posted
Based on my symptoms, history of cat exposure and viral infections I think I'm disabled with bartonella sp. infection. I am waiting for the results of the Galaxy Labs bartonella sp. amplified PCR DNA panel. Standard MDs are completely hostile-the last two gave me termination letters and only consented to the test when I insisted. The disease is progressing and physically I'm a wreck-low stamina, constant frontal headache, bone pain, depression, anxiety, eye fatigue and difficulty concentrating. It's amazing to be this sick and have MDs question your sincerity. The medical boards and disability system also fights claims and complaints. It's a real mess.
I may have had bartonella a long time, 14 years actually. Could have picked it up living on a home with a bedridden man and a cat. The man was high strung and fearful I recall. He went on vacation and had me change the cat litter for a week or so, I read you can get bart. that way. That was the first time I ever experienced anxiety and since then I've had frequent depression.
In 2008 following mononucleosis and xmrv infection my immunity was low and the bart went systemic disabling me with the fatigue and pain.
I'm at the do or die point now. I'm 99% sure I have bart and if I don't I don't know what else it could be. MDs are totally incompetent to diagnose it here in Raleigh NC. If I don't get well I think I'll suicide as I can't keep living in pain.
In a month I have to go see a neuropsychologist to get tested to hopefully add support for my disability claim.
Can anyone relate to this?
I'll know in six weeks. In the meantime I'm a shut in living in a housing project. What a world.
Posts: 57 | From Raleigh, NC | Registered: Jun 2011
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i don't know how much you know-i see you are new to this...at least this site.
the bart test is not that accurate...you could have it even if the test is neg
there are different kinds of bart-most of us get it from ticks but the kind we get is related to the cat one
if you were with a disabled person for a long time was the disability lymr? or coinfections?
many of us have been suicidal but we educate ourselves and support each other and fight our way out of this
there are many posts in the beginning with facts about lyme bart and all the other problems that go with it
there is also info about the suicide place to call
good luck...its slow here today but others will be along
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
posted
I didn't know that Galaxy lab was accepting human samples again. They had been closed except for research for awhile.
Bart is definitely not an easy or quick fix, but with the right combo of meds it can be beaten.
Herbs don't seem to be strong enough for most bart infections but if you are interested in which ones might help then post another thread in medical and you can get some feedback on those options.
Hang in there.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic