Topic: Josie's fundraiser this weekend and look what's NOT happening!
17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
You remember the terribly ill 13 year old I've been blabbering about for well over a year?
You remember there is a fundraiser being held this Saturday for her? www.Journey4Josie.org
Well, I talked to the mom today and get a load of this...
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I just talked to Josie's mom, Lisa. This fundraiser has been in the plans for 5 months.
Lisa said no radio station has agreed to come. One said maybe.
Lisa has not been able to get thru to the local newspaper. She's left messages but no one calls her back.
Lisa was informed today that Senator Greenleaf (the senator supporting Senate Bill #210 for Lyme Disease treatment) will not be able to attend due to his busy schedule, even though she handed him the information at the Capitol back in May and asked him to come.
This fundraiser was started and organized by 3 middle school girls trying to support a sick friend.
The kids at the Middle School raised $7000 toward this fundraiser.
This fundraiser is to support a local girl, 13 years old, 53+ lbs, in a wheelchair, in seriously bad shape.
Proceeds from this fundraiser are being split between Pediatric Rheum. Arthritis Foundation & Lyme research & Josie's medical bills.
Why does no one want to cover this event?
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
I am so sorry!
It seems like the local newspaper should be there... at the very least!
I hope all goes better than expected!
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i know a young girl tried real hard to get a lyme fundraiser going near the maine or nh seacoast a few yrs ago. it was just a walk...and she worked so hard...but it didnt do much. she hasnt been around since then. she tried...but it is so hard. like support groups
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
I, too, know the frustration of non-participation. It's like we work our butts off to get people to come, we call them, we email....then they don't show up. Especially the ones who said from the beginning they want to get in on the ground floor of the organization. Never ceases to amaze me.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
It is times like this when it pays to know someone! If they plan on doing anymore fundraisers in the future, pm me and let me know b/c I know a few people.
Too late now but keep me in mind for future events and I *might* be able to help.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Heather, lp, Garby, thank you for the commiseration. It feels good at the moment.
Philly, I'll keep you in mind. I know you said "might" and that's fine. Just someone to try will be nice.
I'll let you all know how it goes tomorrow. Maybe God will move mountains! That's what I'm praying for anyway!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
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