Topic: How Many Feel They Can't Take This Anymore?
phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Sorry to be negative and depressing but there are days I feel I can't do this anymore. Hanging on the the thought this will take a week or more of rest then I will feel somewhat improved only for it to return.
Its the horrible head feeling, depression and this crying..
I see no end in sight, and I haven't even started treatment yet? Oh, anxious to hear from the lyme doc tomorrow night.
Thanks needed to vent.
Posts: 1058 | From VA | Registered: Oct 2010
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posted
I totally understand where your coming from.. Some days i feel the same.. I guess thats the main thing we all have in common... its a process but we will certainly see the light at the end of this dark hole... keep strong your HAPPY DAY shall come
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Totally. It's suffering, plain and simple. You'll get a boost after seeing the doctor and the suffering will alleviate, but the pain and symptoms won't until actual treatment takes effect.
Long term experience + countless other patient reports equals a relatively common thread that doesn't deviate much in this respect.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
3+ years now....no happy day. I guess it comes for some.
quote:Originally posted by Nicole2011: I guess thats the main thing we all have in common... its a process but we will certainly see the light at the end of this dark hole... keep strong your HAPPY DAY shall come
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Seekhelp- Your day will come! Everyones day will come... Thinking negative only makes it worse
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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posted
I can relate! So you will hear from your Lyme doc tonight. Will you then know what kind of treatment he wants you to begin and when you will be starting?
Posts: 21 | From Indiana | Registered: Mar 2011
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Indy, its tomorrow night I will have my first phone consult after my first visit 2 weeks ago.
I am hoping to know exactly what is going on and a treatment plan.
I have been sick for over 11 years and just getting dig. What bothers me the most are these sinus like infections and this vertigo, depression etc..
Thanks for all your replies. Back to bed I go.
Posts: 1058 | From VA | Registered: Oct 2010
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posted
I have some vertigo but not much and fairly mild. My main deal is awful pain and tiredness. I'm getting a PICC line put in tommorrow because I will be starting iv ab's for about 3 months. The 3 months of oral ab's didn't cut it. So keep me posted after you talked to your doctor. Hoping you get the help you need soon. 11 years is a long, long time. I was only two years getting diagnosed so I guess I should be grateful.
Posts: 21 | From Indiana | Registered: Mar 2011
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HOPEFULLY...WE'LL ALL CLIMB OUT OF THIS...ONE DAY!
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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posted
Count me in! 14 months into treatment. The emotional and neuro symptoms are the worst. Somedays just feel so hopeless and like I am swimming up stream in this battle for my health. I'm not sure I'll ever be all better but I'll settle for .... 80%.
-------------------- The earth is my altar, the sky is my dome, the mind is my garden, the heart is my home, and I'm always at home...
Eden Ahbez, 1908-1995 American Musician, Songwriter and Poet Posts: 4 | From Upper Midwest | Registered: Nov 2009
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YES, I feel the same way. When I was all excited about a new drug to hit bartonella, which are so bad, literally could not take the herx and quit. Totally feel like giving up.
Watching Dr. House last night - I actually envied people with life threatening diseases. Just to know either I die, or I get better would be way easier to deal with than feeling like life will always be: > too sick to get out of the house....with no relief in sight.
Posts: 348 | From MA | Registered: Dec 2010
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posted
Yes. I am sick of being sick. YEARS of this...I am OVER it. And, I am at the point where I just don't want to be herxing my brains out anymore, either. Bah.
Posts: 206 | From In the shadow of a mountain | Registered: Feb 2011
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i'm just getting to the giving up stage.
i'm so tired of not having a life. plus no support at home.
i'm not going to the er until i'm dead or in a car accident.
there has to be another way. i'm tired of "lyme will burn itself out", "there is no such thing", yada, yada, yada...
i've had it since 2006. way too long...
i just wonder where i am anymore.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
This too shall pass...I say this to myself when I get to the "giving"
up stage...which has happened many times over the last few years...
This is part of having chronic lyme disease...and why we are here to
help each other get through it...I can't stand even the thought of
another herx @ this point... I come here for answers and
support and to help when I can...this forum has helped me get
through so far...lyme sucks big time but I keep hoping that there
will be some breakthrough in research that will come in my
lifetime and expedite treatment...I cling to hope that I will get
better...when the going gets tough...the tough get going...hang
in there...this is the only real choice we have...
-------------------- "Gratitude is not only the greatest of virtues , but the parent of all others "....Cicero Posts: 254 | From new jersey | Registered: Jul 2009
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
When you are in the darkest of tunnels, it is hard to see a light at the end.
You may actually start to believe that there isn't one.
Hope is sometimes all we have.
Please hang in there. I remember those days well.
I made it to remission after 3+ years of treating.
Try to just get through one day at a time.
Try to find one thing to be grateful for.
Even if it is this site.
Sending you prayers for healing and sending you some hope.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Thanks all , sorry you too have difficult times , But thankful for the understanding. I try to take it one day at a time but it is so hard. Been sick for 11 years just dx in Oct. saw the lyme doc the 9t of March still no treatment. Waiting on more results from Igenex. I have almost decided to not do anything. At my age what's the use? Will wait and see what the doc says.
Posts: 1058 | From VA | Registered: Oct 2010
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I guess it comes for some.
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