-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
I just got done posting this on FB, and then came to see if it was posted here!
Don't forget to RATE and REVIEW it on Hulu!!!
Posts: 60 | From MO | Registered: Jul 2010
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Thanks Dekrator, I posted on FB and watched it as I had never seen it.. Interesting. I do hope others watch on FB.
Still not much improvement here.. how are you doing?
Posts: 1058 | From VA | Registered: Oct 2010
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi phyl,
I am off all meds and supps right now after having a drug reaction to Bactrim DS on July 4.
I hope to be back on an antibiotic, etc soon since my pain and stiffness got worse after I was off of them for 2 weeks.
Thanks for asking.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Sorry to hear about your reaction, hope you find one that works. Treatment gets discouraging when it doesn't work or our body reacts .
I have been off all treatment for a couple of weeks as nothing seemed to be working but like you the pain, soreness, bone aches are getting worse so going to try again.
This disease is really scary as we are all different and no one's treatment is the same or works the same. I read these horror stories about abx not working and wonder where I will be a few years from now. Sometimes I think I am as good as I am going to be , that I will accept its getting worse that is scaring me.
Take care and keep me posted. hugs
Posts: 1058 | From VA | Registered: Oct 2010
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Doxy does work for me, I just can't take it in the summer.
I should be able to take it in about a month when the sun isn't strong in PA anymore.
Please don't give up hope, phyl, you haven't treated very long at all.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Doxycycline (ceftin for a weak stomach or sun exposure) constantly and rotating every two weeks between metronidazol and biaxin has worked wonders for my wife and I.
Posts: 80 | From US | Registered: Aug 2011
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posted
Phyl, my antibiotics that have worked for 5 years stopped working recently - well, 5 years was a pretty good run.
I am now checking out the Buhner herbs, from his book, "Healing Lyme." They treat Lyme and co-infections. I tested my first one this week, teasel, and it did very well. So just wanted to let you know there's other protocals out there, like Cowden, Zhang and others too.
Hi to you too, Dek.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
Dekrator - Thanks so much for posting the link "Under Our Skin" It was the 1st time I saw it.
You know, i've had the movie for some time now and haven't watched it. After having lyme for over 20 years, I knew I needed to watch it but was afraid at the same time.
I'm glad I finally saw it. yes, it does bring tears to my eyes, and rightfully so. But, we are all in this together and at least know that, makes it easier to go through.
Thanks again - Donna
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
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posted
Just posted the link on my FB page, also you can remind your friends it is on Netflix instant view too. I've seen it there too, and you can review it on netflix as well.
-------------------- One day at a time Posts: 409 | From TX | Registered: Mar 2004
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posted
Finally finished watching this. Wow. I'm glad they showed some successful cases in there or else I would be really depressed right now. Definitely needed a box of kleenex to go along with watching it.
-------------------- IgM: [18++,31+++,34++,41++,83-93+] [39 IND] IgG: [41 IND] Positive according to IGeneX. Negative according to CDC. Negative for co-infections. Currently treating for Lyme, Bartonella, Babesia Posts: 225 | From Minnesota | Registered: May 2011
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posted
Actually... I feel like a wussy after watching what those people have gone through. Here I am complaining about not being able to figure out and stick to the diet. Sure puts things into perspective.
-------------------- IgM: [18++,31+++,34++,41++,83-93+] [39 IND] IgG: [41 IND] Positive according to IGeneX. Negative according to CDC. Negative for co-infections. Currently treating for Lyme, Bartonella, Babesia Posts: 225 | From Minnesota | Registered: May 2011
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