posted
I feel so sick after 4 years of trying to get better and numerous treatments!
I have done IVIG,IV Rocephin,numerous oral abx. and IM Bicillin, mepron,malarone,de-toxing,etc.etc.
I have been to numerous neurologists and some of the best LLMDs in the country.
I try so hard to still do social things with my husband and friends while feeling dizzy,disoriented,in terrible pain,brutal headaches,etc. etc. I really feel like I am dying but the dr. keeps telling me my bloodwork is fine except for Lyme,etc.
I was a preschool teacher but Lyme and Co. stole that from me.
I have had almost 30 Bicillin injections and I thought that just MAYBE they were helping a little but I have felt just awful for the past 4 days.
I feel like a guniea pig. Everytime I go to LLMD they tell me to treat differently and I am no better.
I just want to sleep forever. I have so much to live for-family and friends but I am running out of hope. Yes I am on an antidepressant and if you met me you would not think I am depressed. I really do so much considering I feel like crap.
I just dont know what to do with myself?
This is not living!!!!
L
Posts: 256 | From long island, new york | Registered: Feb 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
laurie,
I was also at my wits end after 4 yrs of abx incl 6 mos of IV roceph,2 yrs IVIG and many other protocols similar to yourself.
It wasn't until I started using antiparasitic herbs and salt/c did things start to turn around.
I discovered I had the Filarial Worm co-infection as pictured on
This is what appeared after aggressive tx. It took several months. Parasites/worms can play a MAJOR role in Lyme disease and is often overlooked even by LLMDs.
Dr. K. stated at a recent conference that treating parasites is FIRST and Lyme SECOND. Do a search on here under parasites and also salt/c for more insight.
Hang in there, this is what made a big difference for me, and maybe it can help you as well.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Hi Gael- I asked my doc about parasites and he said since I have no stomach issues no parasites. He didnt even test me!
Posts: 256 | From long island, new york | Registered: Feb 2008
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
I had parasites with no stomach issues. I took Albendazole for several weeks, then followed up with 3 rounds of Humaworm over 6 months. I'm sure I'm not parasite-free, but I no longer have any symptoms of die-off when I take the herbs.
I did pass intact worms on the Humaworm. And flukes when I did Hulda Clark in between the rounds of Humaworm.
Have you treated adequately for Babesia?
I'm sorry you're struggling. This is truly a nightmare. And, you're right, it's not living.
You could also consider titers for all the opportunistic infections. Some people need to take antivirals to get those infections under control.
Just some ideas. Please keep going. You will get there.
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
I tested negative for parasites for years while they were killing me literally. Sometimes you just have to treat yourself when the doctors have no more answers.
Check the symptoms by googling parasite symptoms. PLEASE DON'T IGNORE THIS,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Laurie, you sound like I did a few months ago. I just couldn't understand why my son kept getting worse even though he had been in treatment for 9 months.
Have you been tested for coinfections? Heavy metals?
Have you tested your drinking water?
Have you tested your indoor air quality?
Are you able to detox? liver/kidney/skin
Something is putting more toxins in than you are getting out. Find the source and you will begin to feel better.
For us it was mold. The mold was not visible nor did it have an odor. The only way we found it was with air testing.
Then, when we ripped out the tub we found the rotted walls/floor around it.
Don't give up... you will beat this and you will get your life back!
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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posted
I am going to test the air quality of my house.
I am also finally treating for Bartonella although I tested negative and I am not convinced I have it. I am on day 2 of Cipro.
Thanks for everyones input.
Feel well.
I am not giving up. I would try anything to get my life back but getting so sick of trying....and being so sick....
L
Posts: 256 | From long island, new york | Registered: Feb 2008
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Gael, what specific parasite herbs/protocols did you do? I've done plenty over many years, but not in a while. I don't think they are a big issue for me now, but . . . there are many different kinds of parasites anyway---from micro to macro.
Posts: 3792 | From around | Registered: Mar 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Rumigirl,
I have done Humaworm, Huldsa Clark, Hanna Kroeger and Parastroy. In addition I do the salt/c protocol. Thirty days is not enough, and you might want to google parasite symptoms to see if you have any of the symptoms.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
air quality is really hard to test
its like a pcr
sometimes you get the right sample-many times you don't
i had black mold growing on walls confirmed with tape test...but air was always neg...but we all had sx
and got better when we left
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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