philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
Just got back from bringing my son to see the doc for a follow-up appt since starting biaxin for mycoplasma.
I was gonna cancel the appt since we're gonna go see Dr. C but I figured I would just go. Couldn't hurt, right?
Wrong!
He actually ****ed me off. I guess it really shouldn't matter since I'm gonna be leaving him soon anyway. I think I'm more mad at myself since I had him ALL wrong.
I actually thought he was a decent doc. Now? Not so sure.
He asked me if I noticed any difference in my son and I said no...not really. So he tells me to stop the biaxin and see him in 3 months...that we'll see where things go from there.
REally? I would think that things would have went a bit differently. Silly me! I should have listened to my gut that something was amiss with him.
But I kept thinking it was just me being paranoid.
At it isn't just what happened with my son. He has been very hesitant to give me anymore abx. Again...I tried to convince myself that he knew what he was doing.
Just another one of those times when I SHOULD have listened to my gut instincts but didn't. Shame on me!
I have an appt with him in August and at this point, I'm considering just canceling it. I may as well save myself the gas and office visit money and the trip.
From this point forward, I am on my own and to be quite frank, I think I''ll do better guiding my own treatment.
I'm just really ****ed. I feel so out of it today and had a hard time even driving to the appt. Couldn't focus at all....light and sound sensitivity...awful head pressure.
I feel like I'm in an alternate reality.
Both his IGM and IGG titers were high so how can one just dismiss this?
UGH! Very frustrated.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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I feel like I am in an alternate reality too. That is a good description. And I also feel that these docs. dont have a clue.
Actually my doc. just told me to stop the Biaxin and i feel even worse now....
I would def. find a new dr. but I guess you already know that!!!
I so feel for you and your son!!!!!
L
Posts: 256 | From long island, new york | Registered: Feb 2008
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James1979
Unregistered
posted
Philly, is this guy considered an LLMD? Or is he just a "regular" doctor?
This is a very sad story. Wait 3 months? I would get anxious waiting just 3 days without treatment!
Sometimes I wonder if these guys ever graduated from high school. I think it should be required for them to display their high school diplomas on their office walls.
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
I got his name from here and yes...he treats a good amount of lyme patients but I'm not sure if he would be considered an LLMD.
He does integrative medicine and in talking with a few other people, he wasn't very hesitant with them in prescribing abx.
So I'm not sure what's going on.
I do have an appt with another doc for the little man so I'm not too concerned. More just ****ed!
I actually asked for more abx at my last visit and he said he thought I didn't need them since I seemed to be improving. I thought okay. But I've actually been feeling worse this past 2 weeks....even worse than I did prior to starting treatment.
I've been talking with my son a lot more lately about how he feels. He usually just tells me he feels fine.
But then I started to pry asking more specific questions. I did this mainly b/c of the paperwork I have to fill out for the new doc.
I'm also to record his temp everyday 3x day for the next month.
Some things I've noticed.
His temp is consistently low. Between 96.8-97.5. Hasn't been higher than that yet but I just started taking it three days ago.
He has intermittent chest pain, abdominal pain, nausea, headaches and pain in his knees and feet.
I ONLY found this out b/c I asked him about these things specifically. I was going through the checklist for the new doc and decided to include him in the process.
when I asked him why he never told me these things, his response was...I just thought this was normal.
Um....no. Not. Normal!
So...I pry a little more and try to find out how long this has been going on for. He tells me...I don't know.
So I really have no idea as to when these symptoms started or even how long they have been going on for. but something tells me it must have been a long time since he thinks this is "normal".
My heart just breaks for him.
I'm so furious as this point, I feel like I need a nap! But I can't sleep b/c I'm so darn ****ed off! Not only at the doc but at myself for being such a dumbass!
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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don't be so hard on yourself - I know it is easy to say that
maybe it helps to hear about others:
I have a friend who is a nurse and her daughter, now in College, had Lyme symptoms sicne she was 6 and was diagnosed with a rare disease and not treated for Lyme all these years and my friend is upset with herself for not seeing it earlier
I myself found a heart-breaking diary entry from 2007:
"I am sick, for real, but neither the medical community nor work will acknowledge it. Sometimes I don't even give it enough credit myself, feel like I should be getting up to do something when I can't or can only slowly."
I never knew I had Lyme, until a recent EM rash
I beat myself up for years for not being more productive and getting more done
I thought my symptoms were normal, too, just like your son
in retrospect, you are right, that is jsut insane
I have CNS symptoms now and dyslexia - don't bother to correct some times - I need the world to see me as I am
I thought is was "nromal" How else can you feel if it happens gradually, and no-one helps, you just keep going in ignorance...
being infected and your immune system fighting an exhausting fight in vain against these bugs
glad you realize it now
don't get mad, get help, get over it, and be happy again - you and your family!!!
that is what I tell myself
help is out there!
I am going to my regular doc at 2:30 today since my LLMD is booked until October - but I won't expect anything
hoping for some meds for Bart co-infection but may get nothing but waisted time and insults again
will record the events for a possible law suit in the future
for now I need to get well
Best wishes for you!!!!
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 632 | From USA | Registered: Jun 2011
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