kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I have a great deal of difficulty letting people know that conversations make me worse usually.
People still want to talk away to me or I should say at me.
It has helped to put on ear muffs.
But, there are times when I do need to communicate.
It is those times that are the most difficult.
For example: the lady came today that does the annual signing of papers for the 4 hours of help I get a month from the county.
She has been coming since 2005. I have only had one other person come who understood that talking made me worse.
She called me first and I returned the call via a TTY I had on loan.
When she got here she asked me why I used the TTy when I was not deaf.
I don't recall what I told her but she got it. And she kept the conversation to the bottom line.
I recently had an ah ha moment when a neighbor in a power chair said to me that it was OK that I could not answer her questions.
The next day, I saw her out again and she asked me if I could just listen.
That was my ah ha moment. People think I have difficulty talking but it is OK for me to listen.
The other obstacle is that I am able to have very short conversations at times.
Which I understand can be very confusing....to others...
OK I am confusing myself.
Other than putting on the ear muffs when the brain is struggling with someone talking to me....
Looking for ideas to get the point across.
I do communicate with the person who comes annually...actually I think she comes about every 3 months...via emails
She gets that I need to communicate via email.
But, she doesn't get that she needs to just keep the conversation to the bottom line.
She starts talking about a 10 feet from my door and continues to yammer on about all sorts of stuff throughout the paper signign process
As I am typing this, I just had the thought that I should have just put on my ear muffs while she was here.
She might have gotten the visual
I had that thought when she was here but then thought no I need to hear what she is saying....
wrong...I did not need to hear she was not a mornign person and she knew I was not a morning person...
although when she sent the email she said what time should she come as she knew my best time was first thing in the morning??
I did not need to hear all the rest of the stuff that was not related
She asked if there was anything else they could help with besides more hours
I said I needed help with someone calling to make an appointment with the doctor for me.
(The TTY I had on loan was sent back. I got another one but don't have what it takes to figure out how to make this one work.
I have asked several people to help...which resulted in me just becoming more frustrated.
I asked them several times to read the 4 step directions on how to set it up ...which they ignored
OK I am loosing track of the bootm line now so will stop.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I would just tell them that you need everything in writing. You have a hard time understanding verbal information, so you cannot be responsible for anything at all that is not in writing. Ever.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I have similar problems.
If they don't get that my ears are just so tender they can talk only so much at any one time, I have to tell them that I'm just too dizzy and exhausted to pay attention and excuse myself.
Now, it may not be that a vertigo wave is the main reason I have to stop, it may be that my ears have just hit their threshold of tolerance - or the fatigue just hit bottom (I do sort of get waves of that just like waves of vertigo
- but just saying "a wave of vertigo just hit" is the easiest way to just bolt without being rude. Let them know in advance that you are often caught midstream so they should not take offense.
The person with the forms is sadly uneducated about adrenal dysfunction - and about hearing sensitivies such as hyperaucis.
I also can't talk on the phone because it's so very painful. But, since I do sometimes, it's hard for people to understand.
For ears and balance, the two links below might be good to share with others so they will better understand.
I tried to find a simple one to explain the adrenal drops but I'm just too tired to sort through all the options as it's so complex. The vestibular symptom list, though, should educate them as to WHY you sometimes just have to stop mid-word, even.
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