posted
I've been experiencing really severe back/hip pain since Sat night. Can't get out of bed on my own. OH WAIT.. except for last night when I decided to get up on my own anyway!!
Well, I passed out. Before I went out, I signaled my husband. He found me totally out and (he said) turning blue. I "came to" with him on the phone with 911 and telling me "stay with me" over and over.
All things checked out OK and I'm back home. My BP was 77/66 when the EMT checked it. Wonder what it was when I fainted???
The joys of life.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
I don't know, skies. They checked my BP while lying down, sitting, standing. The dr didn't say if the difference was significant or not.
My BP has been dropping to the 80's and sometimes 70s. I'm on Verapamil for my heart. Will see cardiologist in two weeks.
The back stuff started in May when I tried to lift something too heavy for me. I injured my neck as well. I'm supposed to be doing traction at home and now I can't since I can't get on the floor.
Don.. haven't seen that. Today is the first day I could even sit for more than a minute.
grrrrrr
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
tutu, I'm so sorry you had to go through all that .. glad they think you're ok.
Back trouble brings one of the worse pains.
Prayers that every vertebrae would realign correctly, bulges & inflammation & muscle spasms would be calm & heal. God bless and heal you.
You're a blessing to all us here!
-------------------- Ecclesiastes 4:9-10 Two people are better off than one, for they can help each other succeed. If one person falls, the other can reach out and help. Posts: 338 | From NEPA | Registered: Mar 2011
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posted
Keep us posted!! Rest up.. and feel better!!
-------------------- "The simple things can get you through the hardest times." Posts: 628 | From Connecticut | Registered: Sep 2010
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James1979
Unregistered
posted
Sorry you got sick, Tutu.
Were you eating enough food on that day?
Do you have a chiropractor for your back problems?
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
I used to passout from low iron...just faint dead away when I stood up sometimes...made my heart act funny too.
So sorry for your troubles and will keep you in my prayers. Dang...
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
So sorry you went through all of that.
Praying for your complete healing, Lymetoo!
Big, big hugs!!!!!!!!!!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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joalo
Frequent Contributor (1K+ posts)
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posted
That is so scary!! I'm glad you are okay.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Lymetoo >>>>>,
So Sorry dear friend, I hope your health improves and quickly!!!
Prayers going up for healing!
Silverwolfi and TxC'
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Wow... glad you are ok, sort of. Hope they get to the bottom of it so you can be more comfortable!
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Oh no!!! So glad your husband was with you when it happened. And SO glad the blue thing was short lived. Should we be getting you a 'Life Alert'? Feel better soon!
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
I am sorry to hear this and I pray you didn't hurt yourself on the way down. I hope you find the cause of this also.
My biggest fear (well, one of them) is that I will pass out on the toilet. My kids are under strict orders to make sure I am clothed before they call 911 if that ever happens!!!
Take care....
-------------------- Down on her knees, she wept on the floor. This hopeless life, she wanted no more. Dead in the mind and cold to the bone, She opened her eyes and saw she was alone. ~Seether Posts: 427 | From Rhode Island | Registered: May 2011
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posted
Yes, ate enough food .. even ate some chicken with bedtime meds. No chiro anymore. He made me worse and I can't take the chance again.
Iron levels were checked in May, so OK there.
mom2kids.. Weird thing is that I felt woozy, so I closed the toilet seat and sat down. When I came to, I was still sitting there!! How did I go out but was not on the floor??
And I want you to know that I had on some fashionable pj's. So all was good there! Whew!!
The ER dr told me next time if I felt I was going to faint, to get on the floor so I wouldn't hurt myself. I'm thinking... "Then how would I get UP again!!??"
Life Alert is for sissies and old people.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Hope you get answers soon. Sorry that you had to experience all that you described.
Feel better
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Thats a scary episode!
I use to take medication for my heart(mitral valve prolapse), and it made my blood pressure very low. I walked around always about to pass out. I finally quit taking it. Maybe you just need to have a change in your med.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
Well, I've had an echo, heart stress test, full metabolic panel, tests for kidneys and bladder last night, all kinds of stuff in the past few months.
---
- - Fashionable PJ's, but slightly hairy legs (arrghh!.. thanks back pain!) and dirty hair since I couldn't even get in the shower on Sunday. I hate that!! We MUST be fashionable when showing up in the ER!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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momintexas
Frequent Contributor (1K+ posts)
Member # 23391
posted
And everything came back normal last night?
I sure hope one of the Dr's can find some answers for you.
just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
TuTu, I did that once too. Dont know if I was out even. Sat down to rest with lid closed.
Felt it coming on and did summon my eldest daughter from upstairs.
She took me 15 miles to ER but they said fainting is a common prob,,,everybody does it.
Sent me home. As I recall that was one of my first symptoms I remember when I got pretty sick.
My faint came and went within 5 or 10 minutes.
When I was a child I fainted a couple times,,,usually when it was really warm,,,hot,,,no air then and no help,,,once was in church.
Glad you survived so well and feel pretty well back to normal. Next time I see that commercial I will write it down or email you pronto.
It really made sense and didnt cost much and very durable
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
Texas Women are Tuff.. Glad to hear you are home, no place like home... and the full moon is to blame?? sorry, you aren't finding an answer.. I know we think lyme is the culprit to all health issues... Heres hopeing you get back on your horse soon and happy trails to you, The Lord was close to you.. Glory to Him.. blessing to you, wayne
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
lor honey, i'm glad you're alright. that blood pressure is way tooooo low.
chuck the chiro. they can mess you up big time especially if you've damaged any nerves or discs in your back.
remember tho staying in bed cause your back to actually stiffen up so slight exercise is the key.
lately i wash my hair every two days. and as mom said always have on clean panties just in case you have an accident and have to go the er.
i sure hope you get better. ain't no fun being sick is it.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Geez Toots, What a way to spend the day! NOT!! Wondering if your b/p could have dropped from the verapamil.
Sure has a lot of serious side effects. Glad you are home and okay. BTW, A trick I learned to get dirty hair to feel decent, is to put some baby powder in tit, and brush though. Hope you feel better kiddo.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Sounds like POTs and you need a cardio or a endo that knows how to treat or manage it. Vanderbilt university is one of the only hospitals that actually treats this..You can google it
Posts: 871 | From orange county, ca. | Registered: Jan 2006
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
quote:Originally posted by Lymetoo: the EMT said my blood was coagulating as he was drawing it. Not good!
Okay, that looks like a sign of hypercoagulation.
Are you taking systemic enzymes and fish oil for that? Those will reduce hypercoagulation and also reduce inflammation, which may help the back pain.
I'm sorry that you're feeling so poorly.
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i meant to say something about the thick blood...dr c addresses that right? what does he do? thats one think i havent had to deal with...i'm the opposite...maybe cuz of ibu
posted
Yes, I have been doing nothing for the hypercoagulation which was diagnosed 10-11 yrs ago. I used to be on heparin therapy, then lumbrokinase.
I have such stomach issues with most enzymes. I do take plenty of fish oil.
--
thanks, sammi!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Didn't see that about the hypercoagulation. Is it possible that Lyme and co is rearing it's ugly head?
When I first went to my LLMD, my blood was clotting very badly in the tube. Got better when he put me on abx. Worried about you. Maybe get retested?
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
Lymetoooooooooooo
Oh my goodness! Fainting is one thing but why the heck were you turning blue?
Gosh I am so sorry that happened.
Posts: 1142 | From South | Registered: Dec 2010
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annxyzz
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posted
I am saying a prayer for you to get the right help and answers so you can mend . Thanks for all of the encouragement you give to us here. It is invaluable . REALLY .
I pray you quickly have better days.
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
....ye, it's the turning blue part that's got me too.
What up with that?
I think we oughta open up our own Medline, 'cause everyone is pipin' up with great diagnostic thoughts. If blue is an issue, something is impeding blood flow to the brain, hence fainting.
You do need to retrace your steps Tutu.
So sorry to hear of what happened. Can't imagine my friend passed out on the floor.
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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posted
Yeah, I need to ask him about that so I know what to tell my doctors next week. I do know that when your BP is too low, the blood flow to your body is impeded .. esp the brain.
My BP likely went below 77/66 because that is what it was after the EMT's got there and I had come to.
Hubby did indeed feel helpless. Like Six told me though, Lymie husbands are tough! They've seen just about everything!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
OMG. I'm so sorry I didn't realize you were hitting the floor. How horrible.
Lyme husbands do have to witness far too much and hear us too. I hope you find out something soon.
Something to explain the low bp and the fainting? Sounds like whatever is causing the pain is controlling lots of things.
I hope your good doctor has some ideas what's happening. I'll pray for his recognizing the culprit and his ability to get you back in better health.
Stay off the floor Tutu. Crawl or scoot yourself around. No walking allowed unless you know you're better.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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posted
My thoughts are with you, warm regards, p.
Posts: 119 | From New York New York | Registered: May 2010
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Oh my gosh!!! Thank God you are okay! How terrifying!!!
I have a Life Alert...but I never, ever wear it! I probably should. I have such an aversion to all these assistive devices and things! I hate needing them! I've told my state social worker to take it back several times. But she won't!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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kidsgotlyme
Frequent Contributor (1K+ posts)
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posted
I haven't been on here in a while and just saw this. Praying for you!! You need to be well because we all need you around here.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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Saw my internist yesterday and he reviewed the hospital info and said, "That is scary!" I think mainly because this happened for "no apparent reason."
He said it was probably my heart. Totally freaked my husband out now because the ER dr acted like "Oh, people faint all the time, etc." That had calmed him down, since he said he felt so totally helpless that night. I can imagine.
I will see my cardiologist on Monday.
Anyone know why I would have had a high WBC count???? It was 10+ ..
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
A high WBC would indicate an infection. Sounds like you might need some abx. Possibly could be Lyme and co rearing it's ugly head. Maybe a good idea to see your LLMD. What do you think?
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i thought high wbc was clearly infection and wonder why any doc would not put you on abx right away
maybe cuz you recovered so well? still.
i'm thinking about you alot. let us know what is going on.
guess we better send "hang-in there" prayers to your hubby too. it must be very scarey for him
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
I can't take abx "just because" anymore. My yeast is too bad. They checked me for a bladder infection and checked my kidney function. All OK.
No point in seeing LLMD if I can't take abx. When I Rife I do not herx anymore. When I HAVE taken abx, I don't herx either. I feel OK other than my injured back.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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