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» LymeNet Flash » Questions and Discussion » General Support » Typical breakdown of costs

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Squeaky Clean
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Member # 31064

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I'm new at this. Could somebody give me a breakdown of typical costs by an average month -- getting started, then once established?

Is it true that Medicaid (I live in MD) and/or Medicare A,B,and/or D will cover cost of meds (even at the high doses needed)?

I could get into a study at NIH (Nat'l Institute of Health), but using their standards of care for the disease, I should already be cured by the 4 wks on doxycycline that I took for a sinus infection last fall.

I will have to beg for help, but wanted to see for how much.

Posts: 7 | From Rockville, MD | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
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A study would leave you very ill. So skip that. Medicaid should cover meds.

It's hard to find any LLMD's who will take Medicare or Medicaid patients however. That will be the hard part.

Maybe someone here can help you with that.

Really hard to say how much it will cost you. Could be $100 a month.. could be thousands. Depends upon which doctor you see.

The prescriptions are not that expensive in most cases unless you are doing IV.

Please read in Medical Questions for great information and help:

http://flash.lymenet.org/ubb/ultimatebb.php/forum/1

Each forum also has special links at the top of each page containing information you may find helpful.

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--Lymetutu--
Opinions, not medical advice!

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TF
Frequent Contributor (5K+ posts)
Member # 14183

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Yes, your problem will be finding a lyme doctor who will take you.

The best lyme doctors don't take insurance. And finding a lyme doctor who takes Medicare is virtually impossible. I know nothing about Medicaid.

I can only think of possibly one lyme doctor in Maryland who will take a person with Medicare. That doc is definitely not the best. But, he may be your only option.

Send me a private message if you want the name. Then, you could call the office and find out if he will take you.

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searching4truth
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I just tallied up what I am spending every month. I do not have any insurance. And my LLMD is also a LAND, so my supplements are very extensive. I take a LOT of pills every day. Between my supplements, antibiotics, and monthly visit to the doc, I am spending about$2000 a month. This does not include labwork and I am not on IV antibiotics. I hope this helps put things in perspective for you a little bit.
Posts: 427 | From Pacific Northwest | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
searching4truth
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Sorry, typo... I meant to say my LLMD is also a LLND. Not a LAND [Smile]
Posts: 427 | From Pacific Northwest | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
4Seasons
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I have found that the best financial strategy is to figure out your bare bones budget, without Lyme treatment and see how much extra you have to spend.

You could spend thousands per month, if you have it, but you can also put together a protocol that you can afford and prioritize.

I have found it helpful to have a monthly figure also, when I go to the doc, so I can tell them how much we have to work with.

We have refinanced our house, used retirement money, been gifted money from relatives, used interest-free credit cards. Also, we had a friend raise money for us from other friends and relatives for a specific need. You will really need to be resourceful and determined.

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"Life isn't about waiting for the storm to pass, it's about learning to dance in the rain."
Anonymous

Posts: 450 | From California | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
   

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