phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Ok for years seen many doctors as we all have gone down that road..
Finally got a dx for possible lyme, saw LLMD spent lots of money and still no improvement.. Tried many meds, supplements and I know it takes a long time but I am sicker than I have ever been.
Now doctor is saying they aren't sure .. I have no active lyme and have probably had lyme since I was a child, I am 69, so if I have had it that long then why put myself through all the darn treatments that haven't worked and I am just sicker.
The past two weeks I have gone off everything and now beginning to get my life back, far, far from what I want but at least I am not bed ridden.
So sick of all the run around by the doctors I have seen .. Going to take a break, at my age I just don't care anymore.
I will see my GP who has helped me the most by listening and at least admitting he doesn't know what to do but will help treat the symptoms..
Venting... tks.
Posts: 1058 | From VA | Registered: Oct 2010
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posted
I hear you. I too am so tired of run around from docs, insurance and the like. My "llmd" even doesn't listen to me anymore, so I've decided to quit flying over 1,000 miles to see him as well, and taking my 11 yo daughter to see him too. I hope I'm not making a mistake, but seriously, I can't afford it, and we have both been worse for the past year anyway. He's not doing anything to help us anymore. I've decided that I can guess as well as they can. I can research and find things to "try"..
I am looking into trying out a new pcp doc and see if she will at least work with me and do the necessary bloodwork and things to support me. My current pcp has really been great, but I feel he is tired of it all too and is SO busy it's hard to even get an appt. with him.
He is so rushed when I see him that I feel he just band aids what he can for the moment..if you know what I mean.
I've began a version of salt/C protocol on my own and I think it's finally beginning to do some good. I'm going to stick with it for at least 6 months unless I really get worse, then go from there.
I don't know what you've decided, but that's where I am for now.
I hear you loud and clear and know exactly how you feel. So sorry for your pain and frustration.
-------------------- One day at a time Posts: 409 | From TX | Registered: Mar 2004
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Great to hear I am not alone on this one.
Would love to hear about Salt/C protocol that is what you are doing , amounts etc..
I have an appt. with my PCP next week oh I hope she will listen and order the necessary blood work.
Keep in touch.
Posts: 1058 | From VA | Registered: Oct 2010
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posted
I'm sorry you and so many people go through this terrible disappointment. We've all wasted time & money and suffered longer than we should. Yes, the problem is "guesswork" doctoring.
There are better forms of healthcare beyond professional ignorance and many profitmakers. Truth has been suppressed so you have to dig to find it.
There are advanced forms of healthcare, far beyond the old 1950s medical system we have in our communities and the LLMD craze.
My dear young daughter became ill in early 1999. In a decade, nothing worked. In the last couple years, we're finally making progress. Thank God!!!
Posts: 2 | From MN | Registered: Jan 2009
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Tks. Renae, please tell us how your daughter is making progress. SO happy to hear.
Posts: 1058 | From VA | Registered: Oct 2010
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