I haven't been here in a long time, and I am sorry. I have been trying to work an online job, and that takes away from my "online fun time," and support, too.
I feel like I am going through a downward spiral lately, and I am started to allow this to depress me. I am not sure what to do.
I just started two doctor ordered items to fight fatigue, but wow, am I getting so very tired of watching my house fall apart, sleeping past noon every day, feeling so weak I can barely stand up and cook or walk my dog.
I am not even a year into treatment and my doctor is saying three, even six years. I feel like Lyme is really affecting my brain in so many ways, and I am allowing fear to creep in. My positive outlook is being replaced by fear and frustration.
Also in danger of losing my health insurance which scares me even more. Pain and fatigue and confusion just don't seem to get better at all.
Do you think I need more detox? Not sure what to do or where to turn anymore.
Sorry for whining. I am typically the optimistic one, but I really need some kind words today.
Thanks, friends!
Hope
-------------------- Best Wishes,
Hope
"Hope is a good thing, maybe the best of things, and no good thing ever dies."
~~The Shawshank Redemption~~ Posts: 234 | From Minnesota | Registered: Dec 2010
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posted
Yes, it definitely is hard to deal with a disease when the treatment is open ended and the outcome uncertain. People in this situation become heroes if they are to survive. So, hang in there. Figure on having some better days down the line.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
Thank you, Lou. Sometimes, when I am having these rough days, especially several in a row, I just don't know what to do or where to turn or what in the world to do or think. I don't like to get discouraged, but I know things will get better. I also know people here understand more than others.
I consider myself an optimist and a Warrior, and I will be a hero, someday.
Thanks, again.
-------------------- Best Wishes,
Hope
"Hope is a good thing, maybe the best of things, and no good thing ever dies."
~~The Shawshank Redemption~~ Posts: 234 | From Minnesota | Registered: Dec 2010
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posted
HopesAlive look at the bright side, you're a year ahead of me in the treatment process, I just started last week!
Really though, I think we all have days (weeks, months) that we feel like it is never going to end or even get a little better.
Just read my "signature" it explains my feelings on those kinds of days.
Hang in there and I will wish you strength to make it through...
-------------------- Down on her knees, she wept on the floor. This hopeless life, she wanted no more. Dead in the mind and cold to the bone, She opened her eyes and saw she was alone. ~Seether Posts: 427 | From Rhode Island | Registered: May 2011
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Thank you, everyone. I really didn't even start my maximum dosages until June, so I guess I am just not a patient person. Some days, I wish I could hire someone to take total care of me. It is sometimes difficult to keep putting one foot before the other. I try very hard to remain positive, because I KNOW that all the negative feelings are not good or conducive to our healing.
Lymetoo, I hope your back will be better and you didn't cause more injury. Healing thoughts.
Mom2kids, that is an amazing signature: very bleak, but don't we all feel "so alone" sometimes? Thank God we have one another, right?
Thanks to all for kind words of comfort. I didn't want to feel alone in my fear and frustration, but I KNOW in my heart there are better days ahead.
-------------------- Best Wishes,
Hope
"Hope is a good thing, maybe the best of things, and no good thing ever dies."
~~The Shawshank Redemption~~ Posts: 234 | From Minnesota | Registered: Dec 2010
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