posted
I am so tired of feeling like crap. I don't even know if I have Lyme, or what it is I have. I just know that for 2 years now I have had horrible off and on symptoms and relentless fatigue.
I try my best to deal with it, but the hardest part is that NO ONE CARES. not my job, my husband, or even my doctors it seems. I don't want pity! I just want someone to acknowledge it.
I have been on this cycle of going to the dr, getting no results, feeling like I'm going to die some days, then feeling ok (never good) I get frustrated at the time and money spent at the dr for nothing, so I stop going for a while, but when the next flare up comes, my husband is angry that I stopped going to the dr! (mind you, he is the same one that says there's nothing wrong with me that won't be cured if I lose 20 pounds)
Has anyone else felt like this and just put on the happiest face you can and act like nothing's wrong?
Posts: 21 | From Northern Virginia | Registered: Sep 2011
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posted
Oh, yeah. I think many of us here have gone thru this.
Have you seen an LLMD?
-------------------- "To eat is a necessity, but to eat intelligently is an art" - LaRochefoucauld
Lyme neuro symptoms for 20+ years. Infected in Maryland. Diagnosed with Lyme Jan 2011. (previously diagnosed with CFS, Fibro, peripheral neuropathy) Posts: 261 | From Colorado | Registered: Oct 2010
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posted
I was given a name of a dr that was supposed to be an LLMD, but I don't think he is.
Posts: 21 | From Northern Virginia | Registered: Sep 2011
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
If you need LLMD names, please post on the Seeking a Doctor Board, asking for LLMD's in your state or nearby states.
Sounds like you need a good eval by a good LLMD.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Yeah, my husband told me I just needed to exercise more. (I was bone thin and exhausted. Exercise? Really??)
When I sought out a Lyme diagnosis, and the tests came back positive, guess who ran to the LLND to get himself tested? Yup.
I'm not saying your husband has Lyme. I'm just saying that what we experience is so unthinkable that people can't even accept it as a possibility. They don't believe us. Who gets sick and stays sick? And doctors cure people, right? It must be something WE are doing (or not doing) that is making us so sick.
Even people with similar symptoms don't believe us!!! (Like my husband, who has Lyme.)
Take control of your health. Get to a competent LLMD. The longer you wait, the longer you will live in misery and confusion.
Some people do come around once we are "positive" for something. But, most don't. Find your support here on Lymenet. And see if your area has a Lyme support group.
It's OK to vent here. We all have bad days. (And weeks. And months. And years...)
posted
Yes, I got fed up with the doctor circus twice in my years. As a result, I never was properly diagnosed until I was reinfected. I spent almost 20 years miserable with doctors who just gave up or referred me to psychiatrists or pain management, which upset me because I knew neither would really help.
I am sorry to hear you are feeling this way now. I still am frustrated, most of all because I think it will never end for me at this point--having had it so long. I am focusing on making the best of each day and finding the treatment that will give me the best-possible quality of life.
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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posted
Thanks everyone. The part I think that depresses me the most is that it doesn't seem like I should be this bad off..you know. My son's biological mother has cancer with 85 tumors and she goes dancing and out to museums all day and if I go to walmart, I need to go home and lay down! I know that's what you all are going through also; I'm just blabbering becauswe I just don't get it!!! Thanks for listening
Posts: 21 | From Northern Virginia | Registered: Sep 2011
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