posted
Immunesupport.com ProHealth is the largest site that donates the largest contributions to the CFS world. They have their own vitamin shop which has very clean items and also carry the same stuff for lyme. They do have a small lyme board but not very active.
Some people their get very upset when you suggest their CFS is Lyme. I was there for 20 years and it did help me get through. Then I was CDC lyme pos and moved here ...LOL
Posts: 871 | From orange county, ca. | Registered: Jan 2006
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posted
A good CFS forum? That would be here. A second choice would be prohealth.
There's a lot of good info on prohealth including research on CFS, Lyme/cos, XMRV, methylation, mold.
But the message boards there leave a lot to be desired. The LD board is not active despite efforts from a couple of people.
The CFS/Fibro board is dominated by a few who have completely dismissed the fact that there could be an infectious cause to FM/CFS.
There are some there who are so resistant to the idea that their "disease" could be due to an infection and unfortunately their opinions dominate.
Many people left that board or were banned b/c they suggested that Lyme/cos could possibly be a cause of CFS/Fibro.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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posted
Yes, kday, phoenixrising is a great forum. Forgot about that/thx for the link.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Thanks for the great suggestions! I will look into them. I am just trying to get at this Lyme from every direction, and I want to see what suggestions I can get on a CFS site in terms of healing from chronic illness.
I will be wary of being banned. My goodness : )
Posts: 636 | From Saratoga County, NY | Registered: Apr 2008
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But if you've tested positive for Lyme/cos and negative for any other pathogens (viruses and XMRV, namely), my opinion is that Lyme is the angle you should approach for the time being. If Lyme treatment fails, then you need to see about ME/CFS treatment options.
Posts: 340 | From san francisco, ca | Registered: Nov 2010
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