Topic: Congress Addresses Lyme Disease Issues- for YOU!
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Lyme Disease Association Press Release
Congress Addresses Lyme Disease Issues
July 17, 2011. The all volunteer national Lyme Disease Association (LDA) is pleased to announce the introduction of a bill and proposed legislative actions that focus attention on the growing concerns surrounding Lyme and tick borne diseases.
Congressman Christopher Smith (R-NJ) introduced HR-2557, the Lyme and Tick-Borne Disease Prevention, Education, and Research Act of 2011, on Friday, July 15, 2011, along with cosponsors Frank Wolf (VA), Tim Holden (PA), and Chris Gibson (NY).
Congressman Smith's bill, HR-2557, requires the Secretary of Health and Human Services to establish a Tick-Borne Diseases Advisory Committee to address a variety of important issues.
The Committee will be charged with advising Federal agencies on priorities related to Lyme and tick-borne disease issues and will be composed of scientists, representatives from government agencies, health care providers and patient representatives.
The Committee is charged with ensuring that a broad spectrum of scientific and stake-holder viewpoints are represented in public health policy decisions and that information disseminated to the public and physicians is balanced.
Congressman Smith, Chairman of the Congressional Lyme Disease Caucus for the past seven years, has worked diligently to foster greater knowledge about tick-borne diseases over the years.
Amongst his many Lyme-related endeavors, he hosted a Lyme and Tick-Borne Diseases Forum last summer in Wall Township, NJ, for health officials, medical professionals and the public, with over 300 people in attendance. Pat Smith of the LDA was one of the guest speakers.
Senator Richard Blumenthal (D-CT) has plans to highlight legislation to combat the spread of Lyme disease.
He will meet with volunteer patient advocates from the Connecticut based Lyme disease group, Time for Lyme (TFL), an affiliate of the Lyme Disease Association, at the Connecticut Agricultural Experiment Station in New Haven on Monday, July 18, 2011.
Senator Blumenthal, who served an unprecedented five terms as Attorney General in Connecticut, is known for his efforts to make real and lasting difference in the lives of the people. He has been a long-time public defender of Lyme disease patients rights.
The Lyme Disease Association (LDA), an organization that seeks to eliminate tick-borne diseases by funding research, educating the public, and providing scientific conferences for doctors, is grateful to Congressman Smith, Senator Blumenthal, the bill cosponsors and staff for their enduring commitment to improve the health of countless patients suffering from Lyme and tick-borne diseases.
posted
I think people are ready to move on this - also with all the UOS showings around the country as well -
Posts: 13171 | From San Francisco | Registered: May 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
cheffer! Thanks for sharing that. Saw it here earlier and never got back to thank you!!!
Here is another good one. I don't think Shapior likes us. Boo hoo....
Blumenthal Quote- "Today for me culminates more than a decade of work and probably a decade more, because I've seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease," Blumenthal said."
CT advocate said... "Once an accurate test is developed, the controversy goes away," Siciliano said.
But Dr. Eugene Shapiro, a Yale professor of pediatrics and epidemiology who specializes in Lyme disease, called that idea "nonsense." Diagnostic technology can always be improved, but studies don't support the idea that people with longstanding infection get false negative test results, he said, and improving diagnosis won't end the controversy."
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
flutter and payne- thank you.
Robin49678436596- You are absolutely right. We need to put on our dancing shoes to get ready to tap on IDSA heads... and also thank USO for their HUGE contributions.
posted
Shapiro has the same old tired reply. He sounds like a record that has a broken needle and keeps skipping.
He also says in the article"That condition (CLD) does not exist, Shapiro said, but the people who believe they have it do have chronic symptoms and "clearly have something."
He keeps saying that I want to know what that something is!!! I was healthy before tick bite not not so much -- maybe I will go to my doctor and asked to be treated for "something" - do I see an infectious disease doctor for that?
Posts: 131 | From ontario | Registered: Oct 2010
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
HA! You are right!
According to Shapiro, you should see a doctor that is Board Certified in "Something". I am sure there are a lot of them around.
Then, when you find out what you have, we will all know!
One good thing... Pallone is no longer head of the Committee and able to single handedly block the bill as he did here...
posted
"Something" is very powerful. I'm very impressed by it! Now I know what to say to people: I've got Something! Come to our support groups - we always love to talk about Something!
Very pleased to read that Pallone is no longer head of the committee. Hopefully there is somebody more open-minded -
Posts: 13171 | From San Francisco | Registered: May 2006
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Mr. White who seems appauld in this is now back peddling. If you live in Mr. White`s area or P.A. or know people who do - you should contact him to say how important this bill is. The P.A Lyme group is working really hard and need all the support they can get.
Posts: 131 | From ontario | Registered: Oct 2010
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
Lord You are Listening, bring the villians to their knees and raise your children upon it. Faith has no bondaries.
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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