posted
I haven't been on here in a long time. It was about a year ago that I discovered this site which led to me finding an LLMD. Each visit was a 400+ mile round trip but worth it. That was my turning point. Prior to that my local MDs scheduled the usual 10 minute in & out consultations an performed many tests that resulted only in me writing a bunch of checks. I presented my laundry list of symptoms in writing with a timeline showing how it was progressing. The only explanation that I could find that fit with what I was experiencing was neurological Lyme and/or the associated co-infections. Negative results on an Elisa test led my local MD to cross Lyme off as a possibility. By that time the MD had agreed to give me 2 weeks of ABX on which I experienced worse symptoms then some improvement. My cognitive ability has degraded so much at that point that I could not pay attention to what was happening around me, I could not follow a simple conversation. I was dangerous behind the wheel of a car & ran a red light without even knowing it, backed into my own trailer in the driveway. I missed appointments daily because I lost track of time. I had trouble navigating my way through a WalMart without bumping into someone. My energy level had decreased to the point that I would get home and just sit in a chair until it was time to go to bed. My hearing was dim, my vision blurred and There was constant pain in my head & eyes. My breathing was labored. My local MD declared that I was fine. At that point in desperation I started treating myself with ABX purchased online out of India, taking the gamble of second guessing the medical professionals. Had I not found a LLMD through the help of this site I believe I would have lost my job within 2 months as it was obvious that I could no longer function. 12 months later, 7 months on assorted ABX, my life is back. Brain function 9+ out of 10. I have been building an addition on the house on weekends, manual labor sunrise to sunset & feel fine. Put a roof on it last weekend. Heavy lifting all day requiring constant focus to avoid a fall. Remaining problems: continuous ringing in one ear and poor vision. I believe these are permanent. I am writing this for those out there who are looking for information to make their own decisions. This is one story. You are not alone.
Posts: 29 | From East Tennessee | Registered: Nov 2010
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Good news! Glad you are about back to normal and within in a year instead of years. We are fortunate to have a good doctor guiding our treatment. You were very brave.
Stay healthy!
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
quote:Originally posted by H8NLyme: BREAKING THIS UP FOR EASIER READING
I haven't been on here in a long time. It was about a year ago that I discovered this site which led to me finding an LLMD.
Each visit was a 400+ mile round trip but worth it. That was my turning point. Prior to that my local MDs scheduled the usual 10 minute in & out consultations an performed many tests that resulted only in me writing a bunch of checks.
I presented my laundry list of symptoms in writing with a timeline showing how it was progressing.
The only explanation that I could find that fit with what I was experiencing was neurological Lyme and/or the associated co-infections.
Negative results on an Elisa test led my local MD to cross Lyme off as a possibility. By that time the MD had agreed to give me 2 weeks of ABX on which I experienced worse symptoms then some improvement.
My cognitive ability has degraded so much at that point that I could not pay attention to what was happening around me, I could not follow a simple conversation.
I was dangerous behind the wheel of a car & ran a red light without even knowing it, backed into my own trailer in the driveway.
I missed appointments daily because I lost track of time. I had trouble navigating my way through a WalMart without bumping into someone.
My energy level had decreased to the point that I would get home and just sit in a chair until it was time to go to bed.
My hearing was dim, my vision blurred and There was constant pain in my head & eyes. My breathing was labored. My local MD declared that I was fine. At that point in desperation
I started treating myself with ABX purchased online out of India, taking the gamble of second guessing the medical professionals.
Had I not found a LLMD through the help of this site I believe I would have lost my job within 2 months as it was obvious that I could no longer function.
12 months later, 7 months on assorted ABX, my life is back. Brain function 9+ out of 10. I have been building an addition on the house on weekends, manual labor sunrise to sunset & feel fine.
Put a roof on it last weekend. Heavy lifting all day requiring constant focus to avoid a fall. Remaining problems: continuous ringing in one ear and poor vision.
I believe these are permanent. I am writing this for those out there who are looking for information to make their own decisions. This is one story. You are not alone.
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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