posted
hi everyone.. i was just wondering if anyone else is afraid to eat or sleep due to symptoms. i am afraid i will throw up or get sick with intestinal symptoms when i eat because of my symptoms. i have cut out whear gluten and sugar but i still feel so sick.
i am also terrified to sleep. i am afraid that due to my neuro symptoms i wont wake up. also ,when i do get some sleep, i often wake up feeling dizzy and scared and disoriented.
any tips would be great. i can go days without eating more than a few bites and sleeping only or 3 hours, and i worry this will affect my immune system.
thanks for the help. love, jess
Posts: 651 | From ct | Registered: Sep 2011
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posted
I think you just have to find out what you can get down that doesn't bother you. What about juicing?
I kinda think we go on and on with symptoms, so I think you will wake up!
The main thing is to start getting some treatment. Have you contacted any of the doctors yet that people here sent you referrals for?
Posts: 13116 | From San Francisco | Registered: May 2006
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
When I first got hit, and when I have terrible days, I can only do Ensure /water just to get by... I also just started ordering flavored coconut waters on Amazon. Real high C and potassium.
Nonna
I'm sure lots of people have some of these fears ,,, this "Buggy-bug" is just so crazy. Posts: 2563 | From Denver,CO | Registered: Aug 2011
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Sorry you are going through this. Yes, I have had these symptoms ..It is miserable. I finally had to get meds for anxiety which has helped so much. Not saying this is your case but it was mine I just didn't realize it.
Posts: 1058 | From VA | Registered: Oct 2010
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posted
A lot of this fear and anxiety could be caused by the illness...verdict is still out whether this really helps to deal with fears and worries at hand because the feeling is so real.
I too have found that taking anti-anxiety medication (.5 mg Lorezapam) does help me get through bad nights. This has been refered to as a "baby dose", but it does take the edge off and helps me get to sleep.
Baby steps...you'll get through this!
I just made a gluten free friend some creamy polenta...could this be your comfort food?
-------------------- I want my life back! Posts: 4 | From Sacramento | Registered: Oct 2011
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posted
Anti anxiety meds. would be an option or try some guided visualization/meditation to sooth you mind. climber
Posts: 108 | From Connecticut | Registered: Jun 2010
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posted
Chastain sleep is good. Sleep is your friend. It helps you heal and when you sleep its time not to worry.
My stomach is raw and I too was at one time on ensure. Now when food doesn't sit well my husband makes me ginger tea from a ginger root. That settles my stomach.
We all worry lots and if we don't find a way to control our worries whether medicine or meditation if will adversely affect our health.
Stay in bed for a little while after you wake up. Then slowly sit up and stay in bed until you feel more comfortable getting up.
Like Erzulie says baby steps, Sending you a hug today Tomorrow is a new day.
-------------------- A little lymie... Posts: 104 | From Greener Pastures in PA | Registered: Sep 2011
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posted
thank you JAC...you just made me cry!! i wish you the best and your post has brought me SUCH comfort tonight!! God bless you. love, jess
Posts: 651 | From ct | Registered: Sep 2011
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posted
From one Jess to another...it sounds like bartonella.
I had those same symptoms before I was diagnosed. You feel like if you go to sleep, you'll never wake up. No one understands what the hell you're talking about. For me, my breathing would slow WAY down and practically stop. And I'd be paranoid, freaking out inside that I was going to die. I really feel for you because I know exactly what it's like. THe right medicine will treat it
One word: LEVOQUIN at least 500 mg/day
It's the only thing that works for this IMHO
Posts: 42 | From Virginia | Registered: Aug 2011
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posted
PS, juicing made me MUCH WORSE! Don't do it unless you are ready for extreme detox symptoms!
Posts: 42 | From Virginia | Registered: Aug 2011
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