janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
Hi all, just needed someone to listen as I've had about all I can take.
So sore from muscle cramps so increased the magnesium. I am just so distraught I can't explain it.
I've been crying all day since I know this is from the bartonella. Right now treating the babs, lyme and not much for the bart on using bactrim DS.
LLmd won't add bart meds because they interact with mepron, etc.
I feel like this will kill me. I know it won't but wonder when will all the symptoms go away? I only have a handful left and even those aren't constant. However, when they hit,,,omg.
Just needed to vent as I'm really on my last leg emotionally. night.
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
up
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
Oh, Janice, you sound like you are in a difficult spot right now.
I always gently remind my daughter to keep her eye on the prize, or the golden ring, if you will.
I have her imagine how she will be better one day and I have her think of things, or at least one thing, that she can see herself doing when she feels better. This gives her hope.
I also talk to her about her "happy place", a place she can sit quietly and imagine she is participating in...this takes some discipline and practice, but can be helpful...this gives her peace.
Oh, I am so sorry sweetness, it is a hard thing to endure, it is.
And if this note doesn't help, well you can know I am thinking of you.
Sue
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
Some days are very difficult. For me it is important to not judge myself on those days, and also to not think too much about the future on those days. I simply don't trust my outlook on my bad days.
Being sick is not a character flaw, but it is easy to feel overwhelmed and weak (physically and emotionally) when symptoms are flaring. I like the above notion of the "happy place," I do think it's good to try and get out of one's head on the bad days!
It can be tough to distract yourself when you don't feel well. I know when I am sick I can't enjoy my usual hobbies, and I can't follow plot lines if I try to read or watch a movie. I usually end up throwing in DVDs of stuff like "Curb your Enthusiasm" or other short episode comedies.
So I guess that's my advice, try and find some small simple distraction and wait until you are feeling stronger to think about the big issues. You'll get through tgis!
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
Dear Janice, I hope you are feeling better today. When you feel bad, take some deep breaths and feel good that you are getting help. So many aren't.
You are dear to lots of people. And you deserve to feel better and you will.
posted
Hope you feel better soon.
Posts: 7 | From Latham, NY | Registered: Mar 2011
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Hang in there.
Sending you prayers for healing and peace.
Call your LLMD if this gets too bad.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Sounds like you're feeling a little better, that's great!
Doing thinks that one likes to do sometimes help also----So go bake a cake!!!
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
Thanks all. I went for a walk. Last night took a flexeril to help with the cramping. Big mistake as I feel loopy out in la la land.
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I hope you feel better soon. You helped me during my rifampin craze and informed me it could do what it can do. You really helped and I hope you feel better soon.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
Thanks again. I'm smiling now. Feel so much better. It seems according to my symptom tracker that Sat/sunday are tough for me.
On those days, it's not babs symptoms which i thought at first, more like cramping calves, feet.
See my llmd on the 22nd.
Janice
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
If you're taking Mepron, you could be experiencing depression from the med.. Mepron blues are quite common, but if it gets intolerable you might want to go onto something else..
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