posted
Wow, thanks for the information Tim. I am curious about the others...I have not even watched the movie yet though.
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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momintexas
Frequent Contributor (1K+ posts)
Member # 23391
posted
I think the blog updates are old.
When they showed UOS on TV here the other night, it said at the end that Mandy & Sean were divorced.
Posts: 1408 | From Tx | Registered: Nov 2009
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posted
I believe they do keep the blog updated, don't they?
I thought I saw new ones pop up now and then.
So sad about Mandy and Sean. They went through so much together. I had not heard that yet.
I know that ranger Jordan was divorced, but is still close with his children.
And the saddest of all is our dear Leslie, from my home state of Minnesota, who made the urgent and angry statement about no one paying attention and listening to her, and she lost her life to Lyme. Here is Leslie's tribute page from her sister, Tracy:
posted
Good news re Dana (U2), I think - she came to the weeklong screening we had here in fall '09 and she was feeling great, and considering moving to the Bay area - don't know if that's happened.
And sad news about Alan MacDonald - he has some kind of Alzheimer's condition.
Posts: 13116 | From San Francisco | Registered: May 2006
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momintexas
Frequent Contributor (1K+ posts)
Member # 23391
posted
At the end of UOS they said Alan MacDonald has dementia.
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I know it was a big job for all involved. I would like to see them do a second documentary.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
I was at the NH Lyme presentation by Dr. S from the UNH (they have a great research program).
Dr. J and Dr. B were the guest speakers. Dr. J had two success stories (after a question from a mother with a daugher with Lyme, Bart and Babs).
Marina was his first success story and Timmy his second.
Timmy was diagnosed with autism at 6 months (Dr. J indicated this should have raised a red flag as autism is normally 18 to 24 months.
Timmy initially was just running around office, etc. Dr. J holding his head between his hands indicated he would find the key to unlock his mind. Timmy couldn't talk, etc. 6 months later on visit came up to Dr. J's and said thank you for finding the key.
(Dr. J said this much better than my memory of his words). Timmy is still in treatment and will be for a while.
I think this helped the mother (I spoke with her for about an hour as we both have 11 yr. olds with the disease) and she did need to hear this.
I think Tindamax is going to be helping many who had treatment failure in the past. Unfortunatley our daughter had to stop due to some side effects.
Its sad what the IDSA, A*** S*****, the CDC and a couple of prominent hosipitals have done to those with this disease.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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