They all three seem to be connected. They each burn at the same intensity at all times.
For example, if my brain burning dies down, so does the back burning and abdominal burning. If one or the other is kicked up 50 notches, so are the others.
All this burning is soooo painful and just sucks the life out of me. The more I burn, the weaker I am.
Is this a Lyme thing? Because I swear it feels like I'm being eaten alive by an aggressive cancer or something.
And, yet, there are some moments it is almost gone and I am almost pain free. It never lasts, though. Always comes back. Posts: 1142 | From South | Registered: Dec 2010
| IP: Logged |
lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
It sounds like Lyme related or medically induced Peripheral neuropathy.. Are you taking metronidazole, this can be a side effect of the medication.
Nerves can heal themselves with treatment provided permanent damage hasn't been done.
Lyme disease is a bacterial disease characterized by extensive peripheral nerve damage. It can cause a wide range of neuropathic disorders, including a rapidly developing, painful polyneuropathy, often within a few weeks after initial infection by a tick bite.
Some neuropathies are caused by inflammation resulting from immune system activities rather than from direct damage by infectious organisms.
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
| IP: Logged |
Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
quote:Originally posted by lululymemom: It sounds like Lyme related or medically induced Peripheral neuropathy.. Are you taking metronidazole, this can be a side effect of the medication.
Thank you lululymemom.
No, I haven't had metronidazole yet.
I've had this burning way before I was diagnosed and started abx's.
Some days it's so bad, I find myself moaning in pain without realizing it. Then other days it's barely there.
Posts: 1142 | From South | Registered: Dec 2010
| IP: Logged |
lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
If it comes and goes, that is a good sign that it probably isn't anything permanent. You really should post this in Medical questions, I think you would get alot more responses there.
posted
I don't think I've ever had those. I had something that was like bees buzzing in my head when I used to feel vertigo attacks coming on. That would be accompanied with a churning sensation at the base of the skull where it meets the neck, then extreme pain from vertigo sensation. This was worst pain, have to go to hospital lasted a few hours I think. Could happen at any time but full blown attacks always came near 6pm for some reason. Probably because that is when my muscles had be used the right amount of time to cause them to spasm.
Posts: 136 | From arlington, VA | Registered: Jun 2010
| IP: Logged |
desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Yes to the burning in my brain!!!!
It is like a flush of burning and is worse when I am outside in the cold or exercising.
It is hard to describe but more like a flush of interal burning in my head. To me it feels like it is in the arachanoid layer of the brain - just my gut feeling.
I also have horrible scalp pain that hurts down to my skull. Sometimes it burns and sometimes pins and needles..Any idea what bug might cause this????
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
| IP: Logged |
posted
I have the upper abdominal and back burning. the ab. feels like it's from my stomach to my liver, and my back feels like it's from the kidneys and sometimes spreads upwards. For me it's always going.
Certain meds/supplements, and food can make mine worse. It's the symptom that has me not able to treat at all right now.
Posts: 857 | From northern california | Registered: Dec 2009
| IP: Logged |
Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
Thank you for the replies.
Woweeeewow...today my insides felt like a grease fire.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/