posted
Was wondering if anyone could add comments/suggestions to this note/letter? My llmd usually lets me type something up & then has the secretary type it up on their letterhead. This would be for my dd.
"-- is under my care and treatment at this time. She has been diagnosed with Lyme disease, Babesia, Bartonella and other co-infections.
Currently, she has symptoms of chronic fatigue, insomnia, back pain, cognitive problems, blurry vision, joint pain and many other symptoms.
During the course of her treatment, some worsening of her symptoms is expected. She may be absent more often than other students.
-- may need more frequent restroom trips, trips to the Nurse and may need to be excused from Physical Education classes on some days.
Thank you for your assistance in this matter. If you have any questions you may contact me at ----..."
Anything I should add/delete? TIA for any info. SG
Posts: 269 | From VA | Registered: Jun 2005
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Hi skigal:
We initially had something similar to this 504 but when the fatigue and neuro symptoms kicked in our daughter not only couldn't make it to school we had to stop the tutor.
Happy to say after missing 1.5 yrs she is able to attend school (so far as she is not completely cured and we fear a setback) this year.
But no physical or extra circular activities at this time.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Sounds ok for school.
Posts: 1834 | From US | Registered: Oct 2008
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posted
Not sure what grade dd is in, but if she is in high school, there may be requirements for how many PE classes she must take. If that is the case, you may need to look at more specific language for the 504.
Some schools will allow a medical substitution of prescribed PT (not sure if she is doing that when she begins to get better) in lieu of PE.
Other accommodations can be written into the 504 that may come in helpful--extended time on long term projects, extended time on tests, access to copies of notes taken in class. All of those accommodations may help a student whose cognition is on a Lyme vacation.
Schools use 504 plans in different ways. Be a strong advocate for dd. Her teachers may not understand how all pervasive Lyme is. As a teacher with Lyme, I have spent the better part of a year educating my school community. They are very responsive, but I think it has helped to have a teacher blaze the trail, rather than a student.
Good luck!
Posts: 447 | From Vermont | Registered: Jan 2011
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In addition to the extended time, which is an excellent accommodation or inclusion to the 504, you might want to add "small group setting" for tests or quizzes if she is easily distracted. That way, she can be in a quiet room to receive her "extra time" (if needed) without feeling as if she has to rush through to keep up with the rest of the large group.
In my experience, 504 Plans must be followed by the parents, student, AND teachers or they fall apart. Some teachers do not follow them (again, my experience), so make sure that each and every teacher READS the form and understands what is expected of him or her.
I agree that you must "be a strong advocate for her." Team with teachers who are also strong advocates for students and families (you will recognize which teachers are and those who may not be as supportive).
Wrightslaw is a great advocacy website for parents and students, not only in special education, but on 504 Plans. The resources on this site seem endless.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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