posted
Hey there, I have never posted on a Lyme Sight before. I had lyme for many years. After many years of suffering I found an amazing LLMD in MD. I worked with him for 2 1/2 years and was able to live a normal life for the most part but could not get off the MEDS. June of 2010 I started Advanced Cell Training. At first it was odd but I have had amazing results. I am finishing up with ACT very soon but this program really helpped me get to the "other side" of Lyme disease. I literally have NO MORE SYMPTOMS. I am so excited about finding my health again that I thought I would share this. ACT has a facebook page, any facebookers can just type in Advanced Cell Training in the search bar and look at their wall. I can't wait to scroll through this website to see what else is helping as we all strive to beat this somewhat unbeatable disease
** edited to remove doctor's city **
[ 03-18-2011, 12:23 PM: Message edited by: sixgoofykids ]
Posts: 17 | From Harrisonburg, VA | Registered: Mar 2011
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
You really should post this in the Medical Questions where more people will have access to this..
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
You must be joking. Seems interesting that your first post is about promoting this SCAM. Folks dont waste your time or money.
Posts: 3905 | From USA | Registered: May 2007
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posted
No I do not work at ACT nor have I ever met anyone who does. I have taken the ACT classes since June 2010 and am symptom free.
I am so sorry that there are so many still suffering from this terrible disease that can take our hope away.
With the nature of Lyme we have to fight against insurance companies, Doctors, well meaning friends and family as well as employers. It is important that we can find support for one another.
I had no idea that there was so much pain around the ACT classes. I was really excited to tell my story on here this morning and was shocked when it met such opposition. Some of the private messages that I received were very sad.
Regardless of what methods of healing we all explore I think it is important to respect each ohter. We get enough rejection from those who don't understand the lyme journey
Posts: 17 | From Harrisonburg, VA | Registered: Mar 2011
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"For those of you who don't know what Advanced Cell Training, or what it used to be called Immune response training is allow me to inform you. For a price you can join a group on a conference call with a group of others.
A man who's name I will not mention here, comes on the call and gives you a series of "codes" ( a group of numbers ) These codes are supposed to heal your body internally. Now I'm not here to tell anyone what to believe, or not to believe. Judge for yourself. This may go against forum rules, but I feel people should know all about a product before paying for it. "
-------------------- J Posts: 91 | From Northwest Indiana | Registered: Dec 2004
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
We've been around the block with this scam. Why did they have to change thier name? Because it is a SCAM and they were run out of business for that reason, so they reinvented themselves under another name.
Numerous, numerous people who were formerly told to do exactly the same type of thing this poster is doing (not saying that's her motive, but same M.O.) have come forward with horror stories of how they were manipulated, told to lie, even threatened and sexually harrassed by the people who run this horse and pony show.
This is what they do. They plant people on forums to say it worked like a miracle for them.
C'mon people, we aren't stupid. NUMBER ONE RED FLAG: The one hit wonder.
Anyone who joins a forum and in their very first post starts touting some bizarre form of treatment that cured them is full of it. No one does that! We join as scared, bewildered people looking for help, not to tell others about ridiculous sounding treatments.
If it worked, by now at least ONE LLD would be onto it. It's the biggest scam out there. I know SEVERAL people who were on the inside of this scam and I've been speaking out against it for years because I know the facts. These people were told to lie, were harrassed (as I was when I exposed it for what it was), some were sexually harrassed, etc.
This operation has been investigated by the Attorney General and is not allowed to use words such as "treatment" and "cure" EVER at any time. So what is it then?
A bunch of beeps and tones that are supposed to train your cells to behave. I watched the instructional DVD and could not believe any reasonable person could even fall for this BS, but then sick people are desperate people.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
By the way, these people STILL harrass me but I don't care. I'll never stop speaking out about a scam. If it were for real, they wouldnt' have to be harrassing me to shut up now, would they?
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Tracy9 Wow, Again I repeat myself. I am totally healed. I am far from one who has fallen pray of a scam. I hope someday you find your way back to total health. Lyme is a horrible disease without those who have fought it becoming angry and bitter toward those who attempt to share what has worked for them. Also prior to finding my way to ACT I had an amazing Doctor who helped me along the way as well. I found with many of the support groups I attempted that Lyme sufferers take on the identy of being a victim and being sick. Both are very dangerous forms of thinking. I am a pastor, a business owner, and mother of 2, married for almost 29 years. I am not a prankster just stopping in to get your blood pressure up. Again I repeat, I have NEVER met one person from ACT. Not one. I think you need to check your motives for attacking this group. I think they are much deeper than you feeling sorry for the ones who have fallen prey to a scam. I believe you have a personal agenda that you need to pray through. Bitterness and resentment will not help you are anyone else recover from this horrible disease.
Posts: 17 | From Harrisonburg, VA | Registered: Mar 2011
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posted
JACQI, Took the time to read through the link you posted for me. It seems that anyone who mentions ACT on any formum gets the same type of unfriendly responses as I have gotten.
As a matter of fact even though the user names are different it seems that the same person is writing all of the negative attacks on Advanced Cell Training.
Let me remind you, there are many people who have gotten better with this process, People who have resumed their normal lives. It doesn't matter to me if you do it or not. I think you are sowing seeds of contention that are unnecessary toward those who are truly trying to help desparate people. And the scam part. When I started ACT I could have gotten my money back after 5 weeks, every penny. I had seen enough positive movement that I wanted to continue.
I am reminded of a scripture in Acts Chapter 5:38-39 that I would like to ask you to consider.
Therefore, in the present case I advise you: Leave these men alone! Let them go! For if their purpose or activity is of human origin, it will fail. 39 But if it is from God, you will not be able to stop these men; you will only find yourselves fighting against God.''
Posts: 17 | From Harrisonburg, VA | Registered: Mar 2011
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posted
I would welcome a conversation with the Moderator over this issue. I have looked through many of the other posts on this sight. Does the moon effect how we feel, and many other ideas. None were met with the hostility that I have experienced over this one post.
I would love to discuss this in person with someone. Or on the phone. I am not one who will run from controvery or hide behind a made up screen name.
I will be open and honest about my experiences with lyme and how I have become a healthy functional person again.
Prior to becoming involved I ask my LLMD his opinion and he said that it made since to him how this could be a postive experience for me.
Now this is a man who is featured in medical journals and considered a leader in the fight against chronic infection.
If he didn't think it was a scam, I again wonder what is fueling your hostility against this group of people.
Posts: 17 | From Harrisonburg, VA | Registered: Mar 2011
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
ccar...You might want to consider the fact that Tracy9 is a very respected member on Lymnet and has a very stellar track record of being trustworthy and honest here.
We are not going to discount what she says and entertain the possibility she is being deceiving...so you have come up againt someone with a long standing reputation of goodness.
You also have to understand that the way you propose your "cure" is startling to us. We don't know who you are, have heard very little of your struggles, if any, have not heard any journey etc...so you lack credibility.
Sorry, if your intentions were indeed on the up and up...but even to me, a person who takes everything at face value, is skeptical.
Sue
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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quote:Originally posted by lou: Time for the moderators to ban this scam artist.
Lou, ccarr says he/she doesn't work for ACT. We don't allow advertising of your own business, but we do allow discussion of treatments that have worked for you. If we had reason to believe there was a financial interest involved, there would be banning. Otherwise, people are free to discuss their treatments.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
ccarr, why don't you explain the exact methodology of this treatment protocol? It's all well and good to say that it's great and it works, but those of us who have never heard of it don't understand the secrecy behind the treatment methods. When I google it, all I see are testimonials on youtube by people being interviewed by ACT representatives.
posted
Hey lululymemom, Thank you for your question. And momindeep I appreciate you mentioning that you don't know my story. I really want everyone here to understand that my intent when I posted was not to sell ACT or any other program. One of the things I found as I have walked through the lyme Journey since 1992 is there is a lack of hope once we have fought for so long. In 2002 my family began to come down with multiple random illnesses. Our family of four went from being high functioning over achievers to being practically disabled. My youngest daughter was the sickest. I look at picture of her when she was her sickest and I want to cry. Countless specialists over many years lead us to dead end streets. I remember once my daughter told me something bad was wrong and she was afraid it would be to late by the time we found out what it was. A series of miraculous events led me to discover lyme disease. Upon discovering what she, and ultimately we all had, I was thrilled to finally have a name. I was crushed to find out that I had found myself in the midst of a war. The Lyme war. From 2002 until Nov. 2007 I searched and searched with no answers. Finally in Nov 2007 I found a nurse practioner who was able to diagonse my daughter. She referred me to an amazing LLMD one state up from me. Within 4 months my daughter was symptom free and once again living life. We continued her treatment for 2 years, We were all treated from January 2008-June of 2010. It was at that time that I hit a wall. I was taking 63 pills a day. We were spending almost $1000.00 a month supplements, Meds, Dr. Visits. I was ready to get my life back. That is when I decided to try ACT. I could not even consider explaining the methodology behind the ACT program. Like I said, I have nothing in that fight. Didn't even know there was a fight when I posted. I was just thrilled that working with the ACT program helpped me to come off the meds and remain symptom free. I'm not sure why it was affective for me. This was the first time in my many years of illness that I spent several hours a week focused on recovery. I made the time I listened to the CD's a time of prayer and meditation. I belive in the power of prayer and it was a crisis of faith when I had prayed for so many years, yet still suffered. I don't know if it was the codes, the prayers, the music, or just the hope that got me over to the other side. Maybe it was just me getting to the place that I believed I was going to recover. To everyone who has struggled with my presence on this sight I want to tell you, I only pray for all of our recovery from this horrible disease. If you have had a bad experience with ACT then I want to stand in prayer with you as you search for what will work for each of you. My first support group I was welcomed by a group of people who had settled in their heart that they would be sick with Lyme the rest of their life. I never returned because I was determined to beat this horrible disease. Please rejoice with me. I have my life back. Whatever works for you to get your health back, I will rejoice with you as well.
Posts: 17 | From Harrisonburg, VA | Registered: Mar 2011
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posted
Note how in the testimonials for these scams, they never tell you what the treatment includes or how it works.
For an interesting read, check out 60 Minutes's piece on 21st Century Snake Oil.
Posts: 340 | From san francisco, ca | Registered: Nov 2010
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posted
5Vforest, I have enjoyed reading through some of the past posts on Lymenet this afternoon. I have enjoyed the testimonies of many. I have enjoyed the freeflowing interaction between lyme patients as they discussed how the moon affects their health, the green lazer light helped them sleep, etc. Not one time did I see the word "SCAM" attached to any of these freeflowing ideas. Again I ask, what is the trigger here concerning the part of my story where I said ACT helped me? Why are all the other ideas that might be alternative, or progressive, or even down right strange met with the utmost of respect. I would Love to understand. Again remember, I'm new here. So I'm just a little blown away by the welcome that I have been shown.
Posts: 17 | From Harrisonburg, VA | Registered: Mar 2011
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Ccarr, I think it's great that you and your family have your life back.
You still weren't able to even remotely answer my question. I mean if I were doing something like hbot therapy I could at least describe what it involves. Not looking for scientic explanations just a general idea.
Why did you continue treating your daughter for 2 years if she was symptoms free after 4 months?
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Momindeep, thank you so much for your kind words.
I am ignoring the poster... she has contradicted herself now so many times. Now she has posted her entire "testimonial."
She has also psychoanalyzed me, and said enough for me to know if she ISN'T the main person who stalks me, she is one of their gang. I am frequently accused of having multiple aliases, trashing them on many boards, and having a personal vendetta. She just laid out all of the things the stalkers of ACT accuse me of all the time when they manage to hunt me down. I have them blocked all over FB and Lymefriends so they have to get creative now. I have no doubt now who she is...or who she is associated with.
The best thing to do, since she isn't breaking any rules, is not to engage her. Just ignore her. She may quite possibly be someone who has been banned from here multiple times and keeps coming back with fake names and fake stories. That's my guess, especially based on all the old familiar accusations.
I'm not concerned about it. I don't think many reasonable people fall for this scam, and I'm certainly not worried about our Lymenetters. Way too many seasoned eyes and ears here to let a scammer set up shop.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
ccarr said:
"I could not even consider explaining the methodology behind the ACT program."
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Tracy9 and lululymemom, my daugher was under the care of one of the leading LLMD's in our nation. Since she was misdiagnosed for so many years we treated her past the time that she was able to resume her normal activity. I did not go into detail on my ACT experience after it pushed so many hot buttons with you because I have not found defending any particular experience as productive. It is totally fine for me if you don't like or subscribe to ACT. Like I said, I don't have a dog in that fight. If people experience healing from something that doesn't work for us, we just rejoice with them and continue to look for what will help us. There were a lot of steps in my healing. I am sorry Tracy9 that you felt stalked by my recovery. I continue to pray for yours.
Posts: 17 | From Harrisonburg, VA | Registered: Mar 2011
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Well I can see treating for 2 months past being symptom free but 2 years seems a little excessive to me, especially if you were treating with antibiotics...
I think you are a first on this board (that I know of) that has gone to that extent to insure remission.
posted
ccarr, You are quite mistaken with your opinion that "there is a lack of hope once we have fought for so long."
On the contrary, many here who have "fought for so long" -- are that much more determined to get well.
Oh and another thing, many/most here have been around the block a few times. But I imagine you've reached that conclusion by now.
And FYI, many on the board who have already achieved wellness have returned to support the rest of us who are still fighting to get ourselves and our families well.
There IS ALWAYS HOPE. And that message has ALWAYS been on this board.
If the membership here were a bunch of debbie downers with no hope, how long do you think this site would have lasted??
So many here can relate to your story of hitting a wall, taking dozens of pills a day, spending inordinate amounts of money on doctor bills.
But, $1000/month isn't a lot to be spending on treatment for a family. In fact many, including myself, would consider that a downright bargain for supplements, meds, doctor visits for a family per month.
Suddenly you decided it was time to get your life back after years of illness? That's been on my to-do list since day one when these DDs entered our lives.
Voila, ACT was what helped you achieve that goal.
Hmmm, if that's what worked for you, I'm all ears, having been working this long to get my and my family's lives back.
But I'd sure like to know the methodology and science behind this program. I just want a basic explanation.
Because you can't "even consider explaining the methodology behind the ACT program" perhaps you can find someone who will be willing to do that?
And I'm especially interested in hearing how ACT helped you come off meds and remain symptom-free. You're "not sure why it was 'affective' <sic>" So perhaps someone else could explain that on your behalf.
You say:
"This was the first time in my many years of illness that I spent several hours a week focused on recovery."
I say:
Really? It never dawned on you to focus on recovery during your years of illness? When you get sick with anything, isn't it a natural response to focus on how to get well? Or do people make a conscious decision to just be the best damn sick people they can be?
You say:
"I made the time I listened to the CD's a time of prayer and meditation. I belive <sic> in the power of prayer and it was a crisis of faith when I had prayed for so many years, yet still suffered. I don't know if it was the codes, the prayers, the music, or just the hope that got me over to the other side. Maybe it was just me getting to the place that I believed I was going to recover."
I say:
Are you saying that the folks here
1. are not focused on recovery 2. don't pray and/or meditate 3. don't believe in the power of prayer 4. have not yet achieved wellness because they don't know the "codes" or haven't listened to the "prayers" or listened to the "music?" 5. don't have "just the hope" to get to the other side?
and perhaps most offensive of all to me anyway,
6. that we haven't gotten to "the place that I believed I was going to recover"
I cannot speak for anyone else here, but I have always been at "the place that I believed I <and my family> was going to recover"
For someone new you sure do have a lot of preachy advice to offer that you've yet to back up with any facts despite numerous requests.
You can continue playing the poor misunderstood victim of the mean, close-minded, recovery-less, hopeless, prayer-less, music-less, code-less, ACT-less people on lymenet.
Just know that you will be called out on it. Like I said earlier, folks here have been around the block a few times.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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Keep in mind that sometimes it's useful for people to read this stuff.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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posted
Wow AlanaSuzanne, I could not ever say that the people on here
1. are not focused on recovery 2. don't pray and/or meditate 3. don't believe in the power of prayer 4. have not yet achieved wellness because they don't know the "codes" or haven't listened to the "prayers" or listened to the "music?" 5. don't have "just the hope" to get to the other side?
and perhaps most offensive of all to me anyway,
6. that we haven't gotten to "the place that I believed I was going to recover"
I don't know any of the people on here. Nor do I feel qualified to understand the methodology behind a program that I have no direct involvement with other than that of someone who has participated in the program. Again i have to ask, what is the real issue here. I have been all over this website today. No one treated the person who said they got relief from a green lazer light, or massage, or Craniosacral therapy, or the multitude of other healing tools the way this group responded to me today. What is the real underlying issue here. I realize many of you have been around the ole lyme blog block a time or to, but what does that have to do with anything. I don't get the heart behind this dialog today, but don't really think it is helpful for anyone. If you or anyone here wants to know any thing about ACT contact them. No one ask the people who discussed the other many healing methods to scientifically discuss the methodology behind the therapy. Check out your own blogs, check out how you respond to any other healing methods. What is up with that. I think it is time to step back and reevaluate what is driving this anger and resentment. It surely can't be one statement made by me
Posts: 17 | From Harrisonburg, VA | Registered: Mar 2011
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