help me the most than not to have choices.
I have had the worst neuro/brain fog in the world, and I would still want to have as much info as possible to chose from. Lets not "dumb down " valuable information and give the newbies the option to make their own choices.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Yes, I was wondering why this was a problem.
And if these links are meant mostly for newbies, why not post them at the top of seeking doctor forum as a sticky? So, then newbies would get a start, hopefully get help finding a doc, then later if they had more questions, could consult the very long newby links elsewhere.
So, my suggestion: Post keeblers links as a sticky at the top of seeking doc forum, and call it something like "getting started."
Basically, what she is doing with the links she has listed on this thread is boil down to the basics. Chapter one. Chapter two is the already existing newby links on anoher forum.
Posts: 8430 | From Not available | Registered: Oct 2000
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quote:Originally posted by lou: Yes, I was wondering why this was a problem.
And if these links are meant mostly for newbies, why not post them at the top of seeking doctor forum as a sticky? So, then newbies would get a start, hopefully get help finding a doc, then later if they had more questions, could consult the very long newby links elsewhere.
So, my suggestion: Post keeblers links as a sticky at the top of seeking doc forum, and call it something like "getting started."
Basically, what she is doing with the links she has listed on this thread is boil down to the basics. Chapter one. Chapter two is the already existing newby links on anoher forum.
We are going to do that. That is what we asked for her input on...... See what LouB said as the reason.
--(also see what Six wrote above)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Sorry, I was gone most of the day. It's late now, I hope to get to this tomorrow. I do plan on compiling them into a sticky, but I want to do it when I'm fresh. Good night, all.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Glad you are back Keebler!!!
I also LOVE our moderators. Thank you ALL for all of your hard work!!
Keebler, I really like the way you post your links.
If we could vote on this issue, I would vote that Keebler keeps posting like she has been. She is a great help to others.
Just my opinion.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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daisyrlb
Frequent Contributor (1K+ posts)
Member # 15686
posted
My hat's off to the moderators.
You all are amazingly committed spending your valuable time helping others with invaluable information...life changing information actually.
As I read the posts something caught my eye. I noticed the moderators posts are not counted.
Keeping that in mind something else caught my eye as I read the posts, there is only one person on this thread who has "10K posts".
There are several in second place with "5K posts".
posted
SGK I am sorry to have brought up BettyG and Wildcondor.
I do not know all the details behind what happened in those cases, but I do know that there was a falling out which caused them to be banned and/or opt not to return.
Regardless of what happened, they are no longer here and it is a loss to this forum.
The thought of losing Keebler was very disturbing to me which prompted my post.
I do appreciate that the mods are UNPAID VOLUNTEERS and spend a lot of time on the boards helping many people.
And touche, SGK, you are absolutely right. Some do jump on the moderators and it is disturbing that when you all asked for more moderators that no one stepped forward.
But at the same time the mods ought to make note of the opinions of the lymenet posters.
As for me, I do agree with Gael. I too do not understand why Keebler was asked to not post so many links.
During my darkest days I researched everything I could get my hands on. I depended on the kindness and knowledge of strangers like Keebler.
It is quite wonderful and unique to end up on a forum like this where you can ask a question and someone you don't know kindly responds so quickly with information and links that it would otherwise take you weeks/months/years to find.
That is what Keebler has done. She has provided a service that NO ONE else here has. Why should the way she provides invaluable information change?
I would hope that lymenet recognizes all its assets, especially the people who have provided the most value to its members.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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That's quite a tribute to Keebler and all she has done here!
Looking through all the extended posting that Keebler has now made for us re links for newbies, I think there is so much good info there that it is best as a sticky at the top.
We who help give referrals out should know about referring to the sticky, then.
Or anyone who doesn't send a referral to someone seeking a doctor could still tell someone to look at the sticky.
Or maybe it could be included as part of littlebit's message, since she responds to everyone seeking a doctor I think?
Posts: 13171 | From San Francisco | Registered: May 2006
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Good news and bad news. Ever since I had Lyme, my left shoulder has been locked up .... my shoulder blade has been locked down. Well, yesterday I got adjusted and then did pilates. After a few years of limited mobility, my shoulder seems to have unlocked. I thought this shoulder limitation was permanent damage. There was no pain, just limited movement.
The bad news is my muscles are very upset about it and I am in a lot of pain from it. I am getting a massage later because my massage therapist has seen this coming, he has mentioned to me that it had increased mobility, so I'm hoping he can help calm down the muscles.
I do plan on taking care of the links, but it's not looking like I can today.
I agree with almost everything that has been said on both sides.
Keebler is a tremendous asset to the board. Her links are always relevant and helpful. I've often wondered myself how she constantly puts all this information together for people.
I plan on putting some time into organizing the top of seeking a doctor and using her links in a way that is helpful to new members. As many people who post here, we also have at least that many who don't and only read, so I think we will reach even more people this way. But since I can't do it today and since our weekends are always crazy busy, it will be next week.
Also, she has not been asked to limit her posts elsewhere. The idea was to keep the seeking a doctor forum simple, just doctor recommendations. Their questions about diagnosis, treatment, misdiagnosis, etc., can and should be covered in medical where there are more of us to answer them.
We do listen to people's suggestions ..... but not really when they're on the board in the form of complaints. If you have suggestions, please either report a relevant post because that goes to all moderators, or PM one of us with it and we will talk about it.
Maybe as a compromise, those who regularly send out lists in seeking a doctor can encourage the newbies who post there to post topics in medical questions and we can all give more detailed responses there.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Many people do an excellent job on this board, but I have always thought that Keebler was the MVP. What I wouldn't have given to have received so much valuable information from one source when I was first learning about Lyme! Please let her keep doing what's she been doing.
-------------------- IV graduate. As of 1/10, oral Omnicef, Minocyline, Mycobutin, Levaquin, and Flagyl. Lyrica and a bunch of supplements. Posts: 123 | From Atlanta | Registered: Mar 2009
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posted
Six, glad your shoulder is better, massage seems wonderful helps:-) As for Keebler, I just don't understand how links may be a problem, thos who don't want to check them just won't and that's it... we want Keebler back the way she is!!!
Posts: 723 | From Montreal | Registered: Oct 2010
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Thanks, Shahbah, mobility is better, but I'm in a lot of pain. It has me pretty incapacitated today. All I can do it sit here until my massage at 1.
Keebler is going to keep posting same as always, the only change is in seeking a doctor. Everything else is the same. We're having stickies put at the top of seeking with her information so anyone coming to the board can see it. Please read my previous post. I don't understand the uproar about this. Same information, better setup, no changes except for seeking a doctor.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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